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Messages 22627 - 22656 of 23689   Oldest  |  < Older  |  Newer >  |  Newest
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22627
Welcome Adele _____ From: dmdpioneers@yahoogroups.com [mailto:dmdpioneers@yahoogroups.com] On Behalf Of hotwheels7122 Sent: Tuesday, March 31, 2009 4:47 PM To:...
Adele
navymom2josh
Offline Send Email
Apr 1, 2009
12:40 pm
22628
Michael Keen wrote: "...I think it bothers me because I can't see whats going on. If only I had a mirrored ceiling and walls to boot; no I'm not being fresh!" ...
Alan A
ajadams99
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Apr 1, 2009
6:15 pm
22629
I have a feeling that this vent is a rebranded version of the Airox Legendair that I use. It is an amazing machine that I would recommend to anyone ­ it does...
Luke Melchior
hotwheelhunk
Offline Send Email
Apr 1, 2009
7:07 pm
22630
Duh, why didn't I think of that earlier? Thanks Big All! Michael Keen, Spirit Roller Ministries-Minister www.spiritrollerministries.org Office: 540-337-1540 ...
Michael Keen
mikebrollin
Offline Send Email
Apr 1, 2009
7:10 pm
22631
I just called my provider to ask for this new 540 vent. It'd be awesome to fit the vent in a backpack and not need a cumbersome vent tray like I have now. ...
Nick Dupree
nickscrusade
Offline Send Email
Apr 1, 2009
7:16 pm
22632
Hi. My name is Sandy, I just joined the group. I have a son who in 13yrs old, in the 7th grade, and has DMD. Lately he has been very anxious. He has been...
wolfen8495
Offline Send Email
Apr 2, 2009
1:00 pm
22633
Xanax works great! When Jason is off the meds for a few days, I really notice the difference. I do not see any other side effects from using the drug. Adele...
Adele
navymom2josh
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Apr 2, 2009
2:37 pm
22634
Dear Sandy, I am 28 years old with an unknown type of Muscular Dystrophy. Two years ago my chair tipped over while riding a public bus and I suffered a minor...
Jason Gallagher
overlandpark...
Online Now Send Email
Apr 2, 2009
3:35 pm
22635
Hi Jason.  I would like to like to try the relaxation techniques, so please forward them to me. Thanks Sandy ... From: Jason Gallagher...
sandbaggz@...
wolfen8495
Offline Send Email
Apr 2, 2009
4:08 pm
22636
In case someone could use these services, or know someone who could. I think it is cool what Walgreens is doing. ... --^--^--^--^--^--^--^--^--^--^--^ Jason...
Jason Gallagher
overlandpark...
Online Now Send Email
Apr 2, 2009
4:54 pm
22637
I will begin a trial on this machine April 14th....
Nick Dupree
nickscrusade
Offline Send Email
Apr 2, 2009
6:07 pm
22638
... Mike you really shouldn'thave to deal with nurses who refuse do do things the way you want them done. It's your body and your life and noone should tell...
hotwheels7122
Offline Send Email
Apr 2, 2009
8:42 pm
22639
thanks' Mitch Michael Keen, Spirit Roller Ministries-Minister www.spiritrollerministries.org Office: 540-337-1540 Home: 540-941-8696 Cell: 540-448-3824 ...
Michael Keen
mikebrollin
Offline Send Email
Apr 2, 2009
8:46 pm
22640
http://m33rak88.blogspot.com/2009/04/life-in-general.html Enjoy...
Kareem
m33rak
Offline Send Email
Apr 2, 2009
9:39 pm
22641
My son Ben (DMD, almost 18),has moderate to severe anxiety most of the time. He is on Hydroxizine(see below). Ben also has a lot of itching of his scalp,...
Becky
bygracenotby...
Offline Send Email
Apr 3, 2009
3:26 pm
22642
Yeah, I agree - massages help. Sometimes you don't need a professional, even just a little rubbing and light massaging with the fingers from a loved one will...
Jason Gallagher
overlandpark...
Online Now Send Email
Apr 3, 2009
3:38 pm
22643
Hi Sandy, Welcome to the group! I am 31, with DMD. I strongly agree with Jason. While I think that seeing a therapist may be helpful, I think that...
Josh Winheld
joshwinheld
Offline Send Email
Apr 3, 2009
3:51 pm
22644
Josh and Sandy, Great words of advise! I agree that being as independent as possible helps. I think that it helps you to feel more confident in yourself and...
Jason Gallagher
overlandpark...
Online Now Send Email
Apr 3, 2009
4:12 pm
22645
I'd just like to point out that medication is not such a bad thing. While I agree the decision to use medication for anxiety should not be taken lightly,...
Peter Gimbel
bigpeteystyles
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Apr 3, 2009
5:06 pm
22646
www.johnrsf.blogspot.com There is no cure for birth and death save to enjoy the interval. --George Santayana(1863-1952) My E-Mail: johnrsf@... My Blog:...
John Herrmann
johnrancho
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Apr 3, 2009
6:49 pm
22647
Thanks everyone for the input. I am going to have my son try the relaxation technique (he's willing to try anything to help ease his thoughts). I am also going...
wolfen8495
Offline Send Email
Apr 3, 2009
7:02 pm
22648
My son listens to music every night as he falls asleep and has been doing this for years (he's 31 with DMD). He uses a CD player or iPOD. Our younger son...
Gapko, Andrea M.
gapkoam@...
Send Email
Apr 3, 2009
8:10 pm
22649
Could you also forward to me at gapkoam@...? Andrea From: dmdpioneers@yahoogroups.com [mailto:dmdpioneers@yahoogroups.com] On Behalf Of...
Gapko, Andrea M.
gapkoam@...
Send Email
Apr 3, 2009
8:10 pm
22650
Hydroxizine is an antihistamine often used for itching. My son took it for atopic dermatitis and I took it for hives. I didn't know it was also for anxiety....
Gapko, Andrea M.
gapkoam@...
Send Email
Apr 3, 2009
8:10 pm
22651
Enter your vote today! A new poll has been created for the dmdpioneers group: how do you breath? o I use a ventilator part time via trach o I use a ventilator...
dmdpioneers@yahoogrou...
Send Email
Apr 3, 2009
8:27 pm
22652
Enter your vote today! A new poll has been created for the dmdpioneers group: have you had or do you have a romantic partner? o Had one o Had several o Have...
dmdpioneers@yahoogrou...
Send Email
Apr 3, 2009
8:51 pm
22653
... I am so sorry you think your life sucks :( You can have a fulfilling life if you believe you can. I have been the same place you are now so I know exactly...
hotwheels7122
Offline Send Email
Apr 3, 2009
9:00 pm
22654
Please get back to us with a firsthand review after you have tried it out for a couple weeks. -Alan ... [Non-text portions of this message have been removed]...
Alan A
ajadams99
Offline Send Email
Apr 3, 2009
9:40 pm
22655
Sandy, Since you are a little confused on whether your son should take meds for his anxiety, I thought I'd tell you my experience with anxiety and...
Ksmile96@...
ksmile96
Offline Send Email
Apr 3, 2009
10:58 pm
22656
I too am on anxiety med, Ativan and an antidepressant Paxil. I really don't like taking them but I can't cope with everything without them. I think that...
Michael Keen
mikebrollin
Offline Send Email
Apr 3, 2009
11:10 pm
Messages 22627 - 22656 of 23689   Oldest  |  < Older  |  Newer >  |  Newest
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