I wonder if any of you guys can help me... I'm looking for a copy of a movie called 'When You Remember Me' which starred Fred Savage as a young man with DMD. ...
Hmmm... Since it is a TV movie it could be hard to get a hold of. 2 suggestions: Call ABC and see if they have copies available (obviously for a price, maybe...
I vaguely remember seeing this movie. What year was it shown? I think it was before we received our son's diagnosis. Annette ... From: "Jason Gallagher"...
Ask the DMD Pioneer Chat is an opportunity for parents and caregivers to seek advice from and talk to adults with DMD. Ask the DMD Pioneer Chat 3rd Wednesday...
dmdpioneers@yahoogrou...
Feb 1, 2005 10:29 pm
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1990 - That was the year we found out Peter had DMD. Annette ... From: "Jason Gallagher" <jason@...> To: <dmdpioneers@yahoogroups.com> Sent:...
Hello everyone, My son Phil hits the big 3-0 today. What can I say? At one time, this was one day we thought neither he nor we would ever celebrate. Carol ...
In a message dated 2/2/05 8:40:05 AM Eastern Standard Time, ILuvMere@... ... It's becoming more common every day. Hey, any DMD'ers out there have gray hair...
Hi all Sam has just had a swallowing test under x-ray and the conclusion is that drinking with a straw is dangerous cause his throat reflux doesn't act quickly...
This is a great opinion piece about the movie "Million Dollar Baby" ... Subject: CURR:[ChicTrib] Why 'Million Dollar Baby' infuriates the disabled Date: Wed,...
Congratulations to your son on his 30th birthday. It is always a great milestone for those of us with DMD. I felt a sense of victory upon reaching 30. The...
It is great that it is becoming more common for people with DMD to reach 30 and beyond. I don't have any grey hair yet. But, when I do, I will not despair. I...
Hey guys, Grey hair on men looks distinguished, haven't you heard that before? It's only on us women that makes us look old :-D Thank goodness for Nice and...
Yes lots of it. I actually like my gray hair.;-) Joe ... ===== Joseph Malone Say what you will about the sweet miracle of unquestioning faith, I consider a...
I'm just wondering were you both on steriods? Eric was and they say that is why his lung function is so good....... Happy Birthday to you guys! Holly, mom...
Hello Carol, I was always told Eric wouldn't live past 20 or 21, he is 20 now with good lung funtion. It means so much to us moms to here that our boys are...
Holly, Steroids were never suggested as an option for Phil. He does take medications for cardiomyopathy but so far, no respiratory problems. Phil does have...
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