Has anyone tried Dr Gloria Gilbere's recommendations as outlined in I Was
Poisoned By My Body? Has anyone been treated by her? I just finished reading
her book and am intrigued to try some of the things she suggests. I would
like to try colonics but am quite nervous because I have a 20 year history
with Crohns and I don't know if there is scarring or thinning in my colon,
which could make me vulnerable to perforation with the pressure of colonic
water. Would love to hear from others on this.

Also, she recommends products and dietary changes that involve brown rice. I
have avoided grains for several years as per the Specific Carbohydrate Diet
but have had chronic intestinal inflammation for 10 months now. Maybe it's
time for a change. Any thoughts on this?

Also, has anyone been to or heard things about Dr Thomas K. Szulc in
Manhattan? My holistic dentist recommended him.

Thanks
Julie

Hi Everyone;  I received this letter from someone with MCS who wrote it to
present to his doctor to try and educate the dr. on his condition and what
is involved. For people with MCS, I always recommend trying to find a doctor
who has some understanding of chemical sensitivity if possible, but for
those who are unable to, this letter might give some ideas on how to
approach a doctor who doesn't understand it. (I know due to insurance
limitations, etc. some people are forced to see mainstream doctors for
treatment.)

Janine

A PATIENT'S PLEA

   Dear doctor,
              I am an MCS patient.  I would like help.  Someone told me that
you were very good but I have some concerns.  You see, I have already been
to 14 other doctors, most of whom did not understand MCS.  But of the two
doctors that did understand MCS, neither one of them related to me in such a
way that I could trust them.  As you know, if we cannot trust one another,
it is hard to have a therapeutic relationship and get well.
              Please excuse before being so blunt but I would like to
communicate the following things to you before our first visit. Already I
have had to change jobs, make some special modifications to my bedroom, and
start on a diet, which is difficult to maintain. Thank you for listening to
me: not too many other people do.

    a.. Please validate my disease if you think it is real: on the other
hand, let me know if you think I am just stressed out or imagining things.
   b.. Order diagnostic tests and prescribe therapies appropriate to my level
of illness whether it be mild, moderate, severe or disabling.
    c.. Forgive me if I put too great an expectation upon physicians like
yourself: I feel desperate.  (I know that MCS is not completely understood
by scientists yet.)
    d.. Please be honest with me: let your informed consent documents be
sufficiently detailed regarding risks and benefits so that I can make a wise
decision regarding your suggested management: I don't need false hope.
    e.. Although I know that paperwork is tedious, help me make my way
through Workman's Compensation, private insurance issues, and Social
Security disability.
    f.. Charge me fairly for your services but remember that I may not be
rich: help me anticipate and budget for expenses: be open about the costs.
    g.. As you have the opportunity, please be active in communicating
through the media and in standing up for patients like me in the political
arena to help us get disability status, financial aid, safe housing, and job
accommodation.
    h.. Remember, I may not be ready for what you perceive as the best
treatment plan for me: be willing to allow me some time to get use to the
idea that I may need to embark on a radical, lifestyle changing, and
expensive program.
    i.. If I am one of the patients who doesn't get well, or perhaps who gets
worse in spite of everyone's best efforts, please do not "dump me" -- as I
come to trust you, I will understand that you really do care about me and
that you have done your best.

              Thank you for listening to my concerns.  I would like to get
well and hope that I can.  I will do my best to work with you. Thank you for
being willing to devote a good portion of your medical practice to the care
of some really difficult patients who are currently rejected in large
measure by our society.  May God bless you.

Sincerely,
Your new patient

"Donald E. Jacobs" <donald.jacobs6@v...> wrote:

> So I say again, where is the documentation that refutes what Dr
Rogers has published. She lists her references.

> Donald

I will present more than adequate documentation in a book to be
published, hopefully, in about 4-6 months. The evidence is quite
clear.

If you were actually familiar with Dr. Rogers' referenced studies
that supposedly substantiate the superiority of the FIR sauna's
detox efficacy, as I am, you would find a lack of supportive
evidence. FIR saunas may be more efficacious for some for detox, but
to date, there simply are no published studies to support this, or
any that I know of that even address the subject!

Bob.

> > > The FIR frequency penetrates down to the cytoplasm in the
> > > cells.

> > Do you have evidence that FIR penetrates deeply, or for the
> > statement that it is "better" for MCS?

> > > It is well documented in Dr Sherry Rogers' books on
> > > environmental medicine, such as "Detoxify Or Die". She gives
> > > published references for them.

> > Dr. Rogers' references tend to not adequately support her
> > statements regarding how FIR affects people.

> > > The FIR frequency penetrates down to the cytoplasm in the
> > > cells.

> > This does not actually occur (to any substantial or therapeutic
> > extent).

"Donald E. Jacobs" <donald.jacobs6@v...> wrote:

> So I say again, where is the documentation that refutes what Dr
Rogers has published. She lists her references.

> Donald

I will present more than adequate documentation in a book to be
published, hopefully, in about 4-6 months. The evidence is quite
clear.

If you were actually familiar with Dr. Rogers' referenced studies
that supposedly substantiate the superiority of the FIR sauna's
detox efficacy, as I am, you would find a lack of supportive
evidence. FIR saunas may be more efficacious for some for detox, but
to date, there simply are no published studies to support this, or
any that I know of that even address the subject!

Bob.

> > > The FIR frequency penetrates down to the cytoplasm in the
> > > cells.

> > Do you have evidence that FIR penetrates deeply, or for the
> > statement that it is "better" for MCS?

> > > It is well documented in Dr Sherry Rogers' books on
> > > environmental medicine, such as "Detoxify Or Die". She gives
> > > published references for them.

> > Dr. Rogers' references tend to not adequately support her
> > statements regarding how FIR affects people.

> > > The FIR frequency penetrates down to the cytoplasm in the
> > > cells.

> > This does not actually occur (to any substantial or therapeutic
> > extent).

I have read a lot of  "scientific" medical articles. Often the abstract
and/or conclusion says one thing, but the data does not support the
conclusion. It is important to know the sample population and
assumptions that are being made. The articles are often published or
sponsored by a biased source.

So I say again, where is the documentation that refutes what Dr Rogers
has published. She lists her references.

Donald

> The Japanese FIR sauna texts are to be translated within the next
> two weeks.
>
> I've sold FIR saunas for 18 years and am very well aware of the
> immense levels of misinformation that is typical to promoting them.
>
> I hope to have our book published around the first of the year.
> It will address the important issues with types of saunas in a
> scientific manner.
>
> Bob.
>
>
>
> --- In detox@yahoogroups.com, "Donald E. Jacobs"
> <donald.jacobs6@v...> wrote:
> > And where is the documentation for the claims that you make?
> >
> > > > > Regular type saunas are only used dry in detox clinics.
> > >
> > > > They have wet saunas (and a FIR sauna) at the Environmental
> Health
> > > > Center in Dallas. I would not say "only" or implay "all" detox
> > > > clinics.
> > >
> > > They have 3 conventional, Finnish saunas at the EHC-D. One
> includes
> > > two Heavenly Heat far-infrared backrests (in a Heavenly Hest
> sauna).
> > > This sauna can basically be used as a FIR unit or a Finnish one
> as
> > > desired.
> > >
> > > These units are always used dry. The hot stones of a Finnish
> sauna
> > > can potentially be moistened, but the inclusion of stones does
> not
> > > make these saunas "wet". Their inclusion, though, does provide a
> > > substantial amount of far infrared energy within the sauna.
> > >
> > > We have provided the heaters and/or the saunas for most medical
> > > clinics that have detoxed MCS patients with saunas: Drs.: Rea,
> Fox
> > > (Nova Scotia EHC), Crinnion (head of the new EI department of SW
> > > College of Naturopathy), Buffaloe, Patel, Root (Health Med), Gard
> > > (Bio-Toxic Reduction), Edelson, four saunas treating the 9/11
> fire
> > > fighters, etc.
> > >
> > > All of these practitioners use or used dry conventional saunas,
> some
> > > with infrared added. I do not know of a single detox clinic,
> outside
> > > of the East Indian use of steam in Ayurvedic Medicine, that uses
> > > Finnish saunas wet or steamy for clinical purposes. They
> obviously
> > > could, but it's too stressful. The traditional sauna as used
> > > clinically is run in a relatively very moderate manner - dry and
> low-
> > > moderate temperatures.
> > >
> > > > > Do you have evidence that FIR penetrates deeply, or for the
> > > > > statement that it is "better" for MCS?
> > >
> > > > It is well documented in Dr Sherry Rogers' books on
> environmental
> > > > medicine, such as "Detoxify Or Die". She give published
> references
> > > > for them.
> > >
> > > Dr. Rogers' references tend to not adequately support her
> statements
> > > regarding how FIR affects people. Her statements are typically
> just
> > > wrong. I am writing a book on FIR that will hopefully correct her
> > > mistakes and the mistakes of many FIR promoters.
> > >
> > > > There is also a lot of research on the FIR technology from
> Japan.
> > > > They have been doing a lot of research for the past 20 years.
> > >
> > > We are having the primary source of this - the works of a Dr.
> > > Yamasaki, translated now. There is nothing credible to-date in
> > > English to support most claims for FIR's function.
> > >
> > > > The FIR frequency penetrates down to the cytoplasm in the
> cells.
> > >
> > > This does not actually occur (to any substantial or therapeutic
> > > extent).
> > >
> > > > As Dr. Rogers states, many people with MCS who can not tolerate
> > > > the higher temperatures of a moist sauna can tolerate the lower
> > > > temperature of the FIR sauna.
> > >
> > > This is typical of promotional claims that are based partially in
> > > truth but mostly in hype. The "moist", high temperature sauna, as
> > > stated, does not actually need to be either moist or high
> > > temperature, and, in fact, they most often should not be used
> that
> > > way for effective detox purposes.
> > >
> > > Thanks,
> > >
> > > Bob Morgan
> > > Owner,
> > > Heavenly Heat

Hi all; I just got back from the N.W. Pastors' Conference held in Stanwood,
Washington where I had a display table sharing about the needs of the
chemically sensitive and how churches can accommodate people with this
condition. There were about 600 pastors, leaders and missionaries from
places such as Montana, Missouri, Texas, Oregon, California, Washington,
Alaska, Minnesota, London, and Germany in attendance so it was a great
opportunity to educate leaders about this.  Here's a photo if you are
interested.

http://www.aromaofchrist.com/new_page_24.htm

Janine Ridings
Director/Aroma of Christ
Calvary Chapel Eastside
Bellevue, Washington
www.aromaofchrist.com

The Japanese FIR sauna texts are to be translated within the next
two weeks.

I've sold FIR saunas for 18 years and am very well aware of the
immense levels of misinformation that is typical to promoting them.

I hope to have our book published around the first of the year.
It will address the important issues with types of saunas in a
scientific manner.

Bob.



--- In detox@yahoogroups.com, "Donald E. Jacobs"
<donald.jacobs6@v...> wrote:
> And where is the documentation for the claims that you make?
>
> > > > Regular type saunas are only used dry in detox clinics.
> >
> > > They have wet saunas (and a FIR sauna) at the Environmental
Health
> > > Center in Dallas. I would not say "only" or implay "all" detox
> > > clinics.
> >
> > They have 3 conventional, Finnish saunas at the EHC-D. One
includes
> > two Heavenly Heat far-infrared backrests (in a Heavenly Hest
sauna).
> > This sauna can basically be used as a FIR unit or a Finnish one
as
> > desired.
> >
> > These units are always used dry. The hot stones of a Finnish
sauna
> > can potentially be moistened, but the inclusion of stones does
not
> > make these saunas "wet". Their inclusion, though, does provide a
> > substantial amount of far infrared energy within the sauna.
> >
> > We have provided the heaters and/or the saunas for most medical
> > clinics that have detoxed MCS patients with saunas: Drs.: Rea,
Fox
> > (Nova Scotia EHC), Crinnion (head of the new EI department of SW
> > College of Naturopathy), Buffaloe, Patel, Root (Health Med), Gard
> > (Bio-Toxic Reduction), Edelson, four saunas treating the 9/11
fire
> > fighters, etc.
> >
> > All of these practitioners use or used dry conventional saunas,
some
> > with infrared added. I do not know of a single detox clinic,
outside
> > of the East Indian use of steam in Ayurvedic Medicine, that uses
> > Finnish saunas wet or steamy for clinical purposes. They
obviously
> > could, but it's too stressful. The traditional sauna as used
> > clinically is run in a relatively very moderate manner - dry and
low-
> > moderate temperatures.
> >
> > > > Do you have evidence that FIR penetrates deeply, or for the
> > > > statement that it is "better" for MCS?
> >
> > > It is well documented in Dr Sherry Rogers' books on
environmental
> > > medicine, such as "Detoxify Or Die". She give published
references
> > > for them.
> >
> > Dr. Rogers' references tend to not adequately support her
statements
> > regarding how FIR affects people. Her statements are typically
just
> > wrong. I am writing a book on FIR that will hopefully correct her
> > mistakes and the mistakes of many FIR promoters.
> >
> > > There is also a lot of research on the FIR technology from
Japan.
> > > They have been doing a lot of research for the past 20 years.
> >
> > We are having the primary source of this - the works of a Dr.
> > Yamasaki, translated now. There is nothing credible to-date in
> > English to support most claims for FIR's function.
> >
> > > The FIR frequency penetrates down to the cytoplasm in the
cells.
> >
> > This does not actually occur (to any substantial or therapeutic
> > extent).
> >
> > > As Dr. Rogers states, many people with MCS who can not tolerate
> > > the higher temperatures of a moist sauna can tolerate the lower
> > > temperature of the FIR sauna.
> >
> > This is typical of promotional claims that are based partially in
> > truth but mostly in hype. The "moist", high temperature sauna, as
> > stated, does not actually need to be either moist or high
> > temperature, and, in fact, they most often should not be used
that
> > way for effective detox purposes.
> >
> > Thanks,
> >
> > Bob Morgan
> > Owner,
> > Heavenly Heat

And where is the documentation for the claims that you make?

> > > Regular type saunas are only used dry in detox clinics.
>
> > They have wet saunas (and a FIR sauna) at the Environmental Health
> > Center in Dallas. I would not say "only" or implay "all" detox
> > clinics.
>
> They have 3 conventional, Finnish saunas at the EHC-D. One includes
> two Heavenly Heat far-infrared backrests (in a Heavenly Hest sauna).
> This sauna can basically be used as a FIR unit or a Finnish one as
> desired.
>
> These units are always used dry. The hot stones of a Finnish sauna
> can potentially be moistened, but the inclusion of stones does not
> make these saunas "wet". Their inclusion, though, does provide a
> substantial amount of far infrared energy within the sauna.
>
> We have provided the heaters and/or the saunas for most medical
> clinics that have detoxed MCS patients with saunas: Drs.: Rea, Fox
> (Nova Scotia EHC), Crinnion (head of the new EI department of SW
> College of Naturopathy), Buffaloe, Patel, Root (Health Med), Gard
> (Bio-Toxic Reduction), Edelson, four saunas treating the 9/11 fire
> fighters, etc.
>
> All of these practitioners use or used dry conventional saunas, some
> with infrared added. I do not know of a single detox clinic, outside
> of the East Indian use of steam in Ayurvedic Medicine, that uses
> Finnish saunas wet or steamy for clinical purposes. They obviously
> could, but it's too stressful. The traditional sauna as used
> clinically is run in a relatively very moderate manner - dry and low-
> moderate temperatures.
>
> > > Do you have evidence that FIR penetrates deeply, or for the
> > > statement that it is "better" for MCS?
>
> > It is well documented in Dr Sherry Rogers' books on environmental
> > medicine, such as "Detoxify Or Die". She give published references
> > for them.
>
> Dr. Rogers' references tend to not adequately support her statements
> regarding how FIR affects people. Her statements are typically just
> wrong. I am writing a book on FIR that will hopefully correct her
> mistakes and the mistakes of many FIR promoters.
>
> > There is also a lot of research on the FIR technology from Japan.
> > They have been doing a lot of research for the past 20 years.
>
> We are having the primary source of this - the works of a Dr.
> Yamasaki, translated now. There is nothing credible to-date in
> English to support most claims for FIR's function.
>
> > The FIR frequency penetrates down to the cytoplasm in the cells.
>
> This does not actually occur (to any substantial or therapeutic
> extent).
>
> > As Dr. Rogers states, many people with MCS who can not tolerate
> > the higher temperatures of a moist sauna can tolerate the lower
> > temperature of the FIR sauna.
>
> This is typical of promotional claims that are based partially in
> truth but mostly in hype. The "moist", high temperature sauna, as
> stated, does not actually need to be either moist or high
> temperature, and, in fact, they most often should not be used that
> way for effective detox purposes.
>
> Thanks,
>
> Bob Morgan
> Owner,
> Heavenly Heat

> > Regular type saunas are only used dry in detox clinics.

> They have wet saunas (and a FIR sauna) at the Environmental Health
> Center in Dallas. I would not say "only" or implay "all" detox
> clinics.

They have 3 conventional, Finnish saunas at the EHC-D. One includes
two Heavenly Heat far-infrared backrests (in a Heavenly Hest sauna).
This sauna can basically be used as a FIR unit or a Finnish one as
desired.

These units are always used dry. The hot stones of a Finnish sauna
can potentially be moistened, but the inclusion of stones does not
make these saunas "wet". Their inclusion, though, does provide a
substantial amount of far infrared energy within the sauna.

We have provided the heaters and/or the saunas for most medical
clinics that have detoxed MCS patients with saunas: Drs.: Rea, Fox
(Nova Scotia EHC), Crinnion (head of the new EI department of SW
College of Naturopathy), Buffaloe, Patel, Root (Health Med), Gard
(Bio-Toxic Reduction), Edelson, four saunas treating the 9/11 fire
fighters, etc.

All of these practitioners use or used dry conventional saunas, some
with infrared added. I do not know of a single detox clinic, outside
of the East Indian use of steam in Ayurvedic Medicine, that uses
Finnish saunas wet or steamy for clinical purposes. They obviously
could, but it's too stressful. The traditional sauna as used
clinically is run in a relatively very moderate manner - dry and low-
moderate temperatures.

> > Do you have evidence that FIR penetrates deeply, or for the
> > statement that it is "better" for MCS?

> It is well documented in Dr Sherry Rogers' books on environmental
> medicine, such as "Detoxify Or Die". She give published references
> for them.

Dr. Rogers' references tend to not adequately support her statements
regarding how FIR affects people. Her statements are typically just
wrong. I am writing a book on FIR that will hopefully correct her
mistakes and the mistakes of many FIR promoters.

> There is also a lot of research on the FIR technology from Japan.
> They have been doing a lot of research for the past 20 years.

We are having the primary source of this - the works of a Dr.
Yamasaki, translated now. There is nothing credible to-date in
English to support most claims for FIR's function.

> The FIR frequency penetrates down to the cytoplasm in the cells.

This does not actually occur (to any substantial or therapeutic
extent).

> As Dr. Rogers states, many people with MCS who can not tolerate
> the higher temperatures of a moist sauna can tolerate the lower
> temperature of the FIR sauna.

This is typical of promotional claims that are based partially in
truth but mostly in hype. The "moist", high temperature sauna, as
stated, does not actually need to be either moist or high
temperature, and, in fact, they most often should not be used that
way for effective detox purposes.

Thanks,

Bob Morgan
Owner,
Heavenly Heat

Hi all
I am having a lot of trouble with laundry. I spent several hours in my local
laundromat doing 3 washes in a row for 3 separate machines to make sure
there were no detergent residues from previous users. I cannot wear anything
that I washed. I cannot sleep on the one sheet I have been using, so now I
am sleeping on the floor on a towel, with an old shawl for cover. This is
making my life so difficult. A friend suggested soaking the clothes in whole
milk to remove any chemicals, rinsing, and then washing again. My only
problem is the only place I can wash them again is in the laundromat!

Is there anyone in NYC who has a washing machine that is willing to let me
use their machine? The only problem is that I don't want to contaminate
anyone else's machine...I'm not sure how well the milk will remove
chemicals. Does anyone have any suggestions? I think washing everything by
hand would be very difficult for me...I have a lot of laundry now. But if I
have to, I will.

Please let me know if you can see a solution.
Thanks, Julie

I am trying to find a used copy of Lynn Marie
Bower's 2000 book "Creating a Healthy Household"  It
is out of print and not available on Amazon.  Anyone
have a used copy for sale?



__________________________________
Yahoo! Mail - PC Magazine Editors' Choice 2005
http://mail.yahoo.com

hi all
i know burning smoke of any kind is really bad for me. but is it ok to eat
smoked foods like bacon and smoked salmon? just wondering if other mcsers
have problems with that.
thanks!
julie

Hi all
Can someone recommend a GREAT naturopath in the NYC/LongIsland/Connecticut
area who has experience with MCS and Crohn's Disease/chronic intestinal
inflammation? I really need helping getting this 10+ months of inflammation
in my gut under control.

Thanks!
Julie

Hello all
Sorry for the long post but I received this email from a distraught mother
yesterday and have given her some resources but feel she needs additional
advice for immediate treatment/action. Her MCS daughter is in the hospital
on steroid IVs that make her unable to walk, surrounded by ignorant medical
personnel and an insurance company that won't pay for her stay unless the
doctor releases her. Her daughter has suffered from MCS for over 12 years
but they just discovered the term "MCS" only two weeks ago and have been
struggling in a dark void with these life threatening symptoms for years.

I have already given her an extensive list of resources for MCS, disability,
treatment centers, support groups, and protocols. If anyone has advice for
IMMEDIATE emergency action and treatment, please email Heidi Evans (the mom)
directly at heidi@... and cc me at nycwestvillage@....
She is not a member of these list groups and will not see your advice if you
post to the list.

Thanks for your help and support,
Julie


<<Hi.   I found your name on MCS-Global website...  We're in CT, but you
seem to be the closest to us.

My daughter, 24, is dying before my eyes and no one is able to help us.  I
had never heard of MCS until a few weeks ago, when my sister in Florida
emailed me to say she had read something about MCS, that it sounded like
Kim, my daughter, and I should check it out.

My daughters problems started over a dozen years ago, and have steadily
evolved.  Her first "episode" is of unknown origin.  My husband and I came
home after an evening out, and checked on Kim in bed.  She looked like she
had been beaten up.  Her face was swollen and bruised and almost
unrecognizable.  We still have no idea what caused this.  Seemed to be
allergies.  Over the next few years she would have repeated swellings in her
face for seemingly no reason.  The swelling would be so extreme that small
blood vessels burst, resulting in bruising.  She began to see an allergist
for testing and subsequently shots.  Mold, dust, etc, etc.  High school was
especially rough.  One day the swelling started in school, and a counselor
thought we were abusing Kim.  Despite Kim's protests that she was fine
before she got to school, the counselor called the authorities.  They
wouldn't believe that we had not harmed Kim, and sent someone over to visit
us at home.  The man was skeptical, despite our explanations and Kim's.  I
finally ran my finger over the top of the hutch, rubbed the dust under Kim's
nose, and told him to watch.  He said he'd never seen anything like that in
his life - in front of his eyes Kim's face began to swell and bruise.  Her
chin was always the most affected, and her lips.   The rest of high school
passed similarly; there was remodeling being done and the smell of the paint
bothered her.  This was also during the time that the local dump fumes were
being carried into the building and the town was in an uproar.  The dump was
later capped and closed, but not before we had to remove Kim from school on
a permanent basis and home school her for her senior year.

Over the next few years, after completing her allergy shots, the swelling
and bruising ceased.  Kim developed asthma instead.  We could not figure out
why, nor was there any rhyme or reason to her attacks. Exercise doesn't
affect her as one would expect, and she can just be sitting somewhere and
suddenly have an attack.  Doctors have tried to blame it on our pets, but we
point out that she's best at home.  The animals are not affecting her.
During one period of disability from work she spent a couple of months at
home, exclusively, surrounded by animals.  She was fine until the day she
left the house to go to the doctors for an appointment.

The past three years have been a nightmare, and getting progressively worse.
I'm afraid she is going to die because no one understands or can help her.

She works for a supermarket chain, mid-management.  She went months with no
problems, then was moved to another store.  Episode after episode followed -
mostly just asthma attacks.  It was decided that the ventilation system in
the store might be harboring something that bothered her, so they cleaned
it.  She was fine after that.  Kim was transferred to another store, and had
more problems.  The asthma attacks became worse, and Kim was taken out of
the store a couple of dozen times via ambulance.  As her mother, this became
very scary.  Kim started to notice that the attacks were brought on by
smells.  Perfumes are the worst.  Paint and just about anything else can
trigger this as well.

Kim has been on so many medications for so long I don't see how her system
can take much more.  This past December, during another hospitalization, she
was on massive doses of IV steroids.  After two weeks she was unable to
walk.  The doctors wanted to put her into a nursing home for rehab.  I
refused, and drove her to the Mayo Clinic in Florida, hoping to get her
accepted as a patient.  She was, but has yet to return.  I knew it was the
steroids that caused the muscle weakness; I was right.  Getting her off the
steroids saved her mobility.

She has had many close calls.  She'll leave work ok, and start to feel
"funny" on the way home. She's been stopped numerous times by law
enforcement for erratic driving and ended up in the hospital.  Her one goal
during an attack is to get home.  That's where she feels safe.  Luckily
she's never had an accident so far, but I'm sure the day will come.  When
she's at the height of an attack she's disoriented and confused.  She wants
"Mommy".  She drives around, lost, trying to find her way home.

Kim had a baby in July.  During the pregnancy she had a few episodes, but
stayed home for the most part.  Now she's back to work, and getting worse.
Three weeks ago we went out to dinner, and a man had chest pains.  The
ambulance came and took him away, but not before he had vomited.  The
cleaning solution that the staff used to clean up caused Kim to have an
attack.  I could see she wasn't going to last long, so we finished up
dinner.  We tried to get Kim outside to a car to take her to the hospital,
and she collapsed.  Then came the vomiting.  My husband and sister-in-law
stabilized her while I called for an ambulance.  (My husband and I are
EMT's, my sister-in-law is a Paramedic).  Vital signs were not good, and she
wasn't moving any air.  She was confused and disoriented.  She got to the
hospital, was kept for a few hours while she was observed, and released.
She did have one more incident while at the hospital, which was triggered by
the cleaning cart outside the door.  Oxygen, breathing treatments, steroids.
The usual.

Two weeks ago she called me from her car.  She had been to an appointment
with the baby, and the lady had perfume on.  Kim was trying to get home.
She assured me she could make it; she was two miles from the house at the
most.  I called home to alert my son (14) to look for her, and headed home.
It took me 15 minutes to get home - no Kim.  We managed to get her on her
cell phone.  She was lost.  We told her to pull over and park.  It was
another 15 minutes before we found her.  My  husband called the police to
help find her.  We found her a few miles from home on a road that is not on
the way home by any stretch of the imagination, parked as she had been
instructed.  She had no idea where she was or how she got there.  I called
the police to update them and order an ambulance.  Kim was incoherent for
the most part.  Totally out of it.  The police arrived (we got 3 cars
total).  What scared us the most was me standing there with my hand on Kim's
shoulder while she was in the drivers seat of her Jeep, and Kim babbling
that she had to call her Mommy so she wouldn't worry.  One of the officers
had oxygen, so we hooked her up to that while we waited for the ambulance.
When the ambulance arrived there was no time to wait for a paramedic
intercept, they basically loaded her and went straight to the hospital.  I
followed.  At the hospital Kim failed all the questions.  Wrong birthdate,
wrong day of the week, and so on.  She kept insisting she was late for
school.  And so on.  After some breathing treatments, iv steroids, and
oxygen she was ok to return home.

Yesterday we received a phone call from her manager at work.  He used her
cell phone to contact us.  He had found Kim wandering around, dazed and
confused and wheezing.  He admitted it seemed as though she was high on
drugs, but he knows her condition and knew that wasn't the case.  He had
called an ambulance.  He told me when she was laying down, before the
ambulance came, that her eyes rolled back in her head and she passed out for
a few moments.  According to the paramedic, her pulse was up, respirations
were up, audible wheezing, blood sugar of 64, and the scariest - pulse ox of
74. That's darn close to dead.  I met them at the hospital.  Kim was again
very confused and incoherent during most of the long ambulance ride, but
somewhat more "normal" by the time she got to the hospital.  While at the
hospital the lady in the next cubicle sprayed perfume.  Kim was later
admitted, and remains there.  She's on oxygen, breathing treatments, and iv
steroids again.  They're saying she's anemic.  No surprise.  And a bunch of
other things.  But I think they're missing the whole concept here.  "MCS" is
a figment of our imagination.  The pulmonologist that has been treating her
for two years doesn't seem to take this seriously.  He thinks steroids are
the answer.  Steroids and drugs.  Those will kill her themselves.  To keep
her breathing she requires massive doses of too many things.

She's getting progressively worse.  The memory goes.  No rational thoughts
during an attack.  "I'm late for work.  I'm late for school. I need to call
my Mommy."  And so on.  She has a baby to support, yet allowing her to work
or drive is dangerous.  She doesn't recognize her own mother, me.  (She
still lives with us)  The incidents are coming more often and are more
severe each time.  She's going to die if we can't find someone to help us!

What can I do, where can I go?  HELP!

Heidi Evans
heidi@...

Hi all
I have been developing a website for people struggling with chronic health
issues like FMS, CFS, MCS, etc. and plan to link several databases that will
be powerful tools for those with MCS. I am finding that it is outrageously
expensive to hire someone to create this for me, and so I now have to teach
myself web programming.

I am a MAC user and am looking for someone to walk me through setting up my
computer with PHP, MySQL, Apache. I have tried to enable Apache on my iBook
but was not successful and need some guidance. I have books for the actual
website and databases. I just need help getting set up properly in order to
proceed.

I hope there is someone out there willing to help me out...I have tried all
online sources of info and none of my programmer friends know Macs. I can't
afford to hire someone....am hoping this community can connect me to the
right person to help me troubleshoot the current problem with Apache and
possibly give me a brief overview of programming so I can get my bearings. I
am SO excited to get this site up and running so we ALL can benefit from it.

Thanks for any suggestions/contacts!!!
Julie Genser
MCS-Global NYC, West Village Coordinator  www.mcs-global.org

Hi Everyone;

Sherri Connell recently added these links to her site. Nice to see more
articles about the truth that homes, businesses, and churches can make
people ill.  ENJOY!

Janine

1.  Is Your Home or Business Making People Sick? www.MyIDA.org/zone.htm
2.  Is Your Church Making People Sick? www.WhereIsGod.net/zone.htm

> Regular type saunas are only used dry in detox clinics.


They have wet saunas (and a FIR sauna) at the Environmental Health
Center in Dallas. I would not say "only" or implay "all" detox clinics.

> Do you have evidence that FIR penetrates deeply, or for the
> statement that it is "better" for MCS?

It is well documented in Dr Sherry Rogers' books on environmental
medicine, such as "Detoxify Or Die". She give published references for
them. There is also a lot of research on the FIR technology from Japan.
They have been doing a lot of research for the past 20 years.

The FIR frequency penetrates down to the cytoplasm in the cells. As Dr
Rogers states, many people with MCS who can not tolerate the higher
temperatures of a moist sauna can tolerate the lower temperature of the
FIR sauna.

Donald

> Regular type saunas are only used dry in detox clinics.
>
> Do you have evidence that FIR penetrates deeply, or for the
> statement that it is "better" for MCS?
>
> Thanks, Bob.
>
> Donald wrote:
> > True, but the FIR sauna works better than the moist saunas for
> MCS. The
> > FIR sauna penetrates down to the cellular level, much deeper than
> the
> > moist saunas do, and can get rid of plastizers, pesticides, and
> heavy
> > metals, that the moist saunas don't.
>
> > > Jessica  wrote:
> > > >I wanted to get information out to those who are unaware of the
> > > > benefits of using a far-Infrared Sauna on a daily basis. If you
> > > > haven't really looked into it, I strongly advise you to do so.
>
> > > I want to add that saunas of all types, if used properly (mild
> > > conditions) can be very helpful and have been used for detox
> with MCS
> > > patients for decades.
> > > Bob.
>
>
> Donald wrote:
>
> > True, but the FIR sauna works better than the moist saunas for
> MCS. The
> > FIR sauna penetrates down to the cellular level, much deeper than
> the
> > moist saunas do, and can get rid of plastizers, pesticides, and
> heavy
> > metals, that the moist saunas don't.
> >
> > Donald
> >
> > > Jessica <jmfhealthsource@y...> wrote:
> > >
> > > >I wanted to get information out to those who are unaware of the
> > > > benefits of using a far-Infrared Sauna on a daily basis. If you
> > > > haven't really looked into it, I strongly advise you to do so.
> > >
> > > Hi,
> > >
> > > I want to add that saunas of all types, if used properly (mild
> > > conditions) can be very helpful and have been used for detox
> with MCS
> > > patients for decades.
> > >
> > > Bob.

Regular type saunas are only used dry in detox clinics.

Do you have evidence that FIR penetrates deeply, or for the
statement that it is "better" for MCS?

Thanks, Bob.

Donald wrote:
> True, but the FIR sauna works better than the moist saunas for
MCS. The
> FIR sauna penetrates down to the cellular level, much deeper than
the
> moist saunas do, and can get rid of plastizers, pesticides, and
heavy
> metals, that the moist saunas don't.

> > Jessica  wrote:
> > >I wanted to get information out to those who are unaware of the
> > > benefits of using a far-Infrared Sauna on a daily basis. If you
> > > haven't really looked into it, I strongly advise you to do so.

> > I want to add that saunas of all types, if used properly (mild
> > conditions) can be very helpful and have been used for detox
with MCS
> > patients for decades.
> > Bob.


Donald wrote:

> True, but the FIR sauna works better than the moist saunas for
MCS. The
> FIR sauna penetrates down to the cellular level, much deeper than
the
> moist saunas do, and can get rid of plastizers, pesticides, and
heavy
> metals, that the moist saunas don't.
>
> Donald
>
> > Jessica <jmfhealthsource@y...> wrote:
> >
> > >I wanted to get information out to those who are unaware of the
> > > benefits of using a far-Infrared Sauna on a daily basis. If you
> > > haven't really looked into it, I strongly advise you to do so.
> >
> > Hi,
> >
> > I want to add that saunas of all types, if used properly (mild
> > conditions) can be very helpful and have been used for detox
with MCS
> > patients for decades.
> >
> > Bob.

True, but the FIR sauna works better than the moist saunas for MCS. The
FIR sauna penetrates down to the cellular level, much deeper than the
moist saunas do, and can get rid of plastizers, pesticides, and heavy
metals, that the moist saunas don't.

Donald

> Jessica <jmfhealthsource@y...> wrote:
>
> >I wanted to get information out to those who are unaware of the
> > benefits of using a far-Infrared Sauna on a daily basis. If you
> > haven't really looked into it, I strongly advise you to do so.
>
> Hi,
>
> I want to add that saunas of all types, if used properly (mild
> conditions) can be very helpful and have been used for detox with MCS
> patients for decades.
>
> Bob.

My name is Jill, and I represent a company that manufactures harsh
chemical-free, natural household cleaning and personal care products.
You can convert your entire home and get ALL the chemicals out of your
house. They don't cost more than what you pay now, and come with a 60-
day money back guarantee.  The products are delivered monthly right to
your door.

Examples of products:  Dish detergent, Dishwasher detergent, Laundry
detergent, fabric softener, disinfectant, all-purpose cleaner,
degreaser, glass cleaner, soap, shampoo, toothpaste, body wash, etc.

For more information, please contact me at jrthrmn@....

Hi all
I went to a standard dermatologist today for my increasing eczema around my
eyes. He gave me samples for a light hydrocortisone cream called Dermatop
Ointment. It has: 1.0mg prednicarbate in a base of white petrolatum,
octyldodecanol, glyceryl oleate, propylene glycol, citric acid and propyl
gallate. He wants me to use it no more than 2 weeks.

He also gave me an OTC moisturizer: Aquaphor Healing Ointment from Eucerin.
It has: petrolatum, mineral oil, ceresin, lanolin alcohol, panthenol,
glycerin, bisabolol. I am allergic to wool so I don't know if the lanolin
would affect me....

He also recommend whole milk and water compresses for the fat content to
moisturize the area. I am allergic to milk so he said forget it. I am
wondering if avocado could do the same. I have used avocado recently on my
eyes and did not react to it...so I am wondering if I should try that
instead of the OTC moisturizer.

Any advice? Thanks Julie

Jessica <jmfhealthsource@y...> wrote:

>I wanted to get information out to those who are unaware of the
> benefits of using a far-Infrared Sauna on a daily basis. If you
> haven't really looked into it, I strongly advise you to do so.

Hi,

I want to add that saunas of all types, if used properly (mild
conditions) can be very helpful and have been used for detox with MCS
patients for decades.

Bob.

Hi all
I went to a standard dermatologist today for my increasing eczema around my
eyes. He gave me samples for a light hydrocortisone cream called Dermatop
Ointment. It has: 1.0mg prednicarbate in a base of white petrolatum,
octyldodecanol, glyceryl oleate, propylene glycol, citric acid and propyl
gallate. He wants me to use it no more than 2 weeks.

He also gave me an OTC moisturizer: Aquaphor Healing Ointment from Eucerin.
It has: petrolatum, mineral oil, ceresin, lanolin alcohol, panthenol,
glycerin, bisabolol. I am allergic to wool so I don't know if the lanolin
would affect me....

He also recommend whole milk and water compresses for the fat content to
moisturize the area. I am allergic to milk so he said forget it. I am
wondering if avocado could do the same. I have used avocado recently on my
eyes and did not react to it...so I am wondering if I should try that
instead of the OTC moisturizer.

Any advice? Thanks Julie

Hello all,
The MCS-Global Housing Team is conducting a survey so that we can prepare an
MCS-Safe Housing Guide for those just starting to contemplate a construction
project to accommodate MCS and EMF Sensitivity. If you or anyone you know
has completed a construction project for someone with MCS (Multiple Chemical
Sensitivity) or a related Environmental Illness that requires specific
non-toxic construction materials, please contact us.

This would include a new home, home remodel, mobile home, gutted/retrofitted
Airstream Trailer, RV, car, tent, or any other form of MCS-housing. Please
consider sharing your valuable experience with others suffering from this
debilitating condition.

To receive a survey, please send an email to: nycwestvillage@...

Thank you!
Julie Genser, MCS-Global Housing Team Leader
www.mcs-global.org

Hi Everyone, I am new to the group so thought I would introduce
myself, my name is Jessica.  I wanted to get information out to those
who are unaware of the benefits of using a far-Infrared Sauna on a
daily basis.  If you haven't really looked into it, I strongly advise
you to do so.  Due to toxic levels of Radiation I am currently
fighting cancer, and winning I might add!!  I started using the
saunas for pain relief after I was in a bad car accident and
continued after I was diagnosed with cancer.  They have literally
changed my life. Because of my belief in them, I recently opened up a
clinic where I do Far-Infrared Sauna Treatments, and I also have an
on-line business where I sell them. The web address is
www.SpokaneTherapy.com.
If you want to know more about them, you can go to the site and learn
more.  If you think you might be interested you can contact me by
phone or E-mail. I have really opened this business solely as a way
to help and inform other people about what these machines do, so if
your interested in getting more information on the therapy, or
purchasing a sauna, even if it's not from my company, I would be more
than happy to answer any questions you may have or send you more
information on them in the mail.
Thank you for taking the time to hear from me.
Sincerely,
Jessica @ jmfhealthsource@...

Note: forwarded message attached.




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