DMD Pioneers Mailing List Chats are held every Sunday at the time listed below. 3 to 5 PM Eastern 2 to 4 PM Central 1 to 3 PM Mountain 12 to 2 PM Pacific To...
dmdpioneers@yahoogrou...
Jun 1, 2008 8:26 pm
20700
I ask because I recently got a new lift and sling. I'm not very pleased with the sling design though. It's not *radically* different from my old sling, but...
First off, I'm sorry to hear that you didn't get the kind of sling you were hoping for. I hate the idea of ANYONE being in an unsafe situation. However, it...
Hey, First, we use home made slings. We do have what's called a "U" sling that is used to transfer to the commode chair, only. Can you find the type of...
Tell your provider that the sling they sent doesn't work for you if you haven't already. There should be no problem for them to take it back get you what you...
Hi Andy. I am not on a vent yet but have had problems clearing secretions. I use mucinex once a day to loosen secretions. When I feel a problem brewing I take...
I am 24 years old and have dmd as well. I am not on a vent and have lived a nice life. I am a lucky one. I attribute my "luck" to the outlook my mom instilled...
This is a oral/nasal mask that sounds like a possible solution. My son has a similar one from Resmed, but it comes only in two sizes, too large and too...
Gapko, Andrea M.
gapkoam@...
Jun 3, 2008 6:47 pm
20707
I think we spend too much time focusing on semantics. I simply tell people to call me Jim. My name represents my entire humanity. I have never been offended...
Is there a web site that has a description and pictures of the cough device. Everybody I know who has that device has benefited greatly. I want to know more...
I'm handi-capable! Lol. Really, this has to be the worst term to use. It just sounds stupid. Differently abled is stupid too. ... [Non-text portions of this...
Hey Brian, I agree with you. Handi-capable is a rediculous word, as is differently abled. Disabled is preferable to me. I have no trouble being referred to as...
How about "Wheel Empowered"! No. Or how about "One who is perceived as deaf or slow by older people or waitresses" or Owipadosbopow for short. Common phrases:...
Jim, You are right that at this point we are arguing semantics, and (as others have pointed out) are almost being silly. The best way to refer to anyone is by...
Evan, I believe firmly that one's outlook and attitude about life is an important factor in our individual health and longevity. A positive attitude and ...
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Gimp or crip works for me...lol ... From: Brian Petrie <brianpetr@...> To: dmdpioneers@yahoogroups.com Sent: Tuesday, June 3, 2008 4:29:26 PM Subject:...
We are preparing for a trip to the Rock and Roll Hall of Fame and taking Ryan to an Iron Maiden concert next week. What is the correct method of getting...
Melinda, We find it works better if I walk first - I'm LOUDER, and also at people's ear-level. That way, I can sort of clear a path for Pete, and he doesn't ...
I use, "hey you" Works great in my house and out side. You can't imagine how many people respond to that one. Adele _____ From: dmdpioneers@yahoogroups.com...
This has always been a problem. Jason is too polite, he'll just sit and wait for the people to move. I'm not! If we are walking together, I walk "the point"...
If they can't hear me say anything, I do hit them slightly It's the only thing you could do if your on your own like going through crowded areas. You cant be...
Melinda, Ryan is in for a real treat. Iron Maiden ALWAYS put on a GREAT show. I'll be seeing them on June 20th for the fourth time. I had the fortune of...
I go to concerts pretty frequently so I have a lot of experience dealing with hordes of concert goers. A crowd can be bad...but a crowd at a concert is the...
I get asked that constantly, because I'm 32 and didn't really start using niv during the day until I was 30. However, my biopsy and genetic tests both support...
This can be very frustrating going to concerts and sporting events and having to deal with the crowds! People are always walking in front of me, or walking...
I just got a brand new Permobil wheelchair. The thing is cool. It tilts and elevates. It's not drivable yet because they don't have the mini-joystick...
When I was about 12 or 13, in middle school, this really got on my nerves. I finally got so fed up with the people in the halls that I began to act out. I...
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