You are correct. In surgery they move two muscles with correct wiring into a position to help (VRT surgery) or they weaken the opposing muscle so that it does...
Hi...I am new here and I am doing research to find out more on this condition. My son is disabled and this is only one of the MNAY problems he has. He had...
My wife and I have a beautiful 18 month old daughter, Sarah, that was diagnosed with DS at the age of 9 months. At her 2 year old appointment, her pediatric...
Shawn, Our little one had surgery last week at the Jules Stein Eye Center. She just turned 10 months. Dr. Rosenbaum had recommended surgery and she was...
Hello Guys, Was you wondering what was that Atkin's diet that made all that noice in the past few years :) you can read it all here for free (requires...
Hello Guys, Was you wondering what was that Atkin's diet that made all that noice in the past few years :) you can read it all here for free (requires...
Hello everyone, I hope you all had great Christmas! We are considering MRT surgery for our two-year old. Can you please share with me your experience after the...
My son had VRT surgery December 2005. He was 2 1/2 years old. We started with a 25-30 degree head turn. The VRT got us back to a 10 degree head turn and the...
Thanks so much for the reply! Happy New Year! -Shawn ... Center. She just turned 10 months. Dr. Rosenbaum had recommended surgery and she was scheduled for...
Hello everyone, I just joined your network because I'm desperately looking for help. While reading through your messages, I was surprised to find that so many...
Hello everyone, I just joined your network because I'm desperately looking for help. While reading through your messages, I was surprised to find that so many...
who cares what anybody thinks im 22 and i have had duanes syndrome since i was born and i wasnt ridiculed for having it surgery at that young of age is...
Your experience may differ from that of many others. Our decision to proceed with surgery was based on several medical opinions and what was best for our...
Just wanted to share my experiences. Both I and my older son have bilateral Duane's. For myself, my left eye doesn't quite hit midline and my right eye goes...
... his duane's. He is 22 and had surgery last May as the Duanes eye was causing him a lot of problems - not just cosmetically though. He started having...
... this, or could be that it is related to a certain type of condition he sees that this would benefit. My son had surgery on just the one eye last May. It...
My son is 10 months and has Type 1 left eye. He is having surgery on January 24 in Rochester, NY. Can anyone tell me about the recovery process and/or what...
My son was two when he has his surgery. He woke up very angry about the IV from surgery. It took most of the day for him to come around a little. He also...
Hi ???, I'm very sorry to hear that you are experiencing so much troubles with your condition. Unfortunately, I cannot help you with your medical issues, but I...
I was wondering if anyone can let me know if their childs (or there own) case of Duanes syndrome, got a lot worse in time. My 8mth old daughter was dig. with,...
When my daughter was diagnosed with Duanes at 16 months (type 1, right eye), our doctor told us that it does not get worse although the medial rectus (muscle...
I hope all goes well with your son's surgery. Is he having the VRT? Since he is so young, he won't remember any of it... you will. Our little girl was older (5...
On Tue, 09 Jan 2007 23:17:55 -0000 "laineyseye" <jklein143@...> ... Mine definitively did. After patching and surgery in early childhood my eyes did hit...
I understand it is quite rare, but my son had a fever convulsion at almost two years of age. We went from an almost 10 degree head turn before the convulsion...
Hello Erica, thanks so much for all the support! :-) At this point I am convinced that you and everyone else is right, I have to really work on accepting...
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