Sherri, what doctors are trying to do is to prevent or at least delay the onset of cardiomyopathy. If your son is 17 and aside from the low weight, isn't...
Hello, Andrea, I too am a believer in heart meds. They have been very effective for me. I am very interested in purchasing your son's cd. I enjoy the web...
What do you base your opinion on? Dr. Bach has over 15 years of statistics that prove his approach is a successful choice to a trach. He has helped scores of...
Sherri, at 6 feet, that way too thin. My son will not drink plain milk, but if it chocolate milk, he'll drink it. Adele _____ From: dmdpioneers@yahoogroups.com...
Kimi. I'm positive that Eric would not had lived as long as his did without a trach. Dr Bach believes that if you follow his regiment, basically as soon as...
Well said Andrea. Corey your entitled to your opinion but you are being ignorant by judging Dr. Bach when you have never met the man. I don't accept all of...
I just happened to look in the spam folder for our group and noticed there were eight messages which were all legitimate but somehow flagged incorrectly. I...
Adele- I'm surprised that Jason doesn't use any kind of ventilation at all... is he using bi-pap at night, or anything? -Jessica [Non-text portions of this...
SKYDIVING!! I would do it in a heartbeat! How likely is that kind of experience to materialize for someone in our rather well kept shoes? Anyone interested in...
We met a guy here in San Diego that went skydiving. He is trached and on a vent. He use to be a wrestling coach in Escondido, CA a few years ago. I don't...
On Jason last visit to the pulminologist, his lung functions are still good. He uses nothing, even at night. We do have a cough assist and a nebulizer which...
Hey, Dorian. I'm in Florida as well, but I don't think I'd be interested in skydiving even if I wasn't disabled. I like life too much. ;-) As to it's...
I am not disabled, and am not interested in skydiving. I am equally disinterested in having my husband, with DMD skydive, though if it was something he REALLY...
DMD Pioneers Mailing List Chats are held every Sunday at the time listed below. 3 to 5 PM Eastern 2 to 4 PM Central 1 to 3 PM Mountain 12 to 2 PM Pacific To...
dmdpioneers@yahoogrou...
Apr 1, 2008 8:12 pm
20137
Hi Jim, I can mail you Josef's CD if you'd like to send me a check for $17. That will cover shipping and sales tax. You can mail it to: Andrea Gapko 914...
Gapko, Andrea M.
gapkoam@...
Apr 1, 2008 9:56 pm
20138
Nathan is around that height and last weight (he hasn't been weighed in a while) was 82 pounds. Terri mom of Nathan 20, DMD, ADD Christian 11, DMD, ADHD Alex...
Aaron's PT said that if he puts on too much weight it will hamper his movement. He can still adjust and get comfortable in his chair and has good trunk...
It's happening on MD-List as well lately. For some reason 2 members are being marked as spam and nobody else yet. I can't imagine what is triggering the...
Hi Adele, I used nothing, even at night, until I was 24. I happened to be struggling with my nutrition, though, which eventually brought down my lung function...
Thanks for the insight Josh. Right now, His biggest problem it maybe too much nutrition. He's been gaining a little too much weight these past 5-6 months....
Is there anyone on this list who can recommend a place from which to rent a wheelchair accessible van or mini van in the Phoenix, Arizona area? I found several...
Gapko, Andrea M.
gapkoam@...
Apr 5, 2008 12:14 am
20146
Andrea-- There are several people on this list who are actually in Phoenix, who may be able to offer better advice, but Pete & I usually use Wheelchair...
Hi all, my son corey16 and i have just gotten back from a week stay at westmead childrens hospital to find out that they say its in coreys best interest to get...
What is his degree of scoliosis? Does he have a "C" or "S" curve? Are they proposing doing the back and feet at the same time? Our older son had just the...
Gapko, Andrea M.
gapkoam@...
Apr 7, 2008 1:24 am
20149
Hi Andrea its a 45 degree C curve, and there doing the ops seperatly the
feet are getting done on the 26 august but the back has to get done before
that...
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