Sandy-- The people who post on this board are a mix of men with Duchenne muscular dystrophy, parents, and spouses/significant others. I'm not sure if that's ...
I'd say many of the DMD guys contributing here are young adults, we range in ages from the occasional teen to guys who are approaching 50. I *think* most of...
... I'm all about it. Sign me up. I agree with what Hawking said, btw. If humanity is to survive in the long term, we have to venture into space. Relative to...
Welcome to the group Sandy. I'm Alan, 40 with DMD on the mild end of the spectrum, and use noninvasive ventilation. If your son would like to chat live with...
DMD Pioneers Mailing List Chats are held every Sunday at the time listed below. 3 to 5 PM Eastern 2 to 4 PM Central 1 to 3 PM Mountain 12 to 2 PM Pacific To...
dmdpioneers@yahoogrou...
May 1, 2007 4:05 pm
18278
Hi Sandy, My husband Todd has a trach and uses his vent 24 hours a day, he is 30. The trach has not prevented him from talking or eating. He has trouble...
I son likes talking up a storm about Halo 2 and other video games, would this be a good place for him to talk up a storm about video games which isn't the...
Sandra, If non-invasive ventilation is of interest to Bobby, I would recommend contacting Dr. Bach and seeing if you could find an NIV specialist near you, if...
You sure have a nice group here. Thank you Molly for telling me all of this. This will help us to know this if he ever has to have one. To answer the questions...
I use an LTV 950 Vent full time and my insurance just bought me a carrying case with two lithium (sp.) batteries. I would highly recommend it for anyone that...
I'm looking to purchase a shampoo tray so I can wash my hair while laying flat in bed . Do any of you use a tray like this and is there a web site you got it...
Check out these, http://www.jansenmedical.net/Shampoo-Showers-Bathtubs-c-495.html I've ordered from here before. I've bought 3 in 6yrs, the hard plastic...
Hi Mark, I use the EZ-Shampoo inflatable shampoo basin. I bought mine at a pharmacy, but you can also buy it on many web sites. John H. Mark Boatman...
I used to use the inflatable ones, they don't drain well.. The round ones hose collapses, and ez shampoo one hose is smaller & drains slow. But I prefer...
Todd uses an inflatable one. If you push down on the bed under the drain then the water will drain out. It works pretty good. Molly ... round ones ... But I...
Sandy-- To answer your final question: in terms of stages of progress, I get the sense that this varies greatly from person to person. My husband Pete, for ...
It drains ok. Sometimes it has to be pushed down on one side to drain,but other times it drains just fine. I find it very comfortable for my head and neck John...
Donna, Do you still have the vent case? If so, where are you located? Andrea Gapko, Director, Educational Support Services and Academic Skills Center Vice...
Gapko, Andrea M.
gapkoam@...
May 4, 2007 6:32 pm
18292
Andrea I'm sorry someone else already contacted me about the case. Medicaid bought my new one for me. Does your son have medicaid? Donna ... ...
For those of you who use a Hoyer lift for transfers-- have you found a comfortable one? What kind do you use? (Web links greatly appreciated)... Pete currently...
Note: forwarded message attached. There is no cure for birth and death save to enjoy the interval. --George Santayana(1863-1952) [Non-text portions of this...
We use a Invacare Reliant hoyer. It's a great lift and it's compatible with different sling confirmations. It's not portable but we have an older lift which...
I just want to say to the parents who have lost their sons to DMD. My Heartfelt Sympathies go out to you and your families. I can't imagine how difficult it...
Kimi, I want to tell you how sad I was to hear about Eric! He was a wonderful person, and he will be truly missed! You were the most amazing person for Eric!...
I guess this is really not specific to DMD, but.... My son Ryan is 20 and a few months ago he had a lump under his arm. I took him to the doctor, he said it...
If this isn't healing up, then yes, wounds care doctor. You can't afford for an infection to set in. It's affecting his quality of life and could effect the...
Thank you Jay. That was so nice to hear. Thanks to everyone else for your condolences. I hope Eric knew how much I loved him. He was the best thing that...
His primary doc should refer him to a wound care specialist, MDA doctors wont treat it, they just refer you to another doctor.. Yes, demand his doctor to...
Hi melinda, I don't know if this info would benefit any but thought I would share, a few months ago I also had a small lump under my left armpit but it wasn't...
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