The following dmdpioneers poll is now closed. Here are the final results: POLL QUESTION: How much do you weigh (pounds)? CHOICES AND RESULTS - Under 90, 3...
dmdpioneers@yahoogrou...
Jun 1, 2005 8:05 am
13045
The following dmdpioneers poll is now closed. Here are the final results: POLL QUESTION: Do you now or have you ever had a licensed service animal such as a...
dmdpioneers@yahoogrou...
Jun 1, 2005 8:07 am
13046
Living with DMD is a chat for adults with DMD and others affected by the disease. Discussions will focus on how to live a fulfilling and healthy life with...
dmdpioneers@yahoogrou...
Jun 1, 2005 9:11 am
13047
DMD Pioneers Mailing List Chats are held every Sunday at the time listed below. 3 to 5 PM Eastern 2 to 4 PM Central 1 to 3 PM Mountain 12 to 2 PM Pacific To...
dmdpioneers@yahoogrou...
Jun 1, 2005 9:11 am
13048
Does anyone know where I can get elbow pads? I type with my elbows on my tray. I don't want big pads that strap to my arms; just something soft and 4-5...
... need to have those fabricated at a wheelchair seating place. I'm not aware of a elbowpads-r-us store... ;-) Otherwise get some foam and cut to fix, or get...
Maybe something made of real sheepskin would work? Annette ... From: "surfdudeny" <surfdudeny@...> To: <dmdpioneers@yahoogroups.com> Sent: Wednesday,...
most fabric stores sell foam that you could have cut to fit. Andrea ... From: dmdpioneers@yahoogroups.com on behalf of surfdudeny Sent: Wed 6/1/2005 4:43 PM ...
Hi Holly, I can relate to what you are saying. My son is fortunate enough to have nurses several hours each day and at night but he still prefers to have me...
My son is eligible for 16 hours a day 7 days a week but he lives with us his parents (me and his Dad) so he gets care while we are at work, at night, and we...
In a message dated 6/3/2005 7:15:32 PM Eastern Daylight Time, irishrediowa@... writes: Help is scarce for homecare and I don't want to abuse my help so...
I know you're scared to lose nurses but don't let them walk all over you. They get paid a decent wage compared to pca's, to be a nurse. They're not doing it as...
My son Ryan is 18 and we qualify for 20 hrs a week, but they can never send anyone the hours that I want, so we get none during the week. Right now I am...
I have had most of the problems you mentioned below, but nobody touches my laptop. I have mine password protected. Many nurses pick home care because they...
My brother and I get almost 24/7 in home nursing care except for about 20 hrs on average per week up here in CT. It's 1 nurse caring for us both. Overnight...
Yes that's usually the case but I've had my primary for 18 years, which is amazing. Another nurse that left recently was with me for 15 years. Joe ... Joseph...
Josh just got the liberty external catheter. He was wondering how you use it. He's not crazy about the belt and pouch to hold it. He just starting to use this...
Personally, I don't think expecting a nurse or personal care attendant to do their job is considered using them. If the nurses can do something, they should be...
Enter your vote today! A new poll has been created for the dmdpioneers group: Who on the list works, goes to school, or neither? o Work o School o neither To...
dmdpioneers@yahoogrou...
Jun 4, 2005 6:56 pm
13065
I used to go to school, but I volunteer now and run a children's book review site....
I would not consider it using them either, but it doesn't really matter what you or I think. They may feel like they are being used. And that means they might...
I'd love to have a job and go to school, but because I reside in a hospital I do not have access to the appropriate resources to do either. I find it unfair...
My husband tried out the Liberty Pouch so that he could help our son with it. He doesn't think that Christopher will go for it because of the belt thing. I...
What so we should just let them get away with murder? You might as well just not have anyone if they don't do anything. They don't have to like us, but at...
Ever tried to take an online class? Joe ... Joseph Malone Say what you will about the sweet miracle of unquestioning faith, I consider a capacity for it...
Agreed! People who have to rely on nurses must start to form some kind of an interest group and make sure that their job is not about doing what they want to...
I've considered it, but have yet to look into it. If it were my choice, I'd rather attend college in person for the opportunity to socialize and make friends....
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