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Description

Welcome to DMD Pioneers Mailing List!

DMD Pioneers is an international group for anyone with Duchenne Muscular Dystrophy (DMD) who has beaten the odds. We are in effect Pioneers, in that we have found ways to keep going and to deal with what we've got. Here we can share experiences, give advice or just talk about life in general. We should celebrate the fact that we are not statistics and are DMD Pioneers!

Due to the nature of discussion that goes on in the DMD Pioneers group, membership is limited to those who actually have DMD or parents of children with DMD who are at least 16 years of age. This is not meant to be a support group for parents of newly diagnosed children or as a means to find out about treatment options. This allows for open and candid discussion among members who have "been there, done that" when it comes to the childhood stages of this disease.

***Please be aware that certain topics may be of a somewhat personal and/or mature nature!***

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If anyone on here wants to add us on Facebook, feel free. I have a DMD friends list. Becky Davis Steubing, mom to Ben Steubing, 18
Posted - Mon Nov 9, 2009 1:23 pm
Rebecca
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New Blog Post 11-8
www.johnrsf.blogspot.com   There is no cure for birth and death save to enjoy the interval. --George Santayana(1863-1952) My E-Mail: johnrsf@... My
Posted - Mon Nov 9, 2009 2:45 am
John Herrmann
johnrancho
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Re: New Healthcare Bill
I would say from what little bit I understand what was in the House bill I would say yes, it will help those people situation. But I feel in the long run, it
Posted - Sun Nov 8, 2009 11:16 pm
Adele
navymom2josh
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New Healthcare Bill
So I have been in a heated debate with my friends on facebook about the new healthcare bill and I have taken time to do some reading on it. I hope that it
Posted - Sun Nov 8, 2009 10:45 pm
mollygalli
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Re: Rollx vas
No, we didn't buy from them, although a friend did. But that was 15 years ago. I expect that they're ok, I've they've stayed in business and always have many
Posted - Wed Nov 4, 2009 6:33 pm
Gapko, Andrea M.
gapkoam@...
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 184 110 114 201 155 159 96 182 172 90 8
2008 243 307 257 271 308 251 368 172 136 190 256 147
2007 134 230 125 119 219 62 172 172 141 64 69 141
2006 632 359 177 117 135 490 185 217 140 144 101 78
2005 88 131 183 247 237 284 328 354 286 265 136 193
2004 231 460 250 138 247 250 487 309 161 231 410 336
2003 314 161 201 278 439 565 867 898 528 652 384 238
2002 40 55 57 131 273 60 76 287 485 595 561 502
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