Terri and all, This is just unbelievable. I am shocked that what seemed such a successful surgery at first could have led to this. At least, Alex has been...
DMD Pioneers Mailing List Chats are held every Sunday at the time listed below. 3 to 5 PM Eastern 2 to 4 PM Central 1 to 3 PM Mountain 12 to 2 PM Pacific To...
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Feb 1, 2006 3:43 pm
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Hi Jeff, My son is lifted out of his bed with a hoist, every morining we do that routine. It is quick and easy. If you have a hoist. Holly Mom to eric 21 ...
That is just awful! John Herrmann <johnrsf@...> wrote: Joe will be missed. He had a real fighting spirit and was a true DMD pioneer. I will miss our...
I agree, I always wanted a intercom like Star Trek Next Generation, that clips on shirt, acting as a button, and mic/speaker, could use blue-tooth technology. ...
My kids were here yesterday, but had to come by car. It was hard on Nathan because the Teacher of Record of his school decided to bring a w/c from school...
Hi Terri, This must be a very difficult time for you. It saddens me that Alex is not doing well. He's so young. Alex is is in my heart and I will be praying...
Hi everyone, We just got home today from the hospital. Todd came home on the 20th from the first stay but we went back on the 22nd because his heart rate...
I get it removed almost every evening. Then when I think I need it I take a suppository. But a suppository takes hours for me. I like (well like is a strong...
I spoke with Terri this morning (2/2/2006) Alex is still with us. They have taken him off of the nitrous which was given because of his ARDS. They have also...
Dear Adele, Thanks so much for the update. I am so glad to hear that Alex is still alive. Let's all keep sending positive wishes, prayers, magic spells, the ...
I take 17g of Miralax before bed. I also take it in the morning if needed. That happens once every 3 months. I skip a whole day if I go too often. I also...
Nice to hear good news. Adele _____ From: dmdpioneers@yahoogroups.com [mailto:dmdpioneers@yahoogroups.com] On Behalf Of tacman132 (Tim) Sent: Thursday,...
I just go on the toilet using a hoyer lift. By the grace of God, I do not need a specific bowel routine. In Him Forever, Andrew ... Todd chose to get an...
I got a colostomy about 10 years ago. It makes things a lot easier for me. John Herrmann Molly <mollygalli@...> wrote: Todd chose to get an illiostomy...
Hi Molly, Glad to hear that Todd is home. Its good to hear some good news. John Herrmann Molly <mollygalli@...> wrote: Hi everyone, We just got home...
Sure isn't pleasant, but heck, much better than ending up in the hospital! That's the way I think about it! ... [Non-text portions of this message have been...
Hey Nick, I wish I knew what happened. I tried to call his roommates, but the phone is disconnected. John Herrmann Nick Dupree <nickdupree@...> wrote: ...
We came very close one time to taking Peter to the ER for a bowel obstruction. After 4 doses of Miralax finally kicked in we were relieved that we didn't have...
Hi Everyone... I just wanted to introduce myself. I'm Christina Sosa, I live in Tempe, AZ . I currently attend Arizona State University and studying Human and...
Yes, We've been having problems for the past 3 months. I have resorted to the manual extraction method myself. WE just started the Mirilax routine. Adele ...
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