I am aware of the research team in London affiliated with the Great Ormond Street Hospital. I understand that they are also trying to identify the genes...
1146
Nathalie McIntosh
mcintosh@...
Feb 1, 2000 1:52 pm
After reading the messages about the poll I got the feeling that some where confused as to who should answer. For the poll to answer the questions "What...
1147
Nathalie McIntosh
mcintosh@...
Feb 1, 2000 1:52 pm
Dear Shells, Would your family be interested in participating in research that is trying to identify the gene(s) involved in Okihiro type DS? As you may know...
1148
Gena Higgins
gena.higgins@...
Feb 1, 2000 1:56 pm
My son goes back to his eye doctor within the next couple of months. Since his last visit I met all of you in this group, found out about SID, got an...
1149
Lisa
veggie@...
Feb 1, 2000 3:20 pm
I'm a 35-year-old female who found out a couple of years ago what the name was for the "problem" with my eyes but only very recently learned more about...
1150
Dabney Grinnan
ldgrin@...
Feb 1, 2000 3:29 pm
My son has both. He is 8 1/2. Dabney Grinnan...
1151
Samolinski
tjsam@...
Feb 1, 2000 5:53 pm
Gena...My three year old daughter has both duanes and SI. Her P.O., who I have all the faith in the world in, has told me that he believes there IS a link but...
1152
Todd & Kris White
whitelex@...
Feb 1, 2000 6:05 pm
Hi Lisa, So glad you found this list. I know I was thrilled to have such a source to go to for advice, info, support, etc. Our son Aaron has type 1 in his ...
1153
Lisa
veggie@...
Feb 1, 2000 6:56 pm
"todd & kris white" <whitele-@...> wrote: original article:http://www.egroups.com/group/duanes/?start=1152 ... I was wondering from you -or anyone ...
1154
teraza
teraza@...
Feb 1, 2000 7:38 pm
Lisa, Just wondering if you get double vision. I do, even though in most cases you arent supposed to, its just supposed to shut off that eye. does anyone know...
1155
Petshell
shells@...
Feb 1, 2000 8:24 pm
i am sure we would be interested in participating in the research. did you realise we live in the UK? ... From: Nathalie McIntosh...
1156
Petshell
shells@...
Feb 1, 2000 8:28 pm
Nathalie. as far as i understand Moorfield eye hospital in London was also trying to do a piece of research re Duanes / familial/ other accociated conditions ...
1157
Higgins, Gena
Gena.Higgins@...
Feb 1, 2000 8:40 pm
Thanks Julie! I think there is a link too. Maybe someday it will be proven! Thanks and best of luck to you also! ... From: Samolinski...
1158
Bhettle@...
Feb 1, 2000 8:49 pm
Yes. 3 year old boy diagnosed with sensory integration - especially vestibular and propriceptory. Poor balance and coordination. Barbara...
1159
Higgins, Gena
Gena.Higgins@...
Feb 1, 2000 8:53 pm
Thank you! ... From: Dabney Grinnan [mailto:ldgrin@...] Sent: Tuesday, February 01, 2000 10:36 AM To: duanes@egroups.com Subject: [duane's] Re: SID ...
1160
Higgins, Gena
Gena.Higgins@...
Feb 1, 2000 8:53 pm
Thanks! ... From: Bhettle@... [mailto:Bhettle@...] Sent: Tuesday, February 01, 2000 3:53 PM To: duanes@egroups.com Subject: [duane's] Re: SID Yes. 3...
1161
Lisa
veggie@...
Feb 1, 2000 9:06 pm
Teraza, I get double vision if I try to look to the right. Both eyes stilll "see" but one is looking ahead and one to the side. Is this what you meant? Lisa ...
1162
Debra Mardin
sdjcmardin@...
Feb 1, 2000 9:07 pm
Gena My son is ten and has Duanes in one eye, SID, ADHD, and problems with bilateral coordination and perception. Please share with us anything that you find...
1163
kcmail@...
Feb 1, 2000 11:51 pm
Isn't it exciting about the genetic research by Nathalie !?!. To participate in the POLL (if you are or have offspring of Duanes), you must actually vote at...
1164
Paul & Julie Andrews
paul@...
Feb 2, 2000 12:39 am
Lisa, Thanks for the insight into your life with Duanes. So glad you found us! Julie & Paul Andrews India 2yrs with Duanes Type I Left Eye (no other problems...
1165
Paul & Julie Andrews
paul@...
Feb 2, 2000 12:40 am
Kris, Type 2 from what I understand is no inward movement. Type 1 no outward movement and Type 3 a mixture of both. Question for the the group if anyone...
1166
Anne Graham
jgraham@...
Feb 2, 2000 1:23 am
HI Our son Ian has TypeII left eye. From my understanding (and experience) the eye does not move toward the nose, giving him a reverse cross eye or wall-eyed...
1167
Stephen C Bingham
swbingham@...
Feb 2, 2000 1:58 am
Re: Classifications have been clarified at the following website: www.smbs.buffalo.edu/oph/ped/duanes.htm For those who dont want to pursue further info at...
1168
Todd & Kris White
whitelex@...
Feb 2, 2000 2:23 am
Many thanks Wendy - - -Kris White...
1169
Heather Dilcher
bnhdilch@...
Feb 2, 2000 3:17 am
I've been reading over past posted messages...and there seems to be so many things associated with Duanes. My 4 month old was just diagnosed, and the PO said...
1170
Todd & Kris White
whitelex@...
Feb 2, 2000 4:54 am
Hello - I'd like to add to what Kathy said about the sending of messages if I may. It is easier most of the time not to have the message that you're ...
1171
Sarikb@...
Feb 2, 2000 9:59 am
Hello to all the new members, and to Lisa in particular -- Welcome to the group, and thanks for talking about your experiences. It sounds like you (Lisa) have...
1172
Lisa
veggie@...
Feb 2, 2000 1:00 pm
sarik-@... wrote: original article:http://www.egroups.com/group/duanes/?start=1171 ... or not ... Yes! In my experience, controlling my placement in a...
1173
MktPoint@...
Feb 2, 2000 1:08 pm
Shels, You wrote that in your family (Okihoro type) Duane's presented itself with thick neck muscles among other things. Could you elaborate on this a bit? Is...
1174
Higgins, Gena
Gena.Higgins@...
Feb 2, 2000 2:12 pm
Julie, Preston is Type 1 and he has no outward movement at all. Nothing past the midpoint. His doctor is talking surgery this spring, but not because it will...
