Living with DMD is a chat for adults with DMD and others affected by the disease. Discussions will focus on how to live a fulfilling and healthy life with...
dmdpioneers@yahoogrou...
Nov 1, 2005 11:14 am
14562
DMD Pioneers Mailing List Chats are held every Sunday at the time listed below. 3 to 5 PM Eastern 2 to 4 PM Central 1 to 3 PM Mountain 12 to 2 PM Pacific To...
dmdpioneers@yahoogrou...
Nov 1, 2005 11:14 am
14563
Hey Mark, You can put a link of my site on yours. I already added a link to your blog on my page. Hope you don't mind. John Mark B <nodakwheeler@...>...
I have had it. It helped. I can mouth words better and more clear. They have a device that vibrates the throat and can talk that way. But I can talk fine...
Thanks for your response Tim. I actually don't have a trach, I use Non-Invasive Ventilation through a nasal pillow mask and have no leaks. I have tried using a...
I use a vent and I have to wait between breath. If you increase pressure and speed up breath per minutes and increase breath in time. That should help....
Oh my gosh, I thought I saw everything!!! Would you believe Invacare said THIS on their website??? No wonder I am having so many problems with getting rides ...
I say Invacare doesnt know what there talking about, i have tie downs in my van and ive never had a problem with anything its too dang hard to lift me from my...
... Thats just the way they coverr their asses, its the small print legal BS. Not a guideline for transportation services..... -- Take Care, Cody Namesnik ...
Haha good way to think of it Cody lol. Hans ... Invacare ... legal ... strengths. When you go through hardships and decide not to surrender, that is strength."...
I am going through a nightmare trying to get very much needed modifications to my son's wheelchair. In Sept. Medicaid authorized the mods, Ryan was fitted for...
Yea, I was looking for something else and happened to see the question. I think it looks like a cop out for them to say this. It's like they are more concerned...
I think it is worth the risk. Even though the risk in my opinion is almost non-exsistant. Every time you get into a car you are taking a risk. ... question. I...
So where are your calling? The DME supplier? I had this problem with my DME supplier. I would call to find out where is a part that was ordered, they tell...
But maybe they meant manual chair, regardless of it saying TDX4.... -- Take Care, Cody Namesnik codemann@... "Strength does not come from winning. Your...
Eli, Sorry that I'm posting late, I've been behind on the threads. I am trached and so is my fiance who has DMD. I mostly need the vent at night or when...
... I use a 15mm angled mouthpiece during the day, which doesn't interfere with my appearance. I only wear nasal pillows at night. [Non-text portions of this...
Brian, Can you tell me who makes the mouthpiece you use and its part number if possible? I asked my respiratologist for one and he gave me one that fills my...
... Respironics I believe makes it. As for the part number I have no idea. My respiratory therapist gave me the mouthpiece. [Non-text portions of this message...
... Try looking at this site-- http://www.post-polio.org/whatwks_c_a.html. The parts number is 1004524. [Non-text portions of this message have been removed]...
You might want to look at this site-- http://www.post-polio.org/whatwks_c_a.html. The parts number for the mouthpiece is 1004524. I hope this helps....
I've been without power for the last several days or so thanks to hurricane Wilma. It slashed through my area (Palm Beach County) in southern Florida,...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
