Hello Everyone and I apologize for the delay in my response. I have been traveling and then had a few family issues that needed my attention. I recently...
Patfurlong@...
Feb 1, 2003 6:34 pm
3442
Well I'm not going to school and I'm not able to hold down a conventional job so voc rehab won't help. I've tried to get assistants from independent living...
I didn't call it quits after the first obstacle, but after trying for years to get assistants. Also, it seems to be easier for a 20 year old to get assistants...
Hello Again I am appalled by the disparity in the costs of medical care. For instance in Italy and Australia, the typical power chair, appropriate seating,...
Patfurlong@...
Feb 1, 2003 6:58 pm
3445
In a message dated 1/30/2003 8:02:37 AM Eastern Standard Time, Iluvmere@... writes: Hello Carol, I apologize, I had not reviewed all my mail prior to...
Patfurlong@...
Feb 1, 2003 7:13 pm
3446
You may have gotten this information in another email, but I moved to Tucson from Vermont. Its cold in Vermont even in the middle of summer. Despite some of...
Minutes of Thursday's DMD Pioneers Action Committee Chat are now available online. To view them, please visit http://www.dmdpioneers.org/moving.htm/100037 ......
I've set up a forum on the DMD Pioneers.org web site where people can submit suggestions for links to include in our "Resources/Links" page. Go to the...
I was just wondering if anyone here have their own weblog? Or if you know of any disability related ones? I started one at http://JeffSpace.blogspot.com ...
Ok, I'm still 200 posts late, lol:) I would like to think that those people who don't overlook the disability and just pass us by would think twice if they...
What do you mean about arousal? Do you mean piercing genitilia to stimulate it? LOL, very ouch at first and if it gets caught in the zipper? Remember...
Hi, I'm not an active member of this list because of time constraints, but I am a parent of a 15yr old son with Duchenne. I know some of us set down our...
GA & DF Robins
garobin@...
Feb 8, 2003 11:01 pm
3456
I have draft flyers for the Western Australian MD conference in May even though they are subject to changes at this stage. I would be happy to send them if...
GA & DF Robins
garobin@...
Feb 8, 2003 11:01 pm
3457
Oh come on, this is pathetic, LOL. Are we talking about penile erections? Or are we talking about corporals, hairy presidents named Willy, yellow submarines,...
It happens to me all the time at my "group living" home. Eventually we lose good help because they don't get paid enough. Sure it shouldn't be your problem,...
How about -10 F degrees in Minneapolis with a -30 wind chill. The all time record low was -50 F degrees surface temp with a -75 windchill. The lowest windchill...
Mark, were you ever on the telethon here in Des Moines? When Channel 8 used to broadcast it I remember a guy that lived in Minnesota but didn't know if you...
I was a poet for a brief period, some of my work was published in my college literary magazine. None of my poems deal with living with md as I've never let my...
LOL, good work! Speaking of Dell... "Steven" got arrested fo possesion of pot last night: http://www.msnbc.com/news/871028.asp?0cv=CB10 Dude, you're getting a...
Can someone send me instructions on how to register for the dmdpioneers group? My son, Jacob, wants to join this and any other groups you can tell us how to...
Its pretty straight forward. Says "join this group" in upper right margin of webpage. http://groups.yahoo.com/group/dmdpioneers/ Here's the MD-List ...
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