Ask the DMD Pioneer Chat is an opportunity for parents and caregivers to seek advice from and talk to adults with DMD. Ask the DMD Pioneer Chat 3rd Wednesday...
dmdpioneers@yahoogrou...
May 1, 2005 9:38 am
12808
Donna, Could you find a place that would rent you one? Annette ... From: "donnajeffrey2000" <donnajeffrey2000@...> To: <dmdpioneers@yahoogroups.com> ...
How lucky do you get! I have to do all the bathing! Well, no not all because I have home health now, they come 3 days a week to bath Eric because I just...
No, he does not chat with friends cause he has not online friends. He recently has gained a new friend that comes and plays the games with him. His bath...
How lucky do you get! I have to do all the bathing! Well, no not all because I have home health now, they come 3 days a week to bath Eric because I just...
Holly, Peter will talk about his DMD. But he seems to be pretty hard set about making friends with other dmd guys. He says things like "I want to be around ...
Very much agreed. CPAP needs to b discontined. Mark Boatman ... __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail...
I don't usually have many friends with DMD. I don't think you should have to make friends with someone just because they are "in the same boat" as you. I'm...
I have to admit I really had no disabled friends til a few yrs ago. I too only really hung out and kept in touch w/counselors at camp. I think I also had the...
Annette, I did call a place the cruise ship told me about to rent a lift and they wanted $275. Sure seems like a lot. If I can I'd rather buy one than I will...
... No, I think it's pretty normal, actually. He probably feels isolated from "normal" kids at school and, like many teens, he wants to be accepted by his ...
Eric is the same way! Holly ... No, I think it's pretty normal, actually. He probably feels isolated from "normal" kids at school and, like many teens, he...
There is a waiver program with his medical card that pays for it. I'm also getting respite and housekeeping now. She cleans and vac's the floors and makes...
Holly, A CPAP uses continous pressure and is no help with DMD. Bipaps are made for DMD because it uses cycles of pressure. My docs said right away that cpap...
People with Dmd usually have problems with excess carbon dioxide, so we need to exhale as fully as possible to minimize the CO2 in our lungs. CPAP (Continuous...
Thanks to Doug, Kimi, Jonathan,and Holly, I was kind of worried about Peter avoiding people in wheelchairs, but I see from your responses that its pretty...
Holly, I've read that too, about cpap NOT being for DMD. Go to Dr.Bach's website - it's explained very well there. What Eric probably has is NOT sleep APNEA, ...
ERic says he sleeps much better with the c pap and has more energy in the day time but I will talk to the doctor. The people that did the sleep study know...
molift smart http://www.moliftinc.com/Smart.htm Nice foldable lift. I should have got this before I turned my two point hoyer to a six point. Sure would make...
Here is a nice read from Bach's site.. Respiratory Care in Muscular Dystrophy http://www.livingfortoday.org/health/finder.htm -- Take Care, Cody Namesnik ...
What a Pain! Now It's Tylenol Troubles http://www.medpagetoday.com/tbindex.cfm?tbid=974 -- Take Care, Cody Namesnik codemann@... "Strength does not come...
For anyone in our group who happens to have me on IM and per chance wondered why I haven't been on much at all lately its because I've been feeling ill since...
Hope you feel better soon Alan. Joe ... Joseph Malone Say what you will about the sweet miracle of unquestioning faith, I consider a capacity for it terrifying...
... Hope you feel better soon..... -- Take Care, Cody Namesnik codemann@... "Strength does not come from winning. Your struggles develop your strengths....
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