DMD Pioneers Mailing List Chats are held every Sunday at the time listed below. 3 to 5 PM Eastern 2 to 4 PM Central 1 to 3 PM Mountain 12 to 2 PM Pacific To...
dmdpioneers@yahoogrou...
Aug 1, 2005 9:18 am
13657
Living with DMD is a chat for adults with DMD and others affected by the disease. Discussions will focus on how to live a fulfilling and healthy life with...
dmdpioneers@yahoogrou...
Aug 1, 2005 9:18 am
13658
I am moving out soon on my own, well actually with my mom for now till I get everything down. I need to hire a PCA but as of right now I dont know where to...
Matt, Where do ya live? I would suggest contacting your local Center for Independent Living. They have knowledge on managing pca's. Mark Boatman ... ...
Just letting y'all know that today I turned 39 years old!!! Yessssssss! DMD can kiss my crippled, bony, pressure-sore susceptible ass! Keeping the faith, ...
Way to go Scott! Keep up the fight John Herrmann Synchronicity66@... wrote: Just letting y'all know that today I turned 39 years old!!! Yessssssss! DMD can...
Happy Birthday!! Should I stop having bds so you can catch up with me? I would be willing to make that sacrifice. :D Terri ... From: Synchronicity66@... ...
Matt, When I am looking for PA's I think it depends on the area u r living. Right now I live in small area so what works for me is putting ads on community ...
Scott. I have never believed what any doctor has ever said about the progression of DMD. You just keep showing those doctors. I hope you had a terriffic day....
I realize I've been out of touch with the group for awhile, but I've been pretty busy lately so didn't have much time to write. I'll try to summarize quickly...
I've lived out on my own for ten years in September. I use something called In Home Support Services(IHSS)to pay my PCA's. That may be only in California. I...
This group doesn't allow attachments, so you may wish to cut-and-paste the contents, post a link to where they are located or add it to the files section....
How do I go about getting medicaid to pay for a personal assistant? - Matt __________________________________________________ Do You Yahoo!? Tired of spam?...
Hi Matt, I have lived on my own since I was 18. I am now 32. I don't know how it works in your state but here in AZ I have a case manager through my insurance...
I received this and thought it might be something of interest to some of you. Terri I was sending this list to a friend of mine and thought I would pass it...
Does anyone know what you call the 8-10 inch tube that goes from the pump to the cannister. I'm having trouble getting the right part from my home care...
That is the way here. We got a friend but she had to get hired by the company. I don't think she is going to be hired by the new company though. It was getting...
It's for a Schuco bedside suction machine. It looks like the 6' plastic tube with the blue rubber on each end that you connect to the suction catheter. It's...
How do you know when you need something like that done? In a message dated 7/29/05 7:49:38 PM Eastern Daylight Time, ... -Jonathan [Non-text portions of this...
I've tried explaining it that way and I always get the 6' tubing. I figured if I could get a specific name and/or part # someone might figure it out. Doug ......
What don't they understand? They should know the parts used by their equipment. On my bedside vent I use the short tubing with teal colored rubber ends to...
What don't they understand? They should know the parts used by their equipment. On my bedside vent I use the short tubing with teal colored rubber ends to...
When you said Green bubble tubing it reminded me of an aquarium. I can just see you guys going into the pet store or pet department, looking for tubing for...
I went to play miniature golf the other day. It took almost 300 shots, but I played 15 holes. I hold the club between my feet (after strapping my foot plates...
Doug, That sounds like fun! Our church took the teens to a miniature golf place and my son Peter went along. None of us had been there before and we assumed it...
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