I agree with Natalie. Our ten month old is scheduled for surgery with
Dr. R in a couple of weeks. We went out for a consultation in October
and he recommended surgery so now we are having the VRT surgery
January 23rd. I will let everyone know how it goes.
Susan
--- In duanes@yahoogroups.com, Natalie Moseley <ncmoseley@...> wrote:
>
> Shawn,
>
> Our little one had surgery last week at the Jules Stein Eye Center.
She just turned 10 months. Dr. Rosenbaum had recommended surgery and
she was scheduled for March. Well, an opening came up and so week took
it! Two days later our little munchkin is starting to show some
amazing improvement. We can even see movement in her left eye!
>
> We were absolutely terrified about what might happen with the
surgery, the risks, the costs, but in the end we know that we would do
it again in a heartbeat because the quality of our daughter's life has
no price. We want what's best for her.
>
> So I say, go for it! (And fly out to see Dr. Rosenbaum. He is well
worth it!) Good luck to your little one and Merry (after) Christmas!
>
> ~Natalie
>
> srs1994mlb <srs1994@...> wrote: My
wife and I have a beautiful 18 month old daughter, Sarah, that was
> diagnosed with DS at the age of 9 months. At her 2 year old
> appointment, her pediatric opthamologist wants to discuss the
> possibility of surgery. So, we are a little concerned.
>
> I have been reading this group recently and appreciate all the
> information that people have posted. Like everyone else we dont want
> our child to be the subject of ridicule. Right now, her head turn
isnt
> that bad, but we are concerned of it getting worse as she gets school
> age, etc.
>
> Thanks for listening!
>
> Shawn
>