From: Amelia Ten <msamelia10@...>
Subject: Re: [down_syndrome] Help for a student paper if you are so inclined:
To: down_syndrome@yahoogroups.com
Date: Friday, November 20, 2009, 9:43 PM

 

Hi Kiersten,

 

I will be more than happy to help your friend from two perspectives:  first as a professional in the field of developmental disabilities for 36 years and secondly as a parent of a young man with Down syndrome who turned 17 today! 

 

Caroline

---

From: Kiersten <kiersten5560@ yahoo.com>
To: downsyndrome downsyndrome <down_syndrome@ yahoogroups. com>
Cc: UpsNDowns UpsNDowns <upsndowns@yahoogrou ps.com>; children_with_ special_needs yahoogroups <children_with_ special_needs@ yahoogroups. com>
Sent: Mon, November 16, 2009 11:34:43 PM
Subject: [down_syndrome] Help for a student paper if you are so inclined:

 

Hello all.

I am cutting and pasting a request from a friend of mine, a young student. I am, of course, sending her some information but if you have any links, books, etc. to recommend to this student please forward to me privately and I will forward her your suggestions anonymously. Any contributions for this young person is appreciated. Thanks, Kiersten

Please keep the subject as "Help for a student paper" so that I will not delete it by mistake. Her request follows:

Hello,

Right now, I am taking a Psychology course for school and loving it! I have to write a paper for the end of the term and was planning on writing on how psychology has affected patients with Down Syndrome. (For example, how were these people treated in the past? How are they treated now? How has this helped and improved their life?) I was wondering if you know of any books or websites you could recommend? Thanks so much!

~Greta

P.S. my mom says hi and she misses Alden!!

From: Chris Mielke <bcmielke@...>
Subject: Re: [down_syndrome] Failed X-Ray for spine
To: down_syndrome@yahoogroups.com
Date: Wednesday, November 11, 2009, 2:07 PM

 

Tyler has gone every year or two since he was about 3. 

http://emedicine. medscape. com/article/ 1180354-overview

The above website was the most helpful of the 10 or so I went through.

You can look at the whole search here.

On Wed, Nov 11, 2009 at 3:02 PM, Kiersten <kiersten5560@ yahoo.com> wrote:

 

I am a little confused?  We had Alden cleared for this and I thought that was the end of it?  You mean it can happen later?  Did you post the websites that you found?  I need to know if this is something to have X-rayed on a regular basis because I thought once they were cleared, that was it!!!!  Advice??  Kiersten --- On Wed, 11/11/09, Chris Mielke <bcmielke@gmail. com> wrote: From: Chris Mielke <bcmielke@gmail. com> Subject: Re: [down_syndrome] Failed X-Ray for spine To: down_syndrome@ yahoogroups. com Date: Wednesday, November 11, 2009, 1:39 PM   I just found some web sites.  It doesn't sound as if there is any treatment or strengthening exercises that might work to help the situation.  It does sound like he may grow out of it just like he "grew" into it.  On Wed, Nov 11, 2009 at 2:29 PM, <MandMmom518@ aol.com> wrote:   Sounds like atlanto-axial instability. Look that up. My son was diagnosed with this years ago but the space between his vertebrae is getting better. Basically there is an extra space between the first and second vertebrae or where the spine connects to the head. They have to watch doing contact sports or anything that would jolt their head like diving, soccer. If you have any more questions just let me know. Sent from my BlackBerry® smartphone with Nextel Direct Connect From: Chris Mielke <bcmielke@gmail. com> Date: Wed, 11 Nov 2009 14:32:01 -0600 To: <down_syndrome@ yahoogroups. com> Subject: [down_syndrome] Failed X-Ray for spine   My son just failed his spinal X-ray.  My ex-wife is short on details as far as what this means other than he will need to go to an orthopedist.  He is age 9 and hasn't failed one before this year.  They have said he can continue in gym class and also his cheerleading activity since he only lifts people up and doesn't get lifted.  He does do somersaults though.  I would like to be a bit more educated, but can't seem to find a good website for information. Anyone else experience this type of issue. -- Chris -- Chris

--
Chris

From: Chris Mielke <bcmielke@...>
Subject: Re: [down_syndrome] Failed X-Ray for spine
To: down_syndrome@yahoogroups.com
Date: Wednesday, November 11, 2009, 1:39 PM

 

I just found some web sites.  It doesn't sound as if there is any treatment or strengthening exercises that might work to help the situation.  It does sound like he may grow out of it just like he "grew" into it. 

On Wed, Nov 11, 2009 at 2:29 PM, <MandMmom518@ aol.com> wrote:

 

Sounds like atlanto-axial instability. Look that up. My son was diagnosed with this years ago but the space between his vertebrae is getting better. Basically there is an extra space between the first and second vertebrae or where the spine connects to the head. They have to watch doing contact sports or anything that would jolt their head like diving, soccer. If you have any more questions just let me know.

Sent from my BlackBerry® smartphone with Nextel Direct Connect

---

From: Chris Mielke <bcmielke@gmail. com>

Date: Wed, 11 Nov 2009 14:32:01 -0600

To: <down_syndrome@ yahoogroups. com>

Subject: [down_syndrome] Failed X-Ray for spine

 

My son just failed his spinal X-ray.  My ex-wife is short on details as far as what this means other than he will need to go to an orthopedist.  He is age 9 and hasn't failed one before this year.  They have said he can continue in gym class and also his cheerleading activity since he only lifts people up and doesn't get lifted.  He does do somersaults though. 

I would like to be a bit more educated, but can't seem to find a good website for information.

Anyone else experience this type of issue.

--
Chris

--
Chris