I tried to get on but never heard from them. Terri mom of Nathan 20, DMD, ADD Christian 11, DMD, ADHD Alex 16, DMD (3/29/91-4/2/07) DMD = Duchenne Muscular...
Terri, Anyone can join now. You might want to try again. ... -- Ronald Reagan - "Recession is when a neighbour loses his job. Depression is when you lose...
Hi Jessica, Thanks for the info. No wonder you're a good writer! I always enjoy your emails. Where did you earn a Latin degree? Our university dropped Latin...
Gapko, Andrea M.
gapkoam@...
Jul 1, 2008 6:12 pm
20953
Andrea, Thanks! I am actually writing most of these from my blackberry while I'm waiting on the sidelines at a conference this week! I studied Latin (and ...
Oh yah? Well, you know what I think of your little facetious outburst? I think you can take your broke, entitlement seeking, welfare-king ass and go scrounge...
As we all know the dmd gene was discovered more than 20 years ago. That was the beginning of the MDA saying that the cure is around the corner. I understand...
I got married. I figured why not. Until I was 35, I thought that marriage was not in the cards. By believing that, I almost missed the chance to spend the...
The truth is nobody can really pin point exactly how long we have to live. There is not a heck of a lot of data about prolonged survival and dmd'rs. Us...
DITTO Jim ... From: Jason Gallagher To: dmdpioneers@yahoogroups.com Sent: Monday, June 30, 2008 1:39 PM Subject: Re: [DMD Pioneers] Life Expectancy Dear...
Gay gorillas now you're talking! Why go so easy on me? Gorillas have small ones...I suppose the bananas will serve as some backup but they don't commit to any...
DMD Pioneers Mailing List Chats are held every Sunday at the time listed below. 3 to 5 PM Eastern 2 to 4 PM Central 1 to 3 PM Mountain 12 to 2 PM Pacific To...
dmdpioneers@yahoogrou...
Jul 1, 2008 9:02 pm
20961
How is it that you are so knowledgeable about phallic objects? ... -- Diogenes - "What I like to drink most is wine that belongs to others." [Non-text...
I think this was a VERY uncalled for response to Dorian's message! For one thing, you need to lighten up Jason! It was just a humorous message, that I think...
Those of you who use External Catheters, do you use any skin barriers ointment or skin protectants? I'm having problems with soreness & redness on the end of...
http://www.scottsandsalive.com To receive SCOTT SANDS ALIVE blog updates by e-mail, simply follow this link: http://www.scottsandsalive.com/?page_id=49 ...
cody, hope you don't mind me saying something about this. Eric uses the bio derm and we have to put air in the bag to keep from having suction on the...
Hey, Eric got his new low air loss mattress and also a new arm rest with sides on it to hold his arm on when he reclines. Mda did cover these things, I think...
Is it the tops of his feet that hurt? I find putting a large round object (in my case, a plush toy or a bolster propped in place with a small bag containing a...
My son uses two omniflex that are 8 to 10 inches in length on his vent tubing. The company we now use for supplies say they are unable to get the ones he...
Dear Jay, I was very disappointed to read your reaction to my posts concerning the life expectancy topic. I was extremely hurt by your accusation that I ...
I would speak to the manager of the company, and make it THEIR problem. ("If you don't supply the right tubing, or a suitable replacement, by X date, we will...
Dear Jason! I think this whole thing was just a huge misunderstanding! I don't want to fight with you at all! If you will still talk to me, please im me...
I had saved an old email with call button information but most of the links no longer work so I would like to ask for current information on what type of call...
A salute to a Md. athlete http://www.baltimoresun.com/news/local/howard/bal-te.md.ho.mcfadden30jun30,0,7385120.story?track=rss U.S. Paralympics racer is...
Whoa! chill out bud. He was joking. You can't deny that DMD guys don't have "normal" lives, sexually or otherwise, even if they marry or get 25 degrees. And I...
Der Jay, Yes, I agree it was a miscommunication; however, I would suggest that next time you consider the source and re-read the original messages before you ...
Sadly two young (under 30) swedish men passed away just last month, and eventhough i didnt know them (had only spoken to the mother of one of them) it still...
Hello, This is sad. May I ask, who is your friend, and in what context you are writing this message. I do not see which message you are replying to, and I am...
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