I just thought i would introduce myself. I am a 20 year old male from NY affected by this syndrome, type 1 i believe? I had surgery when i was 5, but my...
11133
cjsal@...
emjcol
Nov 7, 2007 12:37 pm
Hi and welcome to the group. I am the mother of an 8 year old with DS type 1 in her right eye who had surgery 4 years ago (VRT followed by botox injection). I...
11134
Monica Ross
mmross52000
Nov 7, 2007 1:04 pm
Where are you located? I am interested in hearing more about the botox injection. How did that work out? Thanks, Monica ... From: cjsal@... To:...
11135
tbrown9163@...
tbrown91632003
Nov 7, 2007 5:17 pm
I'm 49 with type I DRS in my left eye. Perhaps a 5-10 degree head turn. Untreated. I have the same tiring problem when reading that you've described....
11136
cjsal@...
emjcol
Nov 7, 2007 5:18 pm
Hi Monica We are from the UK. I posted about Emily botox injection in message 8853 (which also makes reference to another posting about her previous...
11137
hazardjackson
Nov 7, 2007 5:46 pm
Thanks,for the straightedge tip, Thomas. i also have about the same head turn, but am looking to correct it further. i called the doctor today for an...
11138
Monica Ross
mmross52000
Nov 7, 2007 9:15 pm
It seems that everyone that mentions the botox injection is from the UK. Has anyone had it done in the US? Monica ... From: cjsal@... To:...
11139
Candice Forbes
auburnaxo93
Nov 8, 2007 1:48 am
You might try the archives. I know that there have been some in the past. Also, I believe Dr Rosenbaum at UCLA has used them in some cases based on some...
11141
Candice Forbes
auburnaxo93
Nov 8, 2007 5:12 pm
Great! I hope you find as much success with him as we have. Candi...
11142
catrinhorrex
Nov 8, 2007 8:12 pm
Hi My daughter (9 months) has just been diagnosed with Duanes but we haven't been told which type. She also has a skin tag on her ear so has been referred to...
11144
jaa1943
Nov 10, 2007 7:54 pm
I am a 64 year old woman who was breech at birth. I always assumed my eye was damaged when I was turned during labor. About 10 years ago, I learned I may...
11145
Claire
bikerbabe_uk...
Nov 10, 2007 10:51 pm
hi another newbe here! my son (8 1/2 months) was diagnosed a couple of weeks ago with duanes, the eye dr (can't think at the mo what his title was!) was very...
11146
cjsal@...
emjcol
Nov 11, 2007 4:50 pm
Hi there. I think your experience of being told that "its one of those things he'll learn to live with and theres nothing that can or needs to be done" is...
11147
evaneliza
Nov 13, 2007 10:24 pm
... has ... you ... Hi Jane, Sorry for the very late reply! I think I did become an eye nurse subconsciously for that reason..... I rarely think about Duanes...
11148
Fiona
fijay73
Nov 14, 2007 4:13 pm
Hello there Jane & Vicky Do you both live in the UK? It's a good group to get info but things can be done very differently on either side of the atlantic with...
11149
petshell
petshells
Nov 14, 2007 6:01 pm
Fiona I am also in the UK (Essex). I can obly go on experience but for Alex botox has bought his eye midline (see photos section). His confidence has improved...
11150
erika.ruckman
Nov 18, 2007 8:11 am
just wanted to introduce myself. I found this group while doing ,for the first time in my life a serch on duanes . I am 29yrs old and live on a small Isl off...
11151
deniselee431
Nov 19, 2007 10:23 pm
Found out today that my 17th month old grandson Benjamin has duanes syndrome. Looked it up on web and got a little frightened. I don't think his eye looked too...
11152
Candice Forbes
auburnaxo93
Nov 19, 2007 11:05 pm
Number one. There is no need to panic. Of all the Duane's parents and Duane's recipients, I have only heard of a handful of cases where it is a life altering...
11153
SariScribe@...
Nov 21, 2007 7:12 am
Welcome! I don't have a specific answer to your question about involuntary movement of the Duane's eye, but I am thrilled to hear that you've gotten through...
11154
deniselee431
Nov 21, 2007 10:32 am
I'm really grateful to Candice and the moderator for your replies. We live in Oxford and the hospital here is a teaching one so I'm hoping that Benjamin will...
11155
mdc1971
Nov 22, 2007 4:28 am
I am 36 years old. Growing up w/ Duanes was a little brutal w/ some kids. Also being a kid myself, especially a teenager and being very self conscience about...
11156
danielle531983
Nov 22, 2007 9:41 am
... some ... very ... compensate ... can't ... was ... what ... field ... finally ... was Hi, I'm Danielle I'm new to the group. I too was born with Duanes ...
11157
cjsal@...
emjcol
Nov 22, 2007 12:23 pm
I think previous adult posters have spoken about this. Two issues to consider, "duanes related" migraine could be caused by - Eye strain - as a result of...
11158
tbrown9163@...
tbrown91632003
Nov 22, 2007 5:35 pm
I'm 50 now with 10% face turn with type 1 DS and have never had migraines. With daily overseas video conferencing, I'm aware daily of DS but I've adopted to...
11159
Kathy Roche
mathterp64
Nov 25, 2007 2:51 am
I am 43, with DS type 3 (is there anyone else out there with type 3???) My family has a history of migraines, and I used to get them quite frequently (enough...
11160
Kathy Roche
mathterp64
Nov 25, 2007 3:05 am
Hi, sorry I missed your message somehow... I am 43, type 3. Vertical prisms at 10 diopters, sometimes I have horizontal prisms as well, it varies year to year...
11161
Kathy Roche
mathterp64
Nov 25, 2007 3:12 am
For me with type 3, when I try to look anywhere but straight ahead or down, I experience incredible discomfort (pain). Oddly, this pain goes away when the DS...
11162
erika.ruckman
Nov 27, 2007 8:02 am
Yes! I also have type 3 duanes and a gifted IQ( but have been keep humble by my learning disability and ADD), but no Hx of head aches. I also exsperance...
11163
duanes@yahoogroups.com
Nov 30, 2007 10:09 am
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the duanes group. File : /! !!@ #...
