DMD Pioneers Mailing List Chats are held every Sunday at the time listed below. 3 to 5 PM Eastern 2 to 4 PM Central 1 to 3 PM Mountain 12 to 2 PM Pacific To...
dmdpioneers@yahoogrou...
Jul 1, 2007 2:22 pm
18555
What types of ventilators do you all use and how long do your batteries last in your wheelchairs when you are on battery power only? My son uses the T-Bird...
Hi all, I received word Friday that Medicaid approved me get an LTV to go with my new powerchair. I'm very happy to be losing the 40 pound behemoth thts been...
I bought a new Toshiba laptop this weekend and I stumbled across something that really took me by a huge surprise. The new Vista windows based operating...
Kathy-- Pete isn't on a ventilator full-time, but just as a note-- you can be registered with your power company so that they know to turn your power on first...
Hi Rob, We are getting a few dates in order for our trip to Australia. Here's where we'll be the first few days: July 24 - 26 at some hotel or...
Gapko, Andrea M.
gapkoam@...
Jul 2, 2007 10:27 pm
18563
Not sure how much of this everyone understood, but this PTC124 only works on people who have what's called a "premature stop codon" Of which, only about 15%...
Sounds like a great trip. Too bad we can't go with you. Adele _____ From: dmdpioneers@yahoogroups.com [mailto:dmdpioneers@yahoogroups.com] On Behalf Of Gapko,...
Hi Adele, Are you going to the Parent Project MD conference next week in Philadelphia? Andrea Andrea Gapko, Director, Educational Support Services and Academic...
Gapko, Andrea M.
gapkoam@...
Jul 3, 2007 6:09 pm
18566
Yes, both Jason and I will be there. Jason is a Panel speaker. Are you coming? Adele _____ From: dmdpioneers@yahoogroups.com...
No, with the trip to Australia coming up, I need the weekend to get ready. We would like to be there because of Josef's CD (I think they will be selling them...
Gapko, Andrea M.
gapkoam@...
Jul 3, 2007 7:43 pm
18568
I'll look for Josef's CD. I'll post all that I can about the latest and greatest. Have fun. I have always wanted to go to Australia, even since I was a ...
Rob Hooper, In case my note to you went into Junk Mail, I'm writing via the dmdpioneers group. If you can send me privately your telephone number, I will...
Gapko, Andrea M.
gapkoam@...
Jul 4, 2007 1:52 am
18570
Shouldn't be a problem... ... -- Take care, Cody Namesnik $B!|(B codemann@... $B!|(B MSN: codemann@... $B!|(B Yahoo: mejestick $B!|(B "Ability...
http://nodakwheeler.blogspot.com/ ... No need to miss a message. Get email on-the-go with Yahoo! Mail for Mobile. Get started. [Non-text portions of this...
Use Your Tongue To Control Wheelchair, Mouse By Dave Reynolds, Inclusion Daily Express July 2, 2007 BEACHWOOD, OHIO--A device expected to hit the market before...
I had a quick cardiac question. My husband, Pete, has not had cardiac difficulty previously, but he did have a reduced shortening / ejection fraction reported...
I think blood pressure may be something to watch, Ace inhibitors and Beta blockers can lower blood pressure, which might be noteworthy if he already has a...
Jess, How old is Pete? An ACE inhibitor and a beta blocker are "normal" for someone with DMD. My son is 29 and he's on 5 mg of lisinopril and 200 mg Toprol...
Gapko, Andrea M.
gapkoam@...
Jul 6, 2007 9:12 pm
18577
Thanks Cody! ... -- ************************* Jessica Resnick-Ault jrault@... or jra@... [Non-text portions of this message have been...
The only thing to keep in mind is that each and every one of us is different and the same drug will effect each one of us differently. Pete should take the Rx...
Since this discussion is about me, I figure I might as well join in. Has anyone seen the research on losartan, which apparently is showing some promise as a...
After watching the live earth concert and checking out the website www.liveearth.org I want to do something about mother earth and here are some tips. Compact...
Today I turned 39. Another milestone in my life. Yet again I have kicked DMD squarely in the ass (excuse my French). Next year I join the 40+ club. John There...
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