I had 3 surgeries growing up, the last one when I was 12. I never had any trouble with double vision or any problems after the surgeries. The only problem I...
I recently turned 36 and I'm dealing with upper and middle back problems that I THINK are related to my head-turn. I'm currently searching in the philadelphia...
It must hit us in our thirties. That is when I sought out help. I had surgery at Wills Eye back in the mid-eighties. I was having back and neck problems...
I had my first surgery at Wills Eye in Philly back in 1975, and my second in 1979 at age 15. The Dr back then was Robson D. Harley, he's long since retired,...
I agree, I tried therapy and it didn't work. If you think about it, how could therapy for neck pain help if your not fixing the problem that causes the...
Also, I would recommend Dr. Velez at UCLAfor surgery. I'm from Oklahoma and it was worth the travel. I provied medical records in advance and was able to fly...
Wow-can I just say thank you to all who have responded to my questions of this morning.All of you-(except the spam post tonight that came to my account-) have...
Jennifer, They do the adjustable sutures on adults not kids. After two surgeries and another planned for the summer, no mention of adjustable even in my 9...
Most kids start with Versaid (SP?), also known as memory erasing drugs. They put my child's IV in after this, so until he woke up he had no idea it was there....
I'm glad the group has been helpful to you. I also want to reassure you that MRR surgery (adjusting the muscle to align the eye) is a very common surgery that...
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Sue Ware
don_sue_ware@...
Apr 7, 2012 2:08 am
Hi there, I am grandmum to Tahlia, one of identical twin girls, who has Duanes in her left eye. After much prayerful consideration, her Mummy and Daddy decided...
My son was diagnosed at 7. He is now 10. We had the first surgery at 7 and his second at 8. My husband and I do not regret the surgeries. He is doing...
"I'm glad the group has been helpful to you. I also want to reassure you that MRR surgery (adjusting the muscle to align the eye) is a very common surgery that...
14189
anitamjohnson@...
Apr 7, 2012 6:38 pm
What a beautiful letter. You are a wonderful Grandmother. I have tried to be a wonderful Grandmother to our DS granddaughter, Megan. She was not a...
Hello, My name is Ashley and I have type 1 Duane's Syndrom! I put the exclaimation mark because I have been finally diagnosed! I am 26 yrs old and never had...
Hello there, I am seventeen years old and have Duane Syndrome. It affects my left eye and I assume I am type 1, even though I have never been told. I was...
Where is the best place to have surgery done for Duane Syndrome? My son is 4. He had surgery when he was 2yrs old in London, Ontario and had maximum muscle...
Dear Mariana, My daughter who is now 12 had a bilateral rectus recession at the age of 1 yr which realigned her eyes in a straight gaze. I've come to...
Hi I'm a 34 y/o man that has been diagnosed since I was 4. The doctors were amazed that I had all three types, This means I have almost no eye movement what so...
Hi Aaron... My name is Anderson and me too have miswired eyes muscles that moves somewhat but minimal. Following lights or anything like is ridiculous. ...
I wanted to take time to write and thank each one who wrote to me before my son's surgery while we were trying to decide whether to go ahead or not. My son had...
My son also has Duane's on both eyes and he had muscle recession on both eyes. He is still crossing one of his eyes towards his nose, however looking at...
Hi everyone, I am new to the group, I have 13 month fraternal boy/girl twins and my son, Henry, has Type 1 Duane's in his left eye. He was diagnosed around 4...
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Sue Ware
don_sue_ware@...
May 1, 2012 12:06 pm
Hi Susan, I am grandmother to 15 year old identical twin girls - one of whom has Duanes. I can't see any need to rush into surgery before Henry walks. With our...
Hello I just joined this group. I am so happy to see that there are others who can relate to what I have. I am 20 years old and was diagnosed with Duane's...
14203
Sue Ware
don_sue_ware@...
May 7, 2012 11:12 pm
Hi and welcome! It's so good to hear that you are doing so well and have become more comfortable "doing life" with Duanes as just one part of who you are. I...
