I wanted to say thank you for all the wonderful responses to my first posting. What great words of encouragement I got from all of you. I feel like I've just...
Oh, Libby what an ANGEL! Congratulations and enjoy your new bundle. Glad to here that Mommy and baby are healthy! How is Leamon lovin' his new sister? ...
Hi Renee, I have twin boys one of whom has DS and for a while had Infantile Spasms also known as West Syndrome. The spasms only lasted for a few seconds but...
Hi, My name is Mary and I have a 7 year old boy named Collin who has DS. I am writing because the behavioral issues are getting very difficult. He is one who...
... so please fill me in on things you all are wanting to share with me . thank you very very much , it is really appreciated;)) ... I just remembered some...
thanks for sharing weep weep ,jackie mumto james 3 ds ... __________________________________ Do you Yahoo!? Yahoo! Search - Find what you’re looking for...
james has been on nutrivene for almost 2and a half yrs he went from 12 hsp stays always 14 days stays,with broncalitus pheomonia ect .we are currently...
It really cracks me up because Leamon stretches his little arms out as if to say "can I hold her?" and I say "do you wanna hold Mya?" he gives a little giggle...
I know what you mean. My oldest was 2yrs old when we had another baby. She held her and loved her up when we were in the hospital , but I' ll never forget the...
Hello Everyone, I haven't posted in a very long time so let me give you a little background info before I ask my question. I have a daughter who is 6 1/2 years...
Hi Mary and Welcome! My daughter Sarah is a wanderer! We put extra locks on the doors that I lock during the day, but what has really helped is we put the...
Hey Gina, I am Jena, Mama to Beth 19 with D.S. In the state where I live they have to find the money to give what your child needs. If I were you I would check...
We had to do the same. We put chain locks up high so my daughter can't reach them. ~:~Jena~:~ My Home Page My E-mail ... From: patchworkbasket@... To:...
Our son was in regular kindergarten for half a day (which is all regular kindergarten is here) and half a day in the sp-ed room. He did NOT have an aide....
Gina, I am not at this point yet, so I can not speak from experience, however, how can they use the $$ excuse, when the program they are offering you does not...
Hi Renee- My daughter had infantile spasms when she was a baby - it sounds like what you are describing. We treated it with Klonapin and Depakote (I used to...
Renee, Nicholas had seizures for 15 months. They were first diagnosed as Infantile spasms and then switched to myclonic epilepsy. He got them after his 3rd ...
I can imagine that Amy, I remember when Sofía had a tracheostomy, which is not very common to see. And if she coughed and secretions came out of it, it was...
I have to think back to the comment Martha Beck made in her book, "Expecting Adam", while she was pregnant and worried about looks and comments about the baby...
Andrea, I didn't know if I should laugh or cry--I have to admit that I laughed!!! :) I bet that put that lady in her place and you know what, I bet that she...
Amy, It made me laugh myself too... She had the tracheostomy done because she had acquired sublgottic stenosis, that is a narrowing in her airway, which...
Parents, I wanted to forward this to all of you parents whose children have Down Syndrome. A local girl is on the TV program Kingdom Hall. She attended St....
I WATCHED THE SHOW WED NIGHT AND LOVED IT! DUE TO MY NEWSLETTER FROM NATL DOWNS SYNDROME CONGRESS, I HAD AN ADVANCE NOTICE THAT IT WAS COMING. I ALSO GOT AND...
Andrea-- had acquired sublgottic stenosis, ... the site ... Does the skin tissue flap and make noise, kind of like croup? It sounds very simular to what my...
Hi Amy, it was not a soft or moving tissue, it was a scarring tissue growing inside the windpipe which then blocked the air passage . When she got it and...
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