Hi, I was wondering if someone here could answer some questions I have about Noninvasive Ventilation? I am 24, and I currently use a Bi-Pap Synchrony...
Ask the DMD Pioneer Chat is an opportunity for parents and caregivers to seek advice from and talk to adults with DMD. Ask the DMD Pioneer Chat 3rd Wednesday...
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Mar 1, 2005 11:53 pm
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Do you have a setup for the bipap so you can move around? M ... mouthpiece...
Hi Jay, I like many people in this group use noninvasive ventilation. I have a Respironics PLV-100 positive pressure volume ventilator with a lip-seal...
Thank you Scott for the information! That will be very helpful! If I think of any more questions, I will be sure to ask you! Thanks. ... have ... mouthpiece...
Hi, I have a vent tray on the back of my wheelchair for the Bi-Pap to rest on, and underneath the vent tray is a battery pack with a regular outlet for the...
Is that a custom battery pack, or one you purchased or got through your respiratory therapist? If it is something readily available, please tell me the name of...
I have a question too. My 17 yr old son is now using a bi-pap also but just during the night. The respitory nurse has just kind of left us set at one setting....
Have you been on the noninvasive vent users website? I'm sure one of the guys here can tell you how to get there. So, your doctor prefers a trach--ask him if...
I read Scott's feature in Esquire - thought it was great! Also the picture was very flattering, you don't look your age, more like 20 something . I'm going to...
Hi Jay. This is Brian. I switched from bi-pap to Noninvasive Ventilation a year ago, and it has made quite a differece in my life for the better. I was...
Does anyone know of software that can turn Neverwinter Nights into a true turn-based game? The reason I ask is that I'm too slow for the combat, but I like the...
You can press the space bar at any time to pause the action. You can give orders while the action is paused. When you press space bar to unpause the action,...
roho's work good unless you have scoliosis. If you do it makes you fall over to one side. David Ralph. ... __________________________________ Celebrate...
I have not used a Roho before, but it is my understanding that they are customizable. If they are, wouldn't it be possible to adjust for your scoliosis so you...
Mine was doing that for several weeks. We tryed everything and finally had to change to a new machine. Nothing helped. The PLV vents are dangerus pieces of ...
I have pretty severe scoliosis, and the Roho works great for me. However, there are many different types of Roho cushions. Mine is called a "Contour Select"...
My son has scoliosis and he doesn't have a problem, he has the quad that you can have some parts more firm than others. He sits in the middle of it and I let...
The marine batteries are suppose to last longer than the reg batteries. We have a battery back up for my son's bipap in case the electric goes out at night....
My son had a sleep study 6 years ago and it was set. It has not been changed. If his oxygen is down a little you may want to ask if he could use it during...
I am not sure what the name is of the battery pack, but I got it from my respiratory therapist. He works at Apria. If you search for Apria on the Internet,...
I use the Nasal Pillows, and they seem to work really well for me. It is amazing how much easier it is for me to eat since I have learned to eat with the Bipap...
I will definitely have to go to that web site! The Pulmonologist seems like he is more in favor of trachs, which I also think is not the best option unless...
Hi, Brian. That is really great that Noninvasive Ventilation has worked out so well for you! How did you know when to switch to Noninvasive Ventilation from...
I don't know of this game but my son plays call of duty. Ever heard of that game? It is a downlowded game. My husband plays it more than anyone... Holly ...
The roho is the way to go as far as we are concerned.... Holly Mary <deerlanding@...> wrote: My son has scoliosis and he doesn't have a problem, he has...
My son gets his machine checked once a year. Does your son have sleep apnea? that is why my son is on a bi pap, actually he recently went from a bi pap to a...
Well, basically I was feeling like crap. I didn't want to wear a mask all day because I didn't want to look like the "Elephant Man". I would get panicky when...
Well, basically I was feeling like crap. I didn't want to wear a mask all day because I didn't want to look like the "Elephant Man". I would get panicky when...
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