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duanes · Duane's Retraction Syndrome
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Messages 11955 - 11984 of 13027   Oldest  |  < Older  |  Newer >  |  Newest
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11955
my son is 13 now and he has duane's, 1 thing iv noticed about him is he tends not to make eye contact wiv people and as been in trouble for this in school...
jillzmailbox02
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Jul 1, 2008
4:47 pm
11956
I have Duane's, and I didn't make eye contact with people until after my surgery at 21. I can't even tell you how much it changed my confidence. Children, and...
Annie Fitzgerald
fitziegirl730
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Jul 1, 2008
5:33 pm
11957
I have two thoughts. I'm now 43, and still have trouble keeping eye contact with people, it is mostly a result that the way duanes affects me. If a person is...
Peter McCann
mccann_peter
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Jul 1, 2008
6:42 pm
11958
Pete, Thanks for that perspective! My son is 18-months old and was just diagnosed with Duanes. His looking off to the side instead of straight into my eyes at ...
Jean Elias
capscancomeback
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Jul 1, 2008
7:53 pm
11959
How young of a child do you think the lack of eye cotact affects?  Our daughter is 22 mos and a lot of the time, it is difficult to have her make eye...
Heather G
whitmore_dh
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Jul 2, 2008
12:51 pm
11960
I noticed the lack of eye contact around 6 months with my son. At first I was worried about it being autism but my pediatrician was convinced he was developing...
Jean Elias
capscancomeback
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Jul 2, 2008
1:12 pm
11961
my son's lack of eye contact hasn't affected his development in anyway, he will make eye contact with me and family and friends but if he's in a situation...
jillzmailbox02
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Jul 2, 2008
5:32 pm
11962
... Yes...trying to get my son to look "straight" for the pics was tough; more often that not, when he did, he squinted. I had to take like 20 just to get the...
shadowmatrx
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Jul 2, 2008
7:08 pm
11963
Hello, all! I have been trying to read through these posts as much as possible in my free-time; I am simply amazed at how similar all of our thoughts, fears,...
shadowmatrx
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Jul 3, 2008
3:19 am
11964
Thanks for the post. I just found out my 11 month old has Duanes in his right eye. I have not been told much about it at all and cant wait till September...
Michelle
noahandcamde...
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Jul 3, 2008
3:34 am
11965
Yes they can be both! My twin sons are both diagnosed left-side hypertonia with trunk hypotonia, and the eldest has hypertonia in his right leg as well. They...
shadowmatrx
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Jul 3, 2008
4:46 am
11966
Welcome to all of the newbies! I can't help noticing that this is yet another set of twins, ONE of whom has Duane's. And in this case they're identical...
SariScribe@...
sariscriibe
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Jul 3, 2008
5:13 am
11967
I have an appointment with an occupational therapist for a week from Monday because my son who has Duanes in right eye also has hypotonia. I just found this...
Michelle Grady
noahandcamde...
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Jul 3, 2008
7:38 pm
11968
I have fraternal twins.(girl/boy)My daughter is the one with Duanes.I know next to nothing about this.They basically said she has it and we'll see you in 4...
Becky
autobecca
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Jul 4, 2008
3:32 am
11969
Hang in there! It might be related, it might not. My boys both have mild CP in addition to my youngest having the Duane's. I remember that, for me, the...
shadowmatrx
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Jul 4, 2008
4:32 am
11970
Hi there! I LOVE meeting other parents of twins (I have 2 sets myself)! The reality is that next to nothing is known about it! So far there are a few widely...
shadowmatrx
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Jul 4, 2008
4:39 am
11971
Greetings and welcome. Just wanted to add my 2 cents about it being inherited. Most of the people on this board were told that it is thought to occur in early...
Liane Herbst
lfran84
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Jul 4, 2008
2:14 pm
11972
... Monday because my son who has Duanes in right eye also has hypotonia. I just found this all out last week so are these things related to one another? My...
barbzwired
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Jul 4, 2008
4:27 pm
11973
Thanks for the links; I e-mailed them today! -Elisa ... people on this board were told that it is thought to occur in early pregnancy, at about 7 weeks...
shadowmatrx
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Jul 4, 2008
7:29 pm
11974
I want to clarify my past email. The Duane's research group has said in the past that they would like to enroll in their study anyone with Duane's, even if...
Liane Herbst
lfran84
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Jul 4, 2008
8:49 pm
11975
I'm 15 years old, and I have duane's syndrome, my left eye is slightly moved into my nose, and i cannot turn it towards my ear. I suppose this is a typical...
xoxjubixox
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Jul 5, 2008
4:38 pm
11976
My daughter is 3 and she has the same thing, her one eye will not turn completely turn toward her eye. We did have an eye muscls surgery, it helped some but we...
Smitty
srs1994mlb
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Jul 5, 2008
9:09 pm
11977
Our daughter had the surgery and didn't have many after effects of the surgery. She slept off the anethesia and was up playing that night. I think it hurt us...
Smitty
srs1994mlb
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Jul 6, 2008
12:29 pm
11978
Do her eyes align when looking straight ahead or is she just unable to turn one of her eyes completely out? If her eyes are aligned in the central position,...
coreywoolhouse
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Jul 7, 2008
6:07 am
11979
My 18 month old son was diagnosed with Duane's a couple of weeks ago. The doctor said that he needs surgery because his eyes do not align straight in the...
Jean Elias
capscancomeback
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Jul 7, 2008
1:03 pm
11980
Well personally, my alignment was fine until around my eighteenth birthday and now my left eye turns in pretty badly. If you held his face in your palms and...
coreywoolhouse
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Jul 7, 2008
1:29 pm
11981
He's not comfortable looking me straight on if I hold his face, he always looks away. That in and of itself is probably a good indicator that he has some...
Jean Elias
capscancomeback
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Jul 7, 2008
1:53 pm
11982
On Mon, 7 Jul 2008 09:53:17 -0400 "Jean Elias" <jean.elias@...> ... I remember the surgery as a real ugly experience. I had to stay in hospital for a...
Christoph J. Gartmann
riromamei
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Jul 7, 2008
2:51 pm
11983
Yes, but now the surgery is outpatient, takes less than an hour, and the kids go home later that day! Almost everyone has reported that the experience is far...
Liane Herbst
lfran84
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Jul 7, 2008
3:15 pm
11984
I am not sure this is correct 'Dr. R. doesn't do VRT for cosmetic means". We took our 15 year old granddaughter to UCLA in May. Are eyes are aligned straight...
Anita Johnson
anitamjohnson@...
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Jul 7, 2008
4:20 pm
Messages 11955 - 11984 of 13027   Oldest  |  < Older  |  Newer >  |  Newest
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