I just thought i would introduce myself. I am a 20 year old male from NY affected by this syndrome, type 1 i believe? I had surgery when i was 5, but my...
Hi and welcome to the group. I am the mother of an 8 year old with DS type 1 in her right eye who had surgery 4 years ago (VRT followed by botox injection). I...
I'm 49 with type I DRS in my left eye. Perhaps a 5-10 degree head turn. Untreated. I have the same tiring problem when reading that you've described....
Hi Monica We are from the UK. I posted about Emily botox injection in message 8853 (which also makes reference to another posting about her previous...
Thanks,for the straightedge tip, Thomas. i also have about the same head turn, but am looking to correct it further. i called the doctor today for an...
You might try the archives. I know that there have been some in the past. Also, I believe Dr Rosenbaum at UCLA has used them in some cases based on some...
Hi My daughter (9 months) has just been diagnosed with Duanes but we haven't been told which type. She also has a skin tag on her ear so has been referred to...
I am a 64 year old woman who was breech at birth. I always assumed my eye was damaged when I was turned during labor. About 10 years ago, I learned I may...
hi another newbe here! my son (8 1/2 months) was diagnosed a couple of weeks ago with duanes, the eye dr (can't think at the mo what his title was!) was very...
Hi there. I think your experience of being told that "its one of those things he'll learn to live with and theres nothing that can or needs to be done" is...
... has ... you ... Hi Jane, Sorry for the very late reply! I think I did become an eye nurse subconsciously for that reason..... I rarely think about Duanes...
Hello there Jane & Vicky Do you both live in the UK? It's a good group to get info but things can be done very differently on either side of the atlantic with...
Fiona I am also in the UK (Essex). I can obly go on experience but for Alex botox has bought his eye midline (see photos section). His confidence has improved...
just wanted to introduce myself. I found this group while doing ,for the first time in my life a serch on duanes . I am 29yrs old and live on a small Isl off...
Found out today that my 17th month old grandson Benjamin has duanes syndrome. Looked it up on web and got a little frightened. I don't think his eye looked too...
Number one. There is no need to panic. Of all the Duane's parents and Duane's recipients, I have only heard of a handful of cases where it is a life altering...
Welcome! I don't have a specific answer to your question about involuntary movement of the Duane's eye, but I am thrilled to hear that you've gotten through...
SariScribe@...
Nov 21, 2007 7:12 am
11154
I'm really grateful to Candice and the moderator for your replies. We live in Oxford and the hospital here is a teaching one so I'm hoping that Benjamin will...
I am 36 years old. Growing up w/ Duanes was a little brutal w/ some kids. Also being a kid myself, especially a teenager and being very self conscience about...
... some ... very ... compensate ... can't ... was ... what ... field ... finally ... was Hi, I'm Danielle I'm new to the group. I too was born with Duanes ...
I think previous adult posters have spoken about this. Two issues to consider, "duanes related" migraine could be caused by - Eye strain - as a result of...
I'm 50 now with 10% face turn with type 1 DS and have never had migraines. With daily overseas video conferencing, I'm aware daily of DS but I've adopted to...
I am 43, with DS type 3 (is there anyone else out there with type 3???) My family has a history of migraines, and I used to get them quite frequently (enough...
Hi, sorry I missed your message somehow... I am 43, type 3. Vertical prisms at 10 diopters, sometimes I have horizontal prisms as well, it varies year to year...
For me with type 3, when I try to look anywhere but straight ahead or down, I experience incredible discomfort (pain). Oddly, this pain goes away when the DS...
Yes! I also have type 3 duanes and a gifted IQ( but have been keep humble by my learning disability and ADD), but no Hx of head aches. I also exsperance...
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