Danielle, I think the head turning refers to the compensation for not having the periferal vision so they turn their head to see something to their side. I...
Hi, Brian! Cannot help you with someone at Moorfields as I am in Texas, USA. :-) However, I can answer your question about the head turn. Yes, by him turning...
I am a 30 yr female w/Duanes Type I in my left eye. I was diagnosed at the age of 2 with Duanes and at the time had no head turn. Its something that...
Actually, although it would seem turning to look to the side is a head turn, what the doctors mean is if the person has to turn his or her head to see...
Actually, the head turn is when someone is trying to align their eyes to look straight ahead. Some Duane's, and certainly not all, will move their head to one...
Hi, I joined this group recently when my daughter was diagnosed with Duane's type 1 in her left eye. She will be 12 months on Tuesday. So far it is a 'mild'...
For years, I would always notice that my head was turned differently than everyone else in a group photo. I never knew why. Then fairly recently, with the...
The reason they watch is that things can change over time, especially for the first 5-6 years of life. My son developed a headturn over time that was very...
Is there a seperate group/ forum for adults with duane's by any chance? I would really like to communicate with other adults who have duane's - specifically...
We just found out today our 5 yr old has DS. She is being treated with glasses and a recheck in 1 month. The thing that bothers me is we have been telling the...
It breaks my heart to hear so many people being disqualified from military service for our common syndrome. I wasn't diagnosed until I was 24 years old,...
I think you're spot on Bill. I'm a Duane's type I, relatively mild but if I told a doc that, I bet they'd ask "who did this to you, Duane?" "Maximizing...
Thank you very much for that feedback. That really helps. I read a lot of stuff on the internet and none of it gave that simple explanation at all. I have also...
Hi, Why are you going to Moorfields rather than your local hospital and what is the name of the doctor you are going to see. We go to Jimmy's in Leeds and...
Thank you all for the clarification on what a head turn is. I was totally wrong in what I thought it was. Now I know more what to watch for as my son grows and...
We are only 25 miles from Moorfields anyway and our local hospital has messed us around - they sent us 5 appointments and cancelled the lot ! I also thought...
Hi Shannon, and welcome to the group. I'm an adult with DS, and I'm always glad to see other DS adults on here. I'm afraid I can't give you any help with your...
My recent personal experience (and others can disagree) is that a pediatric ophthalmologist (not optometrist) is the best specialist to see for duane's in...
Hey there. . .I'm new here . . .29 year old female with left side DS. . .i'm actually the rare "type 2". . .I have about a 30 degree head turn and very limited...
I'm also an adult with Duanes. I would recommend sticking with your pediatric ophthalmologist if they are willing. They will know the most about Duanes. I've...
It sounds like we have the exact same complications regarding Duanes (type, limited vision in my left eye). Luckily, I've never had a problem reading; but I've...
An after thought to my recent post. Make double sure that the surgeon is experienced with Duanes and not just "lazy eye". I had a botched recession during my...
Thanks Jennifer, I think I'm glad I waited until now to do anything about this based on other people's experiences with multiple/botched surgeries. This...
I am a 33 single mother and I have a 2yr old daughter. We just found out she has Duanes Retraction Syndrome. Her dr has set us up to see a specialist. He has...
Actually, she should even be able to play pro sports if she is blessed with the talent. I'm 35 year old with duanes and the only limitation that I've noticed...
hi brian, we too are in the uk, my son alex has duanes and it sounds just the same as your son. we have no experience of moorfields as we live in the north....
http://www.claudia-chelan.eu/en/ Claudia is 24 years old and a final-year medical student at the University of Medicine and Pharmacy of Craiova, Romania. She...
My child was born premature at 32 weeks. I was induced and given steroids to help with the heart and lung development. After birth my husband and I noticed...
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