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Description

Welcome to DMD Pioneers Mailing List!

DMD Pioneers is an international group for anyone with Duchenne Muscular Dystrophy (DMD) who has beaten the odds. We are in effect Pioneers, in that we have found ways to keep going and to deal with what we've got. Here we can share experiences, give advice or just talk about life in general. We should celebrate the fact that we are not statistics and are DMD Pioneers!

Due to the nature of discussion that goes on in the DMD Pioneers group, membership is limited to those who actually have DMD or parents of children with DMD who are at least 16 years of age. This is not meant to be a support group for parents of newly diagnosed children or as a means to find out about treatment options. This allows for open and candid discussion among members who have "been there, done that" when it comes to the childhood stages of this disease.

***Please be aware that certain topics may be of a somewhat personal and/or mature nature!***

Pioneer Profiles:
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Re: Heart involvement debut
Mattias, Hi, it is Holly, Eric's mom, is is 25 now...I have to keep reminding myself how old he is?   The doctors are treating Eric's left fentruical..I
Posted - Fri Nov 20, 2009 5:32 am
hhjgreene@...
hhjgreene
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dr. Riordan's article is now at PubMed & Cellular Immunology
http://www.ncbi.nlm.nih.gov/pubmed/19917503?dopt=Abstract Mesenchymal stem cells as anti-inflammatories: Implications for treatment of Duchenne muscular
Posted - Wed Nov 18, 2009 8:29 pm
Estevão Augusto
estevaosa
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Re: Heart involvement debut
My son has had heart involvement since at least age 18, probably 4-5 years longer than that. He had an ICD (Implantable Cardio Defibrillator, which includes
Posted - Wed Nov 18, 2009 6:35 pm
Gapko, Andrea M.
gapkoam@...
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Re: Heart involvement debut
i've got the pacemaker last year. i'm 31. 2009/11/17 Lee <capttrekker@...> ... -- Estevão Augusto http://filmescopio.blogspot.com/
Posted - Wed Nov 18, 2009 3:56 pm
Estevão Augusto
estevaosa
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Re: Heart involvement debut
I wasn't diagnosed with CHF until age 37 (2005) when I suddenly developed 2nd degree heart block and had to get a pacemaker less than 2 weeks later.
Posted - Wed Nov 18, 2009 1:42 am
Lee
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 184 110 114 201 155 159 96 182 172 90 60
2008 243 307 257 271 308 251 368 172 136 190 256 147
2007 134 230 125 119 219 62 172 172 141 64 69 141
2006 632 359 177 117 135 490 185 217 140 144 101 78
2005 88 131 183 247 237 284 328 354 286 265 136 193
2004 231 460 250 138 247 250 487 309 161 231 410 336
2003 314 161 201 278 439 565 867 898 528 652 384 238
2002 40 55 57 131 273 60 76 287 485 595 561 502
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