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duanes · Duane's Retraction Syndrome
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Hello all..   Message List  
Reply | Forward Message #10432 of 13101 |
Re: Hello all..

--- In duanes@yahoogroups.com, Natalie Moseley <ncmoseley@...> wrote:
>I have to agree - not everyone can adapt. My son could not accept
his duane's. He is 22 and had surgery last May as the Duanes eye
was causing him a lot of problems - not just cosmetically though.
He started having double vision and problems with his back due to
the face turn. If surgery had been available when he was much
younger, I think we would have opted for it too. At that time, we
were told nothing could be done. It is a difficult decision, but a
personal one. Joyce

> Your experience may differ from that of many others. Our decision
to proceed with surgery was based on several medical opinions and
what was best for our child. The point of early surgery is that it
has better results and the child is less likely to remember having
the operation. Also, as infants not all of our pain receptors are
active, so something that would be very painful for an adult is less
so for a child.
>
> Each parent needs to come to this decision on their own. Just
because you learned to adapt does not mean that every child will. As
a child I was tormented because of a mole I had on my face. My
parents decided to get it removed. The scar I have is better than
the mole in many ways. It reminds me that people can be cruel but
there are things out there to lessen the embarrasment if you want it.
>
> And punctuation would help others to understand your point.
>
> janusjaclyn <janusjaclyn@...>
wrote: who cares what anybody
thinks im 22 and i have had duanes syndrome
> since i was born and i wasnt ridiculed for having it surgery at
that
> young of age is terrible if its not affecting her health who
cares its
> just her outer appearance if anything shell have more confidence
with
> herself and not care what anybody thinks people are mean yes we
all
> know that if anything shell be unique i just cant believe people
care
> so much about something so little and as you get older you learn
how
> to control it like i did
>





Mon Jan 8, 2007 7:23 pm

jma1721
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Message #10432 of 13101 |
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My wife and I have a beautiful 18 month old daughter, Sarah, that was diagnosed with DS at the age of 9 months. At her 2 year old appointment, her pediatric...
srs1994mlb
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Dec 25, 2006
10:34 pm

Shawn, Our little one had surgery last week at the Jules Stein Eye Center. She just turned 10 months. Dr. Rosenbaum had recommended surgery and she was...
Natalie Moseley
ncmoseley
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Dec 26, 2006
6:32 am

Thanks so much for the reply! Happy New Year! -Shawn ... Center. She just turned 10 months. Dr. Rosenbaum had recommended surgery and she was scheduled for...
srs1994mlb
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Jan 4, 2007
2:46 pm

I agree with Natalie. Our ten month old is scheduled for surgery with Dr. R in a couple of weeks. We went out for a consultation in October and he...
susan_demartino
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Jan 6, 2007
1:25 am

who cares what anybody thinks im 22 and i have had duanes syndrome since i was born and i wasnt ridiculed for having it surgery at that young of age is...
janusjaclyn
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Jan 7, 2007
4:54 pm

Your experience may differ from that of many others. Our decision to proceed with surgery was based on several medical opinions and what was best for our...
Natalie Moseley
ncmoseley
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Jan 7, 2007
11:20 pm

Just wanted to share my experiences. Both I and my older son have bilateral Duane's. For myself, my left eye doesn't quite hit midline and my right eye goes...
Liane Herbst
lfran84
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Jan 8, 2007
3:28 am

... his duane's. He is 22 and had surgery last May as the Duanes eye was causing him a lot of problems - not just cosmetically though. He started having...
jma1721
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Jan 8, 2007
7:32 pm

... self confidence and cause anxiety and depression. It also causes headturn, which can cause back problems. There is also a chance that it affects the...
jma1721
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Feb 23, 2007
3:57 pm

Well, our day came and went. Our daughter, Sarah, went in for surgery this past tuesday morning. She had no complications from her surgery, it was much...
Shawn
srs1994mlb
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Oct 10, 2007
9:14 pm

Congratulations on a successful surgery. Who was your surgeon again? What have you noticed about her eye just since the surgery? Thanks Shawn...
Julie Stevens
jmb_10470
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Oct 10, 2007
9:18 pm

Dr Timothy Jordan, Pediatric Opthamologist, Raleigh Opthamology, Raleigh, NC The day she came home, she complained about her eye for a few minutes and that was...
Shawn
srs1994mlb
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Oct 11, 2007
12:44 am
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