--- In duanes@yahoogroups.com, "fjslkdjf" <gaylespringett12@...>
wrote:
>
> Hi there. My 12 month old nephew has just been diagnosed with
> Duane's syndrome and the family are all very worried. We live in
> the UK and I wanted to ask whether anybody knows of any eye
> specialists in the UK who specialise in Duane's.
>
> The first opthamologist my nephew saw did not pick up on the
> Duane's. The second one did. Do you think we need a third opinion?
>
> Also, the opthamologist did not give any advice on the next steps,
> or really what Duane's is. The next appointment for my nephew is a
> straightforward check up in February, they are just going to
monitor
> him.
>
> I have read on the internet that physical examinations are needed,
> along with MRI scans (to check if the missing nerve is in fact
> missing) is this correct?
>
> Also, the other physical conditions that can come with Duane's. Do
> these appear later on in life or are they also usually present at
> birth?
>
> Any help, advice very much appreciated.
>
> Thank you
>
Hi there, I am 25 and I have only just been diagosed with Duane's
because my head has turned to compensate for the lack of movement in
my eye. I have been told by an opthamologist that an operation would
not help, but I am desperate because it has made me so self concious.
I would ask for an MRI scan to check for the missing nerve, then try
and find an eye specialist. I have an appiontment with the
opthamologist in January and they will give me the verdict on whether
I can have an operation, but I was told not to get my hopes up.