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duanes · Duane's Retraction Syndrome

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Description

A place for those affected by Duane's Retraction Syndrome(an eye mobility disorder) to share experiences and information with others. Keywords: Duane's Retraction Syndrome, DRS, Duane Syndrome,Duanes Syndrome, Stilling-Turk-Duane retraction syndrome

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Re: Hello
Hi Tim, I was born with Duane Syndrome in both eyes, and suffered from the "upshoot" problem; as an infant I would have to keep my chin pressed against my
Posted - Sun Nov 22, 2009 6:13 pm
alenhardt_htf
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Re: Mom of 15 month old with some "delayed" motor skills
Hey, Anne and Amelie - I am in the Houston area as well. My son Erik has type 1 DS in the left eye, and he didn't walk until 14 months. He's just under 2
Posted - Sat Nov 21, 2009 4:09 am
Glenn
stukadriver
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Re: Mom of 15 month old with some "delayed" motor skills
... Uh, this doesn't sound competent at all! ... I encourage you to see a paediatric ophthalmologist that is familiar with Duanes. Regards, Christoph Gartmann
Posted - Fri Nov 20, 2009 4:12 pm
Christoph J. Gartmann
riromamei
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Re: Mom of 15 month old with some "delayed" motor skills
You can actually get a rough idea of head turn on your own. Ask her to close one eye and do some task like watching TV, etc. She should be straight ahead,
Posted - Fri Nov 20, 2009 1:51 pm
Liane Herbst
lfran84
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Re: Mom of 15 month old with some "delayed" motor skills
My 2 year old with DS type 1 left eye, VRT at 10 months walked at 14 months and did not have an aversion to grass. My 12 year old without DS hated the grass as
Posted - Fri Nov 20, 2009 1:22 pm
ptmom08@...
ptmom08
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 64 32 32 113 57 78 40 68 45 61 68
2008 62 188 116 97 188 69 135 67 48 69 95 55
2007 87 27 77 78 97 49 84 69 64 75 32 71
2006 79 58 120 108 88 144 135 140 57 64 31 13
2005 87 96 242 71 111 69 108 125 112 181 123 137
2004 204 134 121 58 70 105 32 200 66 60 98 58
2003 206 112 87 210 132 69 79 104 77 81 194 94
2002 126 57 108 120 134 111 127 97 69 106 109 127
2001 124 237 197 139 178 149 47 78 34 110 62 45
2000 213 212 125 224 169 194 107 76 108 75 56 93
1999 82 98 37 60 87 140 63 131 127 106
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