DMD Pioneers Mailing List Chats are held every Sunday at the time listed below. 3 to 5 PM Eastern 2 to 4 PM Central 1 to 3 PM Mountain 12 to 2 PM Pacific To...
dmdpioneers@yahoogrou...
Oct 1, 2005 9:52 am
14297
Living with DMD is a chat for adults with DMD and others affected by the disease. Discussions will focus on how to live a fulfilling and healthy life with...
dmdpioneers@yahoogrou...
Oct 1, 2005 9:52 am
14298
I have a similar set of gel-filled tires on my Invacare Storm series. They feel much smoother than the inserts I used before. I hear they are just as durable...
Ok, I'm lost. Is this to put in their regular tires? My son's have Storm series wheelchairs with flat free tires but I thought they were solid tires. Did they ...
Permobil currently only has air filled tired - air filled tired can and do get flats. Traditionally, the only available "flat-free" tires available for other...
Nathan and Alex are due for new tires, I was wondering how to find out if this is something they should get. I don't think they will want them if there is any ...
Do you know where these inserts were manufactured by? Were they gotten from Invacare? Sounds like this is something we might want. Adele _____ From:...
Terri, Whether or not Medicaid will cover new tires is different in each State. You would have to check with your State Medicaid agency - I'll warn you not to ...
I didn't mean the tires themselves. Their tires are about 3 1/2 years old so I think they will be covered, especially since they are almost completely bald and...
Mark's post rings true.....Lots of nursing homes don't take vent patients---they're too expensive to keep alive. In the south it is common for them to...
Trying to get items covered by Medicaid. As Jason G said "and tires are not generally seen as important (don't ask me why.) This is probably because they...
The Good Heart Diet and exercise are not the whole secret to cardiovascular health. Mounting evidence suggests that your psychological outlook is just as ...
If your son has so much pain, why doesn't he get air tires? It's a big difference. I always make sure I have air tires. I never had a flat. There's a reason...
Hey all... I am a manifesting carrier of DMD - my son has beckers... I have a problem. I am trying to find information on pain management and any injuries...
Thanks. Adele _____ From: dmdpioneers@yahoogroups.com [mailto:dmdpioneers@yahoogroups.com] On Behalf Of Eric Sent: Monday, October 03, 2005 1:44 AM To:...
Hi Kat, Did you mean that your son has DMD? I am wondering because you have said he has Becker (BMD) before but when I asked you said he had DMD (Duchenne)....
Kat, First, to my way of thinking, if you are a carrier of Duchenne MD, then your son has Duchenne (DMD) If your son has Beckers MD, then you are a carrier of...
Sorry it took so long to get back to you. Jason is in a program here in Maryland called REM(Rare, Expensive, Medical) It is one program through the Medicaid...
Are you seeing a Physiatrist? They specialize in rehab medicine, which includes injuries/dysfunctions of the muscles and skeletal system, as well as pain...
Yeah, but cars carry spares. And they have road side repairs(AAA). You guys get a flat, and it could be a day before its fixed and then what do you do in the...
Adele, Your observation is very astute. The matter is further complicated on holidays and weekends when most DME do not operate. I can tell you exactly what...
Kat, I would agree with Adele about your carrier status except I once had a procedure that identified me as a carrier of DMD but my son has BMD. Does anyone ...
I thought that I remembered seeing a thread a while back about a tea that helps with bowel movements. I've searched under tea, bowel, constipation, etc. and...
I am wondering if it isn't the method of testing itself that might be a reason why this could happen. If they are testing for status based ONLY on cpk level it...
We start the AWA that starts a program that has sidewalk repairs! :) ... From: dmdpioneers@yahoogroups.com [mailto:dmdpioneers@yahoogroups.com] On Behalf Of...
Tracie, My son Peter uses Miralax for constipation. It works better than anything else we've tried. So many other remedies cause a lot of gas or cramping, but...
A story about our family. http://www.southbendtribune.com/stories/2005/10/04/local.20051004-sbt-LOCL-B1-A_rough_road_every.sto [Non-text portions of this...
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