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Re: [duane's] what the chance that my child will have a dunae   Message List  
Reply | Forward Message #7458 of 13106 |
Well.. I  can only tell you about my daughter... has Duanes'  don't know which type.. we found out she had it when she was 5 yo... but told there was nothing to do to fix it... she has had visual therapy etc... but no surgery.
 
WELL, she is married and has two beautiful kids... I know that this is only two kids.. but...
 
I'm sure that my feelings about Duane's is tempered by my family history... Dad with polio, me both with a club foot... a brother who died in infancy... but (and this is not said to minimize your fears) to me...  Duane's has been a concern but not a worry.  You sound like a caring and concerned person... ANY baby would be lucky to have you as a parent... I say this as a parent... but my daughter with Duane's is a beautiful woman.. the Duane's is interesting.. but not important in our lives...  Before we had the diagnosis.. we laughingly commented that she had blue eyes.... (which she does)... but for her... "one eye blew east and one eye blew west"... 
 
If you'd like to talk to her.. let me know.. I'll be glad to give you her email... since she is the one with the problem... she might be the best one to talk to.. she's 22 yo...  so she might be close to your age...
 
If you'd like her address.. let me know.. and best wishes... 
 
 
Patti
----- Original Message -----
Sent: Sunday, August 15, 2004 5:13 AM
Subject: [duane's] what the chance that my child will have a dunae

heloo every body, i 22 years old from israel, after 3 years i will
marry and i have a serias fear thatr my child in the future will
have a dune.     i have a duane syndrome type 1 left eye , my
father, mother 2 sister all of them are normal (dont have duane). my
6 uncle(father side) and their sons all of them are normal. my 5
uncle (mother side) and their sons all of them are normal. my grand
father and grand mother(father side) are normal. my grand mother(
mother side) normal but my grand father i think he have duane (i
dont sure).  so after this report somebody can tell me about the
chances of my child to have duane? does my fear realistic?.

and i will be so happy if somebody can give me dr rosenbaum e-maill
adreess? because i think to fly to usa and pass a vrt surgery



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Sun Aug 15, 2004 3:42 pm

pboullie
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Message #7458 of 13106 |
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Well.. I can only tell you about my daughter... has Duanes' don't know which type.. we found out she had it when she was 5 yo... but told there was nothing...
Patti Boullie
pboullie
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Aug 15, 2004
3:42 pm

Duanes can happen by chance or it can run in families. If it runs in families then there is 50/50 chance the child will have it. However, My husbands mother...
petshell
petshells
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Aug 15, 2004
5:51 pm
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