DMD Pioneers Mailing List Chats are held every Sunday at the time listed below. 3 to 5 PM Eastern 2 to 4 PM Central 1 to 3 PM Mountain 12 to 2 PM Pacific To...
dmdpioneers@yahoogrou...
Oct 1, 2007 2:25 pm
19040
I'm not sure about the rules here but I'll just introduce myself. I am Evan, I am 23 years old and have Duchenne Muscular Dystrophy. My father died when I was...
Hi Evan, Welcome to the list; it is great to meet you. I also have a degree in Political Science. Where should you go next? What should you do? It sounds...
Check out this website www.4wheelcity.com I'ts not about off-roading, but it's about disability awareness,etc. There is no cure for birth and death save to...
Hi Evan, Good to meet you as well. My degree is in public policy, but my husband (who has DMD) has his undergraduate in comparative literature (he's in the ...
With one stroke of his veto pen, President Bush lashed out today at the youngest among us. Well, we’re going to fight back – and we need your help to do...
Evan, Great to meet you and welcome to the group! I live in Missoula Montana with Dustin (has DMD) and his significant other Theresa. I'm also enrolled at the...
http://nodakwheeler.blogspot.com/ ... Shape Yahoo! in your own image. Join our Network Research Panel today! [Non-text portions of this message have been...
I have a Permobil Street. -Jacob ... ____________________________________________________________________________________ Fussy? Opinionated? Impossible to...
Mark, I think what you have accomplished is just awsome. My son never gets out and does much of any thing. But any way, Way to Go!!! Holly Mom to Eric 23 ...
Holly, Has Eric expressed interest in going to school, etc. -- is it just an issue of not having resources to do those things? Because maybe some people on...
Thanks alot Holly! Mark hhjgreene@... wrote: Mark, I think what you have accomplished is just awsome. My son never gets out and does much of any thing....
Hi DMD Pioneers, On January 13, 2008, I'm going to be running the Houston half-marathon, to benefit the Muscular Dystrophy Association. Some of you already...
I have an unopened case of 50 Kendall 12fr suction catheters which I no longer need. Could any one use them? I will send them to you. Peace, John Herrmann ...
Check out my new blog post www.johnrsf.blogspot.com There is no cure for birth and death save to enjoy the interval. --George Santayana(1863-1952) My E-Mail:...
Enter your vote today! A new poll has been created for the dmdpioneers group: have you been masturbated by paid carers/sex toy /both o yes o no o sextoy o...
dmdpioneers@yahoogrou...
Oct 9, 2007 11:38 am
19056
Do any of you play video games? I play PC games because I cannot work the console controllers. I have begun to abandon first-person shooter games because of...
I try some games. Have u tried Runescape? its an online MMORPG. I use a touchpad to move using left hand and a regular mouse to click with my right using a...
Nathan has problems playing computer games because he doesn't use the keyboard, but I have found that some CAN be played with the onscreen keyboard. Alex had...
Terri. Nathan's problem with playing computer games is because he can move the mouse? There is one thing to try, though it isn't a fast as a mouse, it's a...
Jason, age 22, still plays console games. When PS3 came out, e got his. It's nice, the controllers are just like the ones with the PS2, but wireless. They're...
I know allot of you take Probiotics, but what brand and form do you take? Besides the yogurt variety..... Sorry, DMD guys only apply to this thread... -- ...
I over edited. Nathan can't play games that require the keyboard because he can't lift his arms up and use the keyboard but can use the mouse so he uses...
It's really odd what things he can do and what things he can't do with his hands and arms. He can reach down beside his chair to push or pull the lever to tilt...
Terri, I don't know how to answer your question. All I can say is that it is important that you have some type of emergency plan, because, as you know, ...
I know what you mean. The sad thing is that this isn't the first time I have provided something for their safety that they (especially Nathan) considers too...
Gosh I missed half of your email. Nathan just says he isnt interested in using the pc for games and he just perfers the onscreen. He has a very good headset...
Dear Teri, I am really sorry to hear how much Nathan (and Chris following) doesn't want to follow your suggestions, even when it would make him more safe or...
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