I just got home from the hospital and found out about Jim's passing. I'm soory for your loss, but at least he died peacefully. I hope I live that long. Eli...
I had the same problem. I take iron 2 times a day. I'm taking 325mg. They didn't tell me what caused mine either. They just told me my iron level was low. ...
Hey, Eric is having major problems with his bowells moving, you know the pushing! I had surgery and he didn't get his stool softners and now he is all backed...
Hey, Eric was taking Loratabs, 10;s and was on a fentanol patch. I probably spelled that wrong. they have raised the pain patch and now he very rairly...
Loratab 10's and fentanol pain patches!!!! The patches work wonders guys!!!I will get the correct spelling on here tomorrow... Holly ... From: Adele...
Holly, When and what type of surgery did you have? How r u doing? We have sort the same problem when we go away or just get too busy, Jason bowel routine...
Doesn't the patch have some nasty side effects? I had a friend that used it for awhile and it affected her tooth enamel and had other effects on her.Sherri...
Holly, don't wait. If Eric is impacted, it will take more than home remedies to get the bowel fully functioning. Jacob has been hospitalized twice for this....
Gapko, Andrea M.
gapkoam@...
Jun 2, 2009 5:57 pm
22992
Apparently my anemia is the result of having a below normal red blood cell count. Do any of you have the same problem? I donąt know if it is common among...
You could get a prescription for Go-Lytely from your son's doctor. It is a powder that comes in a gallon jug. You fill the entire jug with water, shake it up...
I am thinking of putting together a community website featuring wheelchair accessible things to do and places to go in New York City. I really want this to be...
Well, he went today, I gave him three stool softners last night and three this morning...It did the trick. The main reason I've worried is because I had...
Hey Adele, I had carpel tunnel on my right hand. the surgery....Eric didn't want any one else pooping him so he went with out and it cause a problem. All...
Holly, Jason is the same way, he doesn't want the aid to do too much, but there comes a point that the little bit that the home aide can do is going to be a...
He have "restless legs"? Jason complained of that and asked his clinic to Rx him the drug advertise on TV for restless leg syndrome. It seems to have helped....
I used to have lots of problems with my bowels until I started using the powdered form of Miralax (aka polyethylene glycol) 6 months ago. I just stir 2...
I have Fentanyl patches 100mcg every 72 hours. I used to have a stronger dosage, but I became unresponsive too many times. So be very careful with the...
Please help spread the "Fighting For The Community Choice Act" music video/photo mashup I made. of ADAPT protests for housing and the Community Choice Act....
Unresponsive means his central nervous system was too depressed from the narcotic for him to respond to people. He would seem "out of it" or unable to talk or...
Gapko, Andrea M.
gapkoam@...
Jun 6, 2009 2:41 am
23006
My son has been the same way lately. He is 24 with DMD. He has been using Miralax since 2003 and has been mixing it with prune juice for a few months now...
Is there anyone on this listserv who has a volume ventilator that you use noninvasively We're interested in photos or descriptions of your setup. Jacob has...
Gapko, Andrea M.
gapkoam@...
Jun 6, 2009 4:46 pm
23009
here s a few pictures of my sons set up any question feel free to cotact me my son has use this system for over 2 yrs ... From: Gapko, Andrea M....
Time for another roll call if you don't mind. Let's see who is out there! I am trying to locate as many men and boys with DMD as possible. I want names, ages,...
Name: Christopher Webb Age: 41 DOB: February 20, 1968 Location: New England Sinai Hospital and Rehabilitation Center in Stoughton, Massachusetts E-Mail...
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