Hi, I'm a mom of 3 kids. My middle son, who is 3 years old, was born with PUV's resulting in kidney failure. Because of his kidney failure, he has DI. We...
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mskewlgal@...
Mar 5, 2003 7:28 am
Hello everyone, As I watch all these details of everyone else's situations, it really makes me wonder if I'm just oblivious to changes in my body, or if I'm...
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Liz Cracknell
moosewiz
Mar 5, 2003 9:34 am
Hi, Take a look at this page for the history of ddavp. http://www.ferring.com/site/ferring_com/view.asp?ID=130 liz ... From: mskewlgal@......
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K.A. Thompson
thumperizme
Mar 5, 2003 3:32 pm
... really makes ... lucky. I ... "foamy" if that ... ==== I don't know if you're just lucky, but I'm pretty much the same way. I have no problems with DDAVP;...
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Rik
rikscott1962
Mar 5, 2003 5:00 pm
I was born with NDI .... I've never taken anything for it ... I have only in recent times found these message boards and had no idea that people took any sort...
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Merry Macpherson
vorph666
Mar 5, 2003 6:25 pm
"I don't know if you're just lucky, but I'm pretty much the same way. I have no problems with DDAVP; I take it jst before I go to bed, sleep through the night,...
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K.A. Thompson
thumperizme
Mar 6, 2003 3:03 pm
... I'm using the 10mic spray manufactured by Ferring AB for Aventis Pharmaceuticals (had to look on the box...) I didn't know anyone else made it. If you can...
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lilfootsteps
Mar 11, 2003 9:29 pm
Can anyone tell me what DDAVP stands for. Even the Doctors in their infinite wisdom are unable to tell me. Our 13year old has DI as a result of a pit tumour...
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Ash Amesbury
ash_jmjuk
Mar 11, 2003 10:15 pm
Hi I think the DA of DDAVP prolly stands for "Desmopressin Acetate" (remembering the nasal spray from years gone by) as for the rest of it sorry can't help you...
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mskewlgal@...
Mar 12, 2003 8:15 am
Hello, I had a pit. tumor, as well. It took some time for the dr.'s to realize that I was needing more hydrocortisone. A simple jump from one and a half pills...
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K.A. Thompson
thumperizme
Mar 12, 2003 3:28 pm
... Desmopressin Acetate... I'm guessing the DDAVP is abbreviation for Desmopressin Acetate (replacement for) Vasopressin. Just a guess, though....
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Clarissa Barin
morningdawn32
Mar 12, 2003 4:30 pm
This is a description of the drug compound, which explains the acronym. This was found on an information website written by a doctor, and if I can remember the...
699
Jonas
jonaspas
Mar 12, 2003 7:41 pm
DDAVP stands for 1-deamino-8-D-arginine vasopressin. Has your son started testoserone yet? That may help his energy level. What about growth hormone? Jonas...
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Jonas
jonaspas
Mar 12, 2003 7:45 pm
The site I located the DDAVP description is http://www.medicine.ox.ac.uk/ohc/ddavp.htm Note that the site talks about the use of DDAVP to contro bleeding ...
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lilfootsteps
Mar 13, 2003 2:40 pm
Hi Jonas and everyone Thanks for that. Now I can tell the doctors what it means and look intelligent. No Keiran hasnt started the growth hormone yet we are...
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jonaspas@...
jonaspas
Mar 13, 2003 2:48 pm
Caz, Weight gain is a big problem for people with pituitary tumors. Most don't eat more than others and still put on weight. Maybe your son will become a...
703
iluvumoonshine
Mar 22, 2003 7:00 pm
Hi, my name is Martha Domanski. I have a daughter, almost 5, who has DI since before her 2nd birthday. Anyone care to chat or email, feel free to contact me...
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Clara Gee
gee485@...
Mar 22, 2003 9:57 pm
Hi Martha - I've had DI since a small child and I am now 70 years old. I wasn't diagnosed until about 18 years old and many medications have come and gone for...
705
wee_bee_2cute
Mar 25, 2003 7:53 am
Hi All: It has been awhile since I have posted or been here, as my son has developed other medical problems besides the DI. Any ways I just had a quick...
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yosefba20
Mar 25, 2003 3:08 pm
Hey There , I can just help you in one issue , I do know that there is a situation of partial DI , I also have it . It occurs when the gland doesn't make...
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mskewlgal@...
Mar 25, 2003 7:28 pm
in follow up to the "Partial" question.... I had a pituitary tumor, and my dr. said that it the ADH could, or could not, begin production again. I had one two...
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Lisa Pollard
silidaro
Mar 26, 2003 2:17 pm
Hi, I was diagnosed with partial central DI about 2 years ago. My consultant explained that my pit gland is like a car that won't start properly - sometimes...
709
didoc33
Mar 30, 2003 1:45 am
Hi everybody: I´m 33 and have Central DI since 1993. I live in Argentina (Buenos Aires) and would like to open a chat or contact group with people all around...
710
ninaclock
Mar 31, 2003 3:51 am
I'm a 52 yr. old female who has lived a full life despite having CDI, which was diagnosed when I was seven years old. I had every diagnosis under the sun...
711
momofwaterdrinker
momofwaterdr...
Mar 31, 2003 10:13 pm
Dr. Charles O'Neil from Emory is giving an ultrasound presentation in Dallas, Texas. He is looking for an older to adult NDI will to participate in this. The...
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Grace Joffe
liquorish
Apr 1, 2003 4:24 am
Wish my 9 yr. old rescue Doberman were still with me. She and I could tell him plenty of stuff that could sorta help an NDI patient. Let me know if there is...
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Lori Miles
msmillo
Apr 1, 2003 3:27 pm
... Hi, my name is Lori Miles. I am 38 years old. I was diagnosed with DI in 1978. I had a reocurring brain tumor, which was pressing on my pituitary gland &...
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K.A. Thompson
thumperizme
Apr 1, 2003 6:10 pm
... with DI ... pituitary ... explain ... I'm no expert, but I'd say Central DI. Mine was also caused by a pituitary tumor... Luckily most of my pit gland...
715
ninaclock
Apr 1, 2003 6:19 pm
Hi Lori, I'm no pro on diagnosis but it sounds like your condition is totally CDI. Mine was diagnosed at age 7 as idiopathic as it had no known cause. Years...
716
wee_bee_2cute
Apr 4, 2003 8:17 am
I have a 19 month old son who was diagnosed with partial centeral DI when he was 14 months old (he is not on any meds for this). My question is this does...
