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duanes · Duane's Retraction Syndrome
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new member, in tears   Message List  
Reply | Forward Message #9999 of 13116 |
Re: I'm confused

In a message dated 7/1/2006 3:30:30 P.M. Pacific Daylight Time, duanes@yahoogroups.com writes:
It seems half of the people with duane's were teased and had a very hard time, and then there is the other half who said no one noticed. I'm sort of confused by that. Either people notice or they don't or does it vary with the severity of the duane's?? I so much do not want my dd teased in the least. That is what I worry about most.
In my own case, I am 48 years old.  Many/most people do not notice my Duane's (friends who have known me years before I mention it and they finally notice have told me it's not that prominent).  To me, it seems like it must be a big billboard to the world but apparently it's not.   In school as a child for my early years I wore glasses to "strengthen" my Duane's eye (I was misdiagnosed and the glasses were for the "lazy eye" aspect of the Duane's).  The glasses "hid" the Duane's a lot because the lens on the Duane's eye was so thick it made my eyes more the same "size".  I was teased a little for the glasses but nothing severe -- it was just that at 4, 5, 6, etc. none of the other children were wearing glasses.  By the time I was 12 or 13 and was told by my PO that I could take my glasses off and only use them when I read (which I didn't even do that once they came off), many of those same kids who had teased me for my glasses were wearing them themselves.  (poetic justice?)
 
Anyway, all this to say is that it never was a really big deal. Some notice, some don't.  The amount of teasing was never all that great and I survived it all quite well.  Kids can be cruel and will find almost any reason to pick on each other.  What doesn't kill you makes you stronger...
 
Kat


Sun Jul 2, 2006 12:18 am

annwrawks
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Message #9999 of 13116 |
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Hello, I just found out my 5 month old daughter has Duanes syndrome. Since birth I have noticed her (wandering eye) but nobody else really noticed it and it...
Cheryl
cnorwoodus
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Jun 30, 2006
9:15 pm

Cheryl <cnorwoodus@...> wrote: Hello, I just found out my 5 month old daughter has Duanes syndrome. Since birth I have...
Susan DeMartino
susan_demartino
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Jun 30, 2006
9:35 pm

thank you gina..... abbie rich www.sewdragondesigns.com...
gomomgomomgomom@...
scifig
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Jul 2, 2006
12:10 am

Welcome Cheryl, My 5yr old dd has duanes and none of her friends bother her about it. Her duane's eye meets midline so the only time one would notice is when...
alisonslp
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Jun 30, 2006
10:04 pm

We have a family of people with Duanes and I have to say the Duanes hasnt been a problem! they play sport, are extremely bright, can drive (those who are old...
petshell
petshells
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Jul 1, 2006
8:50 am

Hi Cheryl, My son is now 15 (Type I, left eye) and has passed most of the teasing now that he is in high-school. (The teasing about Duanes, anyway! Boys seem...
Amy Rose
azrphr@...
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Jul 1, 2006
2:02 pm

It seems half of the people with duane's were teased and had a very hard time, and then there is the other half who said no one noticed. I'm sort of confused...
Julie Stevens
jmb_10470
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Jul 1, 2006
4:02 pm

I think it has alot to do with how the child decides to handle situations. If they are matter of factly about teasing, then the kids will stop teasing. Or if...
alisonslp
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Jul 1, 2006
4:41 pm

Julie wrote that she was concerned about the teasing. Believe me that was a very big worry for me, since I had grown up with an hemangeoma (a strawberry...
Amy Rose
azrphr@...
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Jul 1, 2006
10:29 pm

In a message dated 7/1/2006 3:30:30 P.M. Pacific Daylight Time, duanes@yahoogroups.com writes: It seems half of the people with duane's were teased and had a...
AnnWRawks@...
annwrawks
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Jul 2, 2006
12:26 am

Hi, Cheryl I'm twenty-five and have type III DRS. I had a slight head tilt but hd it corrected at twenty. That wasn't at all noticable, but I had it done...
jennifergordonad1
jennifergord...
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Jul 1, 2006
5:22 pm

I, also, would like to console the new members, who are tearful about their child's diagnosis with Duane's. I'm 38 years old (female) and I have type 1...
Gina Sifford
gmsifford2000
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Jul 1, 2006
11:11 pm

Cheryl, I complained to my daughter's pediatricians (she had 3 because of us moving) and they all said "oh, it's nothing. She just has a wide nasal bridge."...
Margaret Scott
mischief1172003
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Jul 3, 2006
5:04 pm

-Hi Cheryl, I had a very similar experience with our ped. optho. If you don't mind me asking where do you live? We are in Central Va. After finding this...
randlwisniewski
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Jul 4, 2006
2:25 am

Thank you EVERYONE for your comments. I live in Lawrence, KS, not far from KC. I am getting a second opinion from Children's Mercy on July 13th. I appreciate...
Cheryl
cnorwoodus
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Jul 5, 2006
2:05 pm

BTW, I just posted pictures of Janae in the photo album! Proud mama :) ... on ... don't ... to ... getting ... in ... me ... there ... of...
Cheryl
cnorwoodus
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Jul 5, 2006
6:51 pm

... minor, it is not easy to detect from the photograph. Don't despair over the diagnosis of duanes, things can be done if necessary. Read all the back posts...
jma1721
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Jul 6, 2006
11:05 am
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