DMD Pioneers is an international group for anyone with Duchenne Muscular Dystrophy
(DMD) who has beaten the odds. We are in effect Pioneers, in that we have found
ways to keep going and to deal with what we've got. Here we can share experiences,
give advice or just talk about life in general. We should celebrate the fact
that we are not statistics and are DMD Pioneers!
Due to the nature of discussion that goes on in the DMD Pioneers group, membership
is limited to those who actually have DMD or parents of children with
DMD who are at least 16 years of age. This is not meant to be a support
group for parents of newly diagnosed children or as a means to find out about
treatment options. This allows for open and candid discussion among members
who have "been there, done that" when it comes to the childhood stages of this
disease.
***Please be aware that certain topics may be of a somewhat personal and/or mature nature!***
Pioneer Profiles:
DMD Pioneers now has it's own profile pages
Mattias, Hi, it is Holly, Eric's mom, is is 25 now...I have to keep reminding myself how old he is?  The doctors are treating Eric's left fentruical..I
http://www.ncbi.nlm.nih.gov/pubmed/19917503?dopt=Abstract Mesenchymal stem cells as anti-inflammatories: Implications for treatment of Duchenne muscular
My son has had heart involvement since at least age 18, probably 4-5 years longer than that. He had an ICD (Implantable Cardio Defibrillator, which includes