i am making plans to lose my virginity but i am worried if my stiffness in my hips may affect sex i can lay in spread position but my legs have to be supported...
DMD Pioneers Mailing List Chats are held every Sunday at the time listed below. 3 to 5 PM Eastern 2 to 4 PM Central 1 to 3 PM Mountain 12 to 2 PM Pacific To...
dmdpioneers@yahoogrou...
Nov 1, 2007 2:57 pm
19105
Nick, The only advice I can think of would be to discuss your concerns with whomever you will be being intimate with. I am sure that there is a way for you to...
Well, if whoever you're with is able bodied, they can position you and do the erm... more vigorous stuff you're unable to do. It should be easy once you get...
sideways actually, or think Karma Sutra positions :) like this, http://users.forthnet.gr/ath/nektar/kma/main.htm or search google ... -- Take care, Cody...
Nick, I would agree with Luke. As someone with experience, I'd advise that it's best if you have a partner who is strong enough to hold themselves, and ...
Having had experience with a third person helper, I strongly suggest that it is someone you can trust completely. Without getting into details, this is part...
Hi Andrea, im sorry that is not my father. My dad is a psychologist in Placerville, Ca. my brother and I joke all the time that he's not a real doctor, just a...
Hi Kyle, Some of my best friends are psychologists! It's a good field to be in. I hope you find a career path this you're happy with. My eldest son is on...
Gapko, Andrea M.
gapkoam@...
Nov 1, 2007 9:22 pm
19112
Nick- If you'd like, I'd be glad to pass your query along to the support group for women who have husbands / partners with DMD. We may have some ideas for you,...
Hi, I am Evan and I am 23 and live in North Carolina. I recently graduated college with a degree in Political Science. I use BiPap at night and sometimes...
Hi All, Andrew's message below reminded me about letting you all know about my son's CD. As many of you know, Josef died last summer at age 22 from DMD and...
Gapko, Andrea M.
gapkoam@...
Nov 2, 2007 8:41 pm
19115
Hi Jessica. My name is Chris. I have the same issue/desire regarding my virginity as Nick does. I just don't know where to turn or how to go about it. If you...
Chris-- It sounds like your issue is a bit different from Nick's -- Nick is in the UK, and it sounds like he has arranged for an escort to lose his virginity...
Hi I'm the mother to Eric he is 23 now, he doesn't use any thing but a c pap at night. Still have not addresses the issue with the c pap with the doctor....
Nick, There are many positions one can use for intimacy. Look them up and kama sutra is a great way to start. Here are some sites I've found helpful: ...
The links in the () work rather than the others. Dunno why that happens, but yahoo adds _ to the beginning and end of the links. Kimi }i{ Visit my myspace...
hi, i am Scott's mom SCOTT GROBELS DMD / age 27 NEW JERSEY __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail...
Hello Everyone, I need your help. Do you know of any individuals with Duchenne muscular dystrophy who applied for Social Security Disability benefits or...
Patfurlong@...
Nov 5, 2007 4:29 pm
19124
Pat, Although its been several years, both Josef (in 2001) and Jacob (in 1995) received SSI quickly. I believe Jacob's was the quickest--he turned 18 in...
Gapko, Andrea M.
gapkoam@...
Nov 5, 2007 9:18 pm
19125
Sorry, folks, I just sent a response to this topic without changing the Subject line from "roll Call" to SSI Andrea Gapko, Director Educational Support...
Gapko, Andrea M.
gapkoam@...
Nov 5, 2007 9:20 pm
19126
Hi "Scott's mom," I'm Kimi from PA and I vaguely remember the name "Grobels" at MDA Summer Camp in Worcester PA. Seeing you are in NJ I'm assuming your son is...
Pat, Here in Maryland, As soon as Jason turned 18, I was able to get him on SSI in about 6 weeks. Getting it any younger than 18, means that the families’...
Andrea, I also have heard that DMD is just one of those conditions with automatically qualify you for SSI. Adele _____ From: dmdpioneers@yahoogroups.com...
Yes, there are many conditions which, I think, automatically apply. I don't understand where those with DMD are having difficulty. The SSDI would be more...
Gapko, Andrea M.
gapkoam@...
Nov 6, 2007 10:13 pm
19130
Hi to all: My name is Michelle, I am Dustin's Mom. He is 16 with DMD. We live in Newport News, Virginia. He uses bi-pap at night and still loves playstation...
I think that a lot of this (even though it shouldn't) depends on the state. It took me 3 years to get Nathan approved and even still (and after going to court)...
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