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FYI I am sending this out to everyone on my Patient Support Group List. If you are overseas this may not be directly relevant to you, but may be of general ...
I have a 9 month old daughter, Tatiana, that at 8 months had a large tumor (lemon sized) removed and has been diagnosed with JPA (Juvenile Pilocytic...
Geez. Will they ever give me treatment. I went to the endocrinologist today. She agrees the DI is my problem due to what the MRI said and how much a pee....
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Hi. I have been on DDAVP for a little over a week now. It really helps, for awhile anyway. I take it before bed and sleep through most of the night. I will...
Hi, I'm Mary Ann from the Philippines, im taking Minirin tablet (0.1 mcg)since its the only available medicine here and i also experience the same thing. The...
Our son was diagnosed when he was one yr old and first tried DDAVP thru the nose, but that was inconsistent. He is 5 yrs old now and he receives 2 shots...
hey all I thought I would post this because they damn near took away almost all my bills. I think its worth at least checking out if you have too many bills......
Hello, My son is 3 years old. He was diagnosed with Nephrogenic DI when he was 1.5 years old. As he's getting bigger, it's getting increasingly harder to...
Hi Kelli, what meds is your son on? I am wondering why they aren't working. What about putting a potty in his room, and giving him some kind of reward for...
Hi Vicky, He doesn't have Central DI, but NDI. He can't use Vasopression, but it just on hydrochlorothiazide to help take the pressure off his kidney's. Yes,...
Kelli, my son has pituitary di, and he didn't get it until he was 12. It would be nice if others with kids with NDI could respond to this. I do work with kids ...
Hi Everyone! It's been a while since I have posted! This is for Vicky. Is your son on DDAVP? I know it helps other bed wetting problems, along with the...
Hi Kelli I have posted this on another group you posted in ... but will post here too incase you miss it ... I grew up with Nephrogenic DI ... and your right...
I have had Central DI for 8 years. I was told when I was diagnosed that it had nothing to do with blood sugar. I never checked my blood sugar because I...
DI has nothing to do with type 1 or type 2 diabetes and insulin. Your new doctors probably are not aware of the disease you have. The word diabetes means "lack...
Thanks a lot. I always knew that, but when i heard her say that, it shocked me for a second. I haven't had a lot of success with doctors my 8 years of having...
Hello Everyone! I haven't posted in a while, but this DI mix-up with regular diabetes provoked me ;) I had a bad time last Christmas when I was in the...
Has anyone with DI figured out how to get past the "You have diabetes" questions when trying to buy life insurance? If you think healthcare workers get...
Hello all, I wanted to just say hi and tell you all how much this foundation is such a relief to find. Alittle about me, I was diagnosed when I was 4 years...
Hi, I am not native speaker, but living in the US for a while. Was diagnotised three months ago, just before leaving Belgium. It is partial, and take minirin...
... Hi, Im Mary Ann from the Philippines, im also a DI patient and im taking Minirin for almost a year now. Im taking my medicine 3 times a day as what my...
