Please all groups out their with EMAIL Groups, Bulletin Boards, Blogs, Websites Will you please post this as an action item? EMAIL should be directed to
DSNurse@... on this project.
Others please forward to other contacts you have. Vets to Vets, friends to vets, families to vets, etc
Thanks
Denise Nichols
Maj., USAFR(ret)
Gulf War Veteran
1611AES(P)
Flight Nurse
RN,MSN
Vice Chair National Vietnam and Gulf War Veterans Coalition
_________________________________________________________
Dear Secretary of the VA Mr Nicholson, Dr Robert Hailey (UTSWmed-VA Gulf War Collaborative Project), Mr Jim Binns (Chairman of the VA RAC GWI)
Eye problems of the first gulf war(Operation Desert Storm) has been and is an emerging problem. WE are asking VA to find neuro-opthalmologist and to start seeing veterans and to document the problems and possible treatment to save or stabilize our eye sight. Unless you are 100% you can not get this need met in the VA. I am asking VA to identify this as a problem and start seeing us regardless of rating. Or give fee basis so we can get to qualified neuro-opthalmologist throughout the country. We need these doctors to evaluate and report!
We need UTSouthwest to include this in their plan.
WE need the lab animal studies to document what is happening in this regard!
WE need the data in regards to CCEEP data collected on Vision Exams to be made public!
_____________________________________________________________________________
TO all Veterans PLEASE this Needs your attention if you are Operation Desert Storm or Anthrax vaccinated and experienced VISUAL Problems Please drop me an email at
DSNURSE@AOL>COM.
I am compiling to make a total picture that this is not isolated problem and we need help from the VA and from the researchers and to get the attention of opthalmologist and neuro-opthalmologist.
There is a RFA out there that researchers/doctors could write a letter of intent to get a project going in this regard and maybe get us some treatment to help with this one symptom.
------------------------------Example feed back I have received---------------------------------------------------
1. If so I have, diagnosed by Baumzweiger in 2000. Double Vision & Loss of peripheral vision.(rb)
2. I have been telling them that I have been having trouble with my eyes, It comes and goes sometime I can read fine and other time's I can't read or see for notta been having this problem for years and it is getting much worse. I have also lost my night vision big time.
The VA says its just old age. LoL(MR)
3. my husband was diagnosed with optic neuritis and was blind temorarily after receiving vaccinations for deployment to germany. his vision returned but not at the same acuity prior to the onset of the optic neuritis. he has not been to iraq. when he had to fill out paperwork regarding his health he was instructed by his readyness nco to not list the optic neuritis as a health problem so that the nco could avoid doing a lot of paperwork regarding the entry. (lb)
4.
I am a Gulf War Vet who has been diagnosed with MS and have also loss most of my vision. I have lost my privilege to drive. The VA has Service connected my MS but will not acknoledge any other symptoms.(mc)
5. I have vision problems, sometimes my vision seems like I'm looking underwater, blurred, focusing problems etc..... Seems the VA could care less.(TM)
6. I have read your email and I have eye problems inwhich I believe the Robert
Dole VA Medical Center here in Wichita, Kansas has been playing games with
me for the last eleven years. Now that they have reduce my benefits from 70%
to 50% and cannot find what is wrong with me, all of a sudden they are
paying attention to my sight every six months. I have been seeing a doctor
at Kansas University Medical Center for nerve problems and she said the VA
knew about this problem, but chooses to let someone outside the VA come up
with the diagnoses.(ML)
7. I have never had any vision problems and never wore glasses. After our unit have returned from the gulf war in 1991, my vision problems started. (JD)
8. Light sensitive since returning from the gulf. Visual distortions at night driving. Vision acuity changes frequently, sometimes it is fine and do not need glasses and then it is not.
I know CCEEP did detailed visual testing in Phase 2 but I dont see the compilation and details of what they found in 20,000 plus that went through it(MM)
-----------------------------------------Information that may help from the medical field--------------------------
Vision problems with gulf war vets with CFS needs to be investigated!
[Pathology of the organ of vision in chronic fatigue syndrome]
[Article in Russian]
218 patients were examined and the chronic fatigue syndrome (CFS) was diagnosed in them on the basis of clinical-and-immunologic data. 126 somatically healthy persons of the same age and sex were in the control group. Vascular pathology of the vision organ was found in 153 (70.2%) persons, and dystrophic pathology was found in 115 (52.8%) persons. A combination of vascular and dystrophic pathologies of the vision organ was diagnosed in 46 (21.1%) patients. The detection of vision pathology in the CFS patients essentially exceeded the morbidity of similar pathology in the controls. No reliable differences of refraction anomalies were found between the CFS patients and the controls.
PMID: 13678013 [PubMed - indexed for MEDLINE]
and this reference source
http://www.optometry.co.uk/files/31bf9ce890a566df38393231decff1a5_mort20000630.pdf
__________________________________
Sincerely,
Denise Nichols
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