DMD Pioneers Mailing List Chats are held every Sunday at the time listed below. 3 to 5 PM Eastern 2 to 4 PM Central 1 to 3 PM Mountain 12 to 2 PM Pacific To...
dmdpioneers@yahoogrou...
Dec 1, 2005 12:25 pm
14698
Living with DMD is a chat for adults with DMD and others affected by the disease. Discussions will focus on how to live a fulfilling and healthy life with...
dmdpioneers@yahoogrou...
Dec 1, 2005 12:25 pm
14699
I was good to have a champion in life like Mark. He is gone to a higher place but his spirit is still with us. We need more people like him who are pioneers...
Mark was one of the first people I encountered when I first joined MD-List and eventually DMD Pioneers. I remember visiting his website, what was it he called...
My blog has been updated. You may need to refresh your browser to see the update. http://nodakwheeler.blogspot.com Take care, Mark ... Yahoo! Music Unlimited...
I was 14 when my brother died, two weeks before his 18th birthday. Quite unexpectedly, though he had had breathing issues when having respiratory infections....
It's tough to know how to help when this happens. My son's have known a few but none from school. They knew a few from camp who died. Sometimes I think they ...
I suspect that they tried it on animals just incase it emmmmmm "hugged" too tightly(????) Would it sound bad if I wonder how many fried chicken dinners they ...
Chickens are common pets in some areas of the world. This device is supposed to simulate petting your pet. :) So, yeah, it's weird, but probably a little less...
I have BC/BS and we never had that problem. We found they pay for most things we order with no waiting. Is yours PPO, that's what my plan is. I get the...
do you use you 500 allowance from MDA for repairs its there you know if you havent used it all up just a thought [Non-text portions of this message have been...
Hi Beth, I'm an infrequent visitor to the site but read the emails as often as I can. I noted that you are to the point of making a decision for your son as...
Thanks for sharing that info. I was very saddened again as there has been other losses as well to the group this year. Mark will be greatly missed. He has...
Matt, thanks for sharing your news story. That is amazing!!!! Seeing you in that video really brings it home. I didn't have the appreciation of it all...
Wow! That is amazing (don't know how I missed it before!) but your father also gives me the encouragement to help my son (Nathan) with HIS "impossible" dream. ...
question-what does MDA have that you are letting people use that have no insurance at all. Someone told me that someone is getting money from MDA to help...
I was found not breathing when I was 18. Woke up in Icu. Dr. gave me decision to have ventilator or go off and stop breathing. Obviously I chose life. So...
Tim, do you take antibiotics 7 days every month, month after month? If so I'm curious as to why??? ... [Non-text portions of this message have been removed]...
actually back Today. This shouldn't be the only consideration, but in Wisconsin anyway a person with a trach allow more nursing care. Some cannot get any if...
Yes I do become the trach is plastic and bacteria love wet plastic. When secretions are yellow alot and much infection. I didn't right away. But eventually...
Hi Melinda, I am a carrier and when I went to have some surgery done a year ago I had an EKG and chest x-ray done. The doctor's office called me and said the...
What I was referring to was money that MDA will pay each year for medical equipment repair. It's $500 a year. Then there is also a $2,000 allowance for the...
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