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#1061 From: "julie genser" <j_genser@...>
Date: Sat Oct 8, 2005 9:54 am
Subject: MCS doctors
lunagirl32002
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Has anyone tried Dr Gloria Gilbere's recommendations as outlined in I Was
Poisoned By My Body? Has anyone been treated by her? I just finished reading
her book and am intrigued to try some of the things she suggests. I would
like to try colonics but am quite nervous because I have a 20 year history
with Crohns and I don't know if there is scarring or thinning in my colon,
which could make me vulnerable to perforation with the pressure of colonic
water. Would love to hear from others on this.

Also, she recommends products and dietary changes that involve brown rice. I
have avoided grains for several years as per the Specific Carbohydrate Diet
but have had chronic intestinal inflammation for 10 months now. Maybe it's
time for a change. Any thoughts on this?

Also, has anyone been to or heard things about Dr Thomas K. Szulc in
Manhattan? My holistic dentist recommended him.

Thanks
Julie

#1060 From: "Janine Ridings" <janiner58@...>
Date: Sat Oct 8, 2005 2:07 am
Subject: A Patient's Plea
janineridings
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Hi Everyone;  I received this letter from someone with MCS who wrote it to
present to his doctor to try and educate the dr. on his condition and what
is involved. For people with MCS, I always recommend trying to find a doctor
who has some understanding of chemical sensitivity if possible, but for
those who are unable to, this letter might give some ideas on how to
approach a doctor who doesn't understand it. (I know due to insurance
limitations, etc. some people are forced to see mainstream doctors for
treatment.)

Janine

A PATIENT'S PLEA

   Dear doctor,
              I am an MCS patient.  I would like help.  Someone told me that
you were very good but I have some concerns.  You see, I have already been
to 14 other doctors, most of whom did not understand MCS.  But of the two
doctors that did understand MCS, neither one of them related to me in such a
way that I could trust them.  As you know, if we cannot trust one another,
it is hard to have a therapeutic relationship and get well.
              Please excuse before being so blunt but I would like to
communicate the following things to you before our first visit. Already I
have had to change jobs, make some special modifications to my bedroom, and
start on a diet, which is difficult to maintain. Thank you for listening to
me: not too many other people do.

    a.. Please validate my disease if you think it is real: on the other
hand, let me know if you think I am just stressed out or imagining things.
   b.. Order diagnostic tests and prescribe therapies appropriate to my level
of illness whether it be mild, moderate, severe or disabling.
    c.. Forgive me if I put too great an expectation upon physicians like
yourself: I feel desperate.  (I know that MCS is not completely understood
by scientists yet.)
    d.. Please be honest with me: let your informed consent documents be
sufficiently detailed regarding risks and benefits so that I can make a wise
decision regarding your suggested management: I don't need false hope.
    e.. Although I know that paperwork is tedious, help me make my way
through Workman's Compensation, private insurance issues, and Social
Security disability.
    f.. Charge me fairly for your services but remember that I may not be
rich: help me anticipate and budget for expenses: be open about the costs.
    g.. As you have the opportunity, please be active in communicating
through the media and in standing up for patients like me in the political
arena to help us get disability status, financial aid, safe housing, and job
accommodation.
    h.. Remember, I may not be ready for what you perceive as the best
treatment plan for me: be willing to allow me some time to get use to the
idea that I may need to embark on a radical, lifestyle changing, and
expensive program.
    i.. If I am one of the patients who doesn't get well, or perhaps who gets
worse in spite of everyone's best efforts, please do not "dump me" -- as I
come to trust you, I will understand that you really do care about me and
that you have done your best.

              Thank you for listening to my concerns.  I would like to get
well and hope that I can.  I will do my best to work with you. Thank you for
being willing to devote a good portion of your medical practice to the care
of some really difficult patients who are currently rejected in large
measure by our society.  May God bless you.

Sincerely,
Your new patient

#1059 From: "Donald E. Jacobs" <donald.jacobs6@...>
Date: Wed Oct 5, 2005 3:20 am
Subject: Re: Re: Far-Infrared Saunas help pull chemicals, including Mercury out of the body
Donald_E_Jacobs
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I detoxed high levels of mercury, as measured by an RBC mineral analysis, in less than thirty days in a FIR sauna. That's good enough for me.

Still no references for me to look at. Just idle chatter.

Donald

"Donald E. Jacobs" <donald.jacobs6@v...> wrote:

> So I say again, where is the documentation that refutes what Dr
Rogers has published. She lists her references.

> Donald

I will present more than adequate documentation in a book to be
published, hopefully, in about 4-6 months. The evidence is quite
clear.

If you were actually familiar with Dr. Rogers' referenced studies
that supposedly substantiate the superiority of the FIR sauna's
detox efficacy, as I am, you would find a lack of supportive
evidence. FIR saunas may be more efficacious for some for detox, but
to date, there simply are no published studies to support this, or
any that I know of that even address the subject!

Bob.

> > > The FIR frequency penetrates down to the cytoplasm in the
> > > cells.

> > Do you have evidence that FIR penetrates deeply, or for the
> > statement that it is "better" for MCS?

> > > It is well documented in Dr Sherry Rogers' books on
> > > environmental medicine, such as "Detoxify Or Die". She gives
> > > published references for them.

> > Dr. Rogers' references tend to not adequately support her
> > statements regarding how FIR affects people.

> > > The FIR frequency penetrates down to the cytoplasm in the
> > > cells.

> > This does not actually occur (to any substantial or therapeutic
> > extent).





#1058 From: "doverto" <rob29@...>
Date: Tue Oct 4, 2005 6:58 pm
Subject: Re: Far-Infrared Saunas help pull chemicals, including Mercury out of the body
doverto
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"Donald E. Jacobs" <donald.jacobs6@v...> wrote:

> So I say again, where is the documentation that refutes what Dr
Rogers has published. She lists her references.

> Donald

I will present more than adequate documentation in a book to be
published, hopefully, in about 4-6 months. The evidence is quite
clear.

If you were actually familiar with Dr. Rogers' referenced studies
that supposedly substantiate the superiority of the FIR sauna's
detox efficacy, as I am, you would find a lack of supportive
evidence. FIR saunas may be more efficacious for some for detox, but
to date, there simply are no published studies to support this, or
any that I know of that even address the subject!

Bob.

> > > The FIR frequency penetrates down to the cytoplasm in the
> > > cells.

> > Do you have evidence that FIR penetrates deeply, or for the
> > statement that it is "better" for MCS?

> > > It is well documented in Dr Sherry Rogers' books on
> > > environmental medicine, such as "Detoxify Or Die". She gives
> > > published references for them.

> > Dr. Rogers' references tend to not adequately support her
> > statements regarding how FIR affects people.

> > > The FIR frequency penetrates down to the cytoplasm in the
> > > cells.

> > This does not actually occur (to any substantial or therapeutic
> > extent).

#1057 From: "Donald E. Jacobs" <donald.jacobs6@...>
Date: Tue Oct 4, 2005 9:02 am
Subject: Re: Re: Far-Infrared Saunas help pull chemicals, including Mercury out of the body
Donald_E_Jacobs
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I have read a lot of  "scientific" medical articles. Often the abstract
and/or conclusion says one thing, but the data does not support the
conclusion. It is important to know the sample population and
assumptions that are being made. The articles are often published or
sponsored by a biased source.

So I say again, where is the documentation that refutes what Dr Rogers
has published. She lists her references.

Donald

> The Japanese FIR sauna texts are to be translated within the next
> two weeks.
>
> I've sold FIR saunas for 18 years and am very well aware of the
> immense levels of misinformation that is typical to promoting them.
>
> I hope to have our book published around the first of the year.
> It will address the important issues with types of saunas in a
> scientific manner.
>
> Bob.
>
>
>
> --- In detox@yahoogroups.com, "Donald E. Jacobs"
> <donald.jacobs6@v...> wrote:
> > And where is the documentation for the claims that you make?
> >
> > > > > Regular type saunas are only used dry in detox clinics.
> > >
> > > > They have wet saunas (and a FIR sauna) at the Environmental
> Health
> > > > Center in Dallas. I would not say "only" or implay "all" detox
> > > > clinics.
> > >
> > > They have 3 conventional, Finnish saunas at the EHC-D. One
> includes
> > > two Heavenly Heat far-infrared backrests (in a Heavenly Hest
> sauna).
> > > This sauna can basically be used as a FIR unit or a Finnish one
> as
> > > desired.
> > >
> > > These units are always used dry. The hot stones of a Finnish
> sauna
> > > can potentially be moistened, but the inclusion of stones does
> not
> > > make these saunas "wet". Their inclusion, though, does provide a
> > > substantial amount of far infrared energy within the sauna.
> > >
> > > We have provided the heaters and/or the saunas for most medical
> > > clinics that have detoxed MCS patients with saunas: Drs.: Rea,
> Fox
> > > (Nova Scotia EHC), Crinnion (head of the new EI department of SW
> > > College of Naturopathy), Buffaloe, Patel, Root (Health Med), Gard
> > > (Bio-Toxic Reduction), Edelson, four saunas treating the 9/11
> fire
> > > fighters, etc.
> > >
> > > All of these practitioners use or used dry conventional saunas,
> some
> > > with infrared added. I do not know of a single detox clinic,
> outside
> > > of the East Indian use of steam in Ayurvedic Medicine, that uses
> > > Finnish saunas wet or steamy for clinical purposes. They
> obviously
> > > could, but it's too stressful. The traditional sauna as used
> > > clinically is run in a relatively very moderate manner - dry and
> low-
> > > moderate temperatures.
> > >
> > > > > Do you have evidence that FIR penetrates deeply, or for the
> > > > > statement that it is "better" for MCS?
> > >
> > > > It is well documented in Dr Sherry Rogers' books on
> environmental
> > > > medicine, such as "Detoxify Or Die". She give published
> references
> > > > for them.
> > >
> > > Dr. Rogers' references tend to not adequately support her
> statements
> > > regarding how FIR affects people. Her statements are typically
> just
> > > wrong. I am writing a book on FIR that will hopefully correct her
> > > mistakes and the mistakes of many FIR promoters.
> > >
> > > > There is also a lot of research on the FIR technology from
> Japan.
> > > > They have been doing a lot of research for the past 20 years.
> > >
> > > We are having the primary source of this - the works of a Dr.
> > > Yamasaki, translated now. There is nothing credible to-date in
> > > English to support most claims for FIR's function.
> > >
> > > > The FIR frequency penetrates down to the cytoplasm in the
> cells.
> > >
> > > This does not actually occur (to any substantial or therapeutic
> > > extent).
> > >
> > > > As Dr. Rogers states, many people with MCS who can not tolerate
> > > > the higher temperatures of a moist sauna can tolerate the lower
> > > > temperature of the FIR sauna.
> > >
> > > This is typical of promotional claims that are based partially in
> > > truth but mostly in hype. The "moist", high temperature sauna, as
> > > stated, does not actually need to be either moist or high
> > > temperature, and, in fact, they most often should not be used
> that
> > > way for effective detox purposes.
> > >
> > > Thanks,
> > >
> > > Bob Morgan
> > > Owner,
> > > Heavenly Heat

#1056 From: "Kirk" <jlcgull@...>
Date: Sun Oct 2, 2005 10:05 pm
Subject: Toxic reactions and addictive response ?
querklias
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Hi
    I have a general query I hope someone may be able to help. Having read Susannah Oliver's detox manual I became aware that my inability to put the lid back on a yoghurt tub or flagon of milk etc was due to my body reacting to the food as a toxin i.e. a mild allergic reaction, which caused me to crave more and more until I was bloated. Previously I thought that reaction was my body responding a mineral or carbohydrate deficiency. The theory has been proved to my by my own experimentations, so I don't need further convincing.
    However in my odd evangelical moments I find myself on thin ground scientifically. So to get the point does anyone out there have a more scientific explanation of how this process works as I think many people misinterpret that signal and it is information worth getting out there.
 
Sorry about the long winded intro
 
 
Cheers
 
 
Kirk

#1055 From: "Janine Ridings" <janiner58@...>
Date: Fri Sep 30, 2005 6:36 pm
Subject: Photo from Pastors' Conference
janineridings
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Hi all; I just got back from the N.W. Pastors' Conference held in Stanwood,
Washington where I had a display table sharing about the needs of the
chemically sensitive and how churches can accommodate people with this
condition. There were about 600 pastors, leaders and missionaries from
places such as Montana, Missouri, Texas, Oregon, California, Washington,
Alaska, Minnesota, London, and Germany in attendance so it was a great
opportunity to educate leaders about this.  Here's a photo if you are
interested.

http://www.aromaofchrist.com/new_page_24.htm

Janine Ridings
Director/Aroma of Christ
Calvary Chapel Eastside
Bellevue, Washington
www.aromaofchrist.com

#1054 From: Lourdes Salvador <salvadorlourdes@...>
Date: Fri Sep 30, 2005 1:09 am
Subject: Study Room and Mildew
salvadorlourdes
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The school needs to change my study room and the only thing available is a seriously moldy/mildewy room, or one that smells (files??? - like mildew paper and dust).  The room is empty and they can clean it for me... but with what.  What might the smell be and would it be bad for me?  What could clean it.  I'm thinking vinegar and baking soda.  Any other suggestions or experiences?
 
Sal

#1053 From: "doverto" <rob29@...>
Date: Thu Sep 29, 2005 7:00 pm
Subject: Re: Far-Infrared Saunas help pull chemicals, including Mercury out of the body
doverto
Offline Offline
Send Email Send Email
 
The Japanese FIR sauna texts are to be translated within the next
two weeks.

I've sold FIR saunas for 18 years and am very well aware of the
immense levels of misinformation that is typical to promoting them.

I hope to have our book published around the first of the year.
It will address the important issues with types of saunas in a
scientific manner.

Bob.



--- In detox@yahoogroups.com, "Donald E. Jacobs"
<donald.jacobs6@v...> wrote:
> And where is the documentation for the claims that you make?
>
> > > > Regular type saunas are only used dry in detox clinics.
> >
> > > They have wet saunas (and a FIR sauna) at the Environmental
Health
> > > Center in Dallas. I would not say "only" or implay "all" detox
> > > clinics.
> >
> > They have 3 conventional, Finnish saunas at the EHC-D. One
includes
> > two Heavenly Heat far-infrared backrests (in a Heavenly Hest
sauna).
> > This sauna can basically be used as a FIR unit or a Finnish one
as
> > desired.
> >
> > These units are always used dry. The hot stones of a Finnish
sauna
> > can potentially be moistened, but the inclusion of stones does
not
> > make these saunas "wet". Their inclusion, though, does provide a
> > substantial amount of far infrared energy within the sauna.
> >
> > We have provided the heaters and/or the saunas for most medical
> > clinics that have detoxed MCS patients with saunas: Drs.: Rea,
Fox
> > (Nova Scotia EHC), Crinnion (head of the new EI department of SW
> > College of Naturopathy), Buffaloe, Patel, Root (Health Med), Gard
> > (Bio-Toxic Reduction), Edelson, four saunas treating the 9/11
fire
> > fighters, etc.
> >
> > All of these practitioners use or used dry conventional saunas,
some
> > with infrared added. I do not know of a single detox clinic,
outside
> > of the East Indian use of steam in Ayurvedic Medicine, that uses
> > Finnish saunas wet or steamy for clinical purposes. They
obviously
> > could, but it's too stressful. The traditional sauna as used
> > clinically is run in a relatively very moderate manner - dry and
low-
> > moderate temperatures.
> >
> > > > Do you have evidence that FIR penetrates deeply, or for the
> > > > statement that it is "better" for MCS?
> >
> > > It is well documented in Dr Sherry Rogers' books on
environmental
> > > medicine, such as "Detoxify Or Die". She give published
references
> > > for them.
> >
> > Dr. Rogers' references tend to not adequately support her
statements
> > regarding how FIR affects people. Her statements are typically
just
> > wrong. I am writing a book on FIR that will hopefully correct her
> > mistakes and the mistakes of many FIR promoters.
> >
> > > There is also a lot of research on the FIR technology from
Japan.
> > > They have been doing a lot of research for the past 20 years.
> >
> > We are having the primary source of this - the works of a Dr.
> > Yamasaki, translated now. There is nothing credible to-date in
> > English to support most claims for FIR's function.
> >
> > > The FIR frequency penetrates down to the cytoplasm in the
cells.
> >
> > This does not actually occur (to any substantial or therapeutic
> > extent).
> >
> > > As Dr. Rogers states, many people with MCS who can not tolerate
> > > the higher temperatures of a moist sauna can tolerate the lower
> > > temperature of the FIR sauna.
> >
> > This is typical of promotional claims that are based partially in
> > truth but mostly in hype. The "moist", high temperature sauna, as
> > stated, does not actually need to be either moist or high
> > temperature, and, in fact, they most often should not be used
that
> > way for effective detox purposes.
> >
> > Thanks,
> >
> > Bob Morgan
> > Owner,
> > Heavenly Heat

#1052 From: "Donald E. Jacobs" <donald.jacobs6@...>
Date: Thu Sep 29, 2005 1:09 am
Subject: Re: Re: Far-Infrared Saunas help pull chemicals, including Mercury out of the body
Donald_E_Jacobs
Offline Offline
Send Email Send Email
 
And where is the documentation for the claims that you make?

> > > Regular type saunas are only used dry in detox clinics.
>
> > They have wet saunas (and a FIR sauna) at the Environmental Health
> > Center in Dallas. I would not say "only" or implay "all" detox
> > clinics.
>
> They have 3 conventional, Finnish saunas at the EHC-D. One includes
> two Heavenly Heat far-infrared backrests (in a Heavenly Hest sauna).
> This sauna can basically be used as a FIR unit or a Finnish one as
> desired.
>
> These units are always used dry. The hot stones of a Finnish sauna
> can potentially be moistened, but the inclusion of stones does not
> make these saunas "wet". Their inclusion, though, does provide a
> substantial amount of far infrared energy within the sauna.
>
> We have provided the heaters and/or the saunas for most medical
> clinics that have detoxed MCS patients with saunas: Drs.: Rea, Fox
> (Nova Scotia EHC), Crinnion (head of the new EI department of SW
> College of Naturopathy), Buffaloe, Patel, Root (Health Med), Gard
> (Bio-Toxic Reduction), Edelson, four saunas treating the 9/11 fire
> fighters, etc.
>
> All of these practitioners use or used dry conventional saunas, some
> with infrared added. I do not know of a single detox clinic, outside
> of the East Indian use of steam in Ayurvedic Medicine, that uses
> Finnish saunas wet or steamy for clinical purposes. They obviously
> could, but it's too stressful. The traditional sauna as used
> clinically is run in a relatively very moderate manner - dry and low-
> moderate temperatures.
>
> > > Do you have evidence that FIR penetrates deeply, or for the
> > > statement that it is "better" for MCS?
>
> > It is well documented in Dr Sherry Rogers' books on environmental
> > medicine, such as "Detoxify Or Die". She give published references
> > for them.
>
> Dr. Rogers' references tend to not adequately support her statements
> regarding how FIR affects people. Her statements are typically just
> wrong. I am writing a book on FIR that will hopefully correct her
> mistakes and the mistakes of many FIR promoters.
>
> > There is also a lot of research on the FIR technology from Japan.
> > They have been doing a lot of research for the past 20 years.
>
> We are having the primary source of this - the works of a Dr.
> Yamasaki, translated now. There is nothing credible to-date in
> English to support most claims for FIR's function.
>
> > The FIR frequency penetrates down to the cytoplasm in the cells.
>
> This does not actually occur (to any substantial or therapeutic
> extent).
>
> > As Dr. Rogers states, many people with MCS who can not tolerate
> > the higher temperatures of a moist sauna can tolerate the lower
> > temperature of the FIR sauna.
>
> This is typical of promotional claims that are based partially in
> truth but mostly in hype. The "moist", high temperature sauna, as
> stated, does not actually need to be either moist or high
> temperature, and, in fact, they most often should not be used that
> way for effective detox purposes.
>
> Thanks,
>
> Bob Morgan
> Owner,
> Heavenly Heat

#1051 From: "doverto" <rob29@...>
Date: Thu Sep 29, 2005 12:40 am
Subject: Re: Far-Infrared Saunas help pull chemicals, including Mercury out of the body
doverto
Offline Offline
Send Email Send Email
 
> > Regular type saunas are only used dry in detox clinics.

> They have wet saunas (and a FIR sauna) at the Environmental Health
> Center in Dallas. I would not say "only" or implay "all" detox
> clinics.

They have 3 conventional, Finnish saunas at the EHC-D. One includes
two Heavenly Heat far-infrared backrests (in a Heavenly Hest sauna).
This sauna can basically be used as a FIR unit or a Finnish one as
desired.

These units are always used dry. The hot stones of a Finnish sauna
can potentially be moistened, but the inclusion of stones does not
make these saunas "wet". Their inclusion, though, does provide a
substantial amount of far infrared energy within the sauna.

We have provided the heaters and/or the saunas for most medical
clinics that have detoxed MCS patients with saunas: Drs.: Rea, Fox
(Nova Scotia EHC), Crinnion (head of the new EI department of SW
College of Naturopathy), Buffaloe, Patel, Root (Health Med), Gard
(Bio-Toxic Reduction), Edelson, four saunas treating the 9/11 fire
fighters, etc.

All of these practitioners use or used dry conventional saunas, some
with infrared added. I do not know of a single detox clinic, outside
of the East Indian use of steam in Ayurvedic Medicine, that uses
Finnish saunas wet or steamy for clinical purposes. They obviously
could, but it's too stressful. The traditional sauna as used
clinically is run in a relatively very moderate manner - dry and low-
moderate temperatures.

> > Do you have evidence that FIR penetrates deeply, or for the
> > statement that it is "better" for MCS?

> It is well documented in Dr Sherry Rogers' books on environmental
> medicine, such as "Detoxify Or Die". She give published references
> for them.

Dr. Rogers' references tend to not adequately support her statements
regarding how FIR affects people. Her statements are typically just
wrong. I am writing a book on FIR that will hopefully correct her
mistakes and the mistakes of many FIR promoters.

> There is also a lot of research on the FIR technology from Japan.
> They have been doing a lot of research for the past 20 years.

We are having the primary source of this - the works of a Dr.
Yamasaki, translated now. There is nothing credible to-date in
English to support most claims for FIR's function.

> The FIR frequency penetrates down to the cytoplasm in the cells.

This does not actually occur (to any substantial or therapeutic
extent).

> As Dr. Rogers states, many people with MCS who can not tolerate
> the higher temperatures of a moist sauna can tolerate the lower
> temperature of the FIR sauna.

This is typical of promotional claims that are based partially in
truth but mostly in hype. The "moist", high temperature sauna, as
stated, does not actually need to be either moist or high
temperature, and, in fact, they most often should not be used that
way for effective detox purposes.

Thanks,

Bob Morgan
Owner,
Heavenly Heat

#1050 From: "julie genser" <j_genser@...>
Date: Tue Sep 27, 2005 7:31 pm
Subject: laundry in NYC--Help!
lunagirl32002
Offline Offline
Send Email Send Email
 
Hi all
I am having a lot of trouble with laundry. I spent several hours in my local
laundromat doing 3 washes in a row for 3 separate machines to make sure
there were no detergent residues from previous users. I cannot wear anything
that I washed. I cannot sleep on the one sheet I have been using, so now I
am sleeping on the floor on a towel, with an old shawl for cover. This is
making my life so difficult. A friend suggested soaking the clothes in whole
milk to remove any chemicals, rinsing, and then washing again. My only
problem is the only place I can wash them again is in the laundromat!

Is there anyone in NYC who has a washing machine that is willing to let me
use their machine? The only problem is that I don't want to contaminate
anyone else's machine...I'm not sure how well the milk will remove
chemicals. Does anyone have any suggestions? I think washing everything by
hand would be very difficult for me...I have a lot of laundry now. But if I
have to, I will.

Please let me know if you can see a solution.
Thanks, Julie

#1049 From: cherielj@...
Date: Sat Sep 24, 2005 3:45 am
Subject: Choline in Chronic Fatigue Syndrome
cherielj@...
Send Email Send Email
 



CFS PHOENIX
A Laymen's Guide to Choline in Chronic Fatigue Syndrome
Part I: Choline on the Brain?

By Cort Johnson
This paper largely follows the outline of a paper by Chaudhuri and Behan that examined magnetic resonance studies on CFS (Chaudhuri and Behan 2004).


Brain Metabolic Activity in CFS -. Three studies have examined metabolic functioning in the brain using proton magnetic spectroscopy (MRS) (Chaudhuri et. al. 2003, Tomoda et. al. 2000, Puri et. al. 2002). The levels of three metabolites (N-acetyl aspartate (NAA), choline, creatine) in the brain are examined using this technique.
Puri’s study found that CFS patients (a) have significantly higher levels of choline in the occipital region of the brain than do controls and (b) exhibit an abnormal choline gradient between the motor and occipital cortex (Puri et. al. 2002). Chaudhuri’s study found increased choline levels in the basal ganglia (Chaudhuri et. al. 2003). A very small study (n=3) examining adolescents with CFS also found increased choline levels in the basal ganglia as well (Tomoda et. al. 2001). Three studies then, all of them small, but most with highly significant findings (p<.05, p<.001, p<.008) have found increased brain choline levels mostly in the basal ganglia. Normal NAA levels in two studies indicated neuronal mass was not disturbed.
The Basal Ganglia - The basal ganglia are large masses of gray matter at the base of the cerebral hemisphere; i.e. they are near the base of the skull where it meets the spinal column. They provide a nexus for interactions combining limbic/motor activities with volition; i.e. they play a key role in internal motivational states. How they function can effect our perception of effort.
The limbic system is a collective term that denotes an array of interconnected brain structures (hippocampus, amygdale, fornicate gyrus) at or near the edge (limbus) of the cerebral hemisphere that connect with the hypothalamus. By way of these connections, the limbic system exerts an important influence upon the endocrine and autonomic motor systems and appears to effect motivation and mood.
Basal ganglia dysfunction often causes problems with ‘tasking’. Sequential task processing, for instance, an important process used in initiating and following through complex tasks, is often impaired. The ‘reward’ system which provides motivational impulses that in turn stimulate other parts of the brain is also often disrupted. Since the brain has trouble carrying information from one stage to the next then doing tasks, especially complex ones, can become very labor intensive and highly effortful.
A disease called akinesia which is defined as "poverty and slowness in willful movements" can also occur because of basal ganglia disease. It is believed to result from the inability of the brain to respond to environmental cues such as sight, sound and touch.
Choline - is found in three forms in humans; phosphatidycholine (lecithin), acetylcholine and cytidine diphosphocholine. Most of the choline in the body is found in specialized fat cells called phospholipids that are abundant in the membranes of cells. Choline in used in the synthesis of three components in cell membranes; phospholipids, phosphatidycholine (lecithin) and sphingomyelin.
Causes of increased brain choline production - Elevated brain choline levels are usually associated with increased cell production (malignant tumors) and/or increased cell membrane turnover due to inflammation or ischemia (Chaudhuri et. al. 2003). Immune cell activation by macrophages and/or neuronal astrocytes has been shown to produce choline peaks in AIDS patients. Accumulations of neutrophils, lymphocytes and macrophages have also been associated with high choline peaks in patients with non-malignant tumors of the brain (Cummings et al. 2000).
Areas of inflammation and cell death are readily observed on MRI’s. Two MRI studies, however, have found no indication that either are present in the basal ganglia of CFS patients. Apparently whatever is causing the increased choline levels is not activating the immune system. Nor have systematic metabolic studies on lipid and peroxisomal function indicated systemic abnormalities in phospholid metabolism. Given these findings the authors suggest the changes seen are due to local changes in the lipid composition of the membranes of the nerves that could be due to reparative gliosis or altered ‘intramembranal signaling’ (Chaudhuri et. al. 2003).
Glial cells are non-neuronal components of the central nervous system that closely interact with neurons. Consisting of astrocytes, oligodendroctyes and microglia cells, they play an important role in neuroprotection. Through their detoxification of glutamate they confer protection against glutamate toxicity. Glial cells also secrete trophic factors that appear to protect against cerebral ischemia. Through their ability to siphon off excess potassium from neurons they regulate potassium levels.
Most glial cells are astrocytes that surround the ends of the synapses and border endothelial cells in the capillaries. They help shuffle nutrients and metabolites from the blood into the neurons and play an important role in regulating the extracellular concentrations of ions, metabolites and neurotransmitters and in supporting neuronal functioning. Olidgodendrocytes form myelin, an substance involved in the propagation of the action potential involved in nerve impulse transmission. Continual monitors of the microenvironment, microglia rapidly react to pathological changes in their microenviroment with cytokine and/or trophic factor production (Hansson and Ronnback 2003).
Reparative gliosis or glial cell activation often occurs in response to tissue injury in the brain. Activated glial cells such (as astrocytes and the microgla) produce several cytokines (IL-1, S100B) that appear to ameliorate, at least at first, neuronal damage. Chronic glial cell activation appears to cause a cascade of events that eventuate in neurodegneration. Gial activation and cytokine production have been implicated in the progression of Alzheimers disease, for instance (Mrak and Griffin 1997). Some evidence suggests that glial activation increases the risk of Alzheimer’s, as does interestingly, head trauma. While transient glial activation occurs in many viral encephalopathies, chronic glial cell activation occurs, for reasons that are not yet known, occurs in AIDS (Mrak and Griffin 1997). Mrak and Griffin's suggestion that neurodegeneration could 'persist or progress even following successful eradication of the virus'  is intriguing given the viral-like presentation of symptoms often initially seen in CFS. Somewhat ominously they question whether chronic glial activation may place one at risk for Alzheimer's (Mrak and Griffin 1997). 
Levels of a substance produced by astrocytes, granulocyte/macrophage colony stimulating factor (GM-CSF), were significantly lower in the spinal fluid of CFS patients (Natelson et. al. 2005). Reduced levels of this factor, which plays a role in granulocyte and macrophage development and the inflammatory process, could signal a hole in the immune defenses through which bacteria, in particular, could slip. It is intriguing that choline upregulation occurs in CFS patients without evidence of inflammation. Some not well informed speculation might question whether the lack of inflammatory response in the face of reparative gliosis could be due to reduced levels of GM-CSF?  (It is clear that normal inflammatory processes do not occur always occur in the brain but I am unclear if reparative gliosis often occurs without signs of inflammation (???); i.e. is the situation in CFS of no inflammation but increased choline levels unusual?).
Interestingly glial cells are the main source of a growth factor in the brain of a cytokine, transforming growth factor beta, (TBG-b), that is increased in the PBMC’s or serum of CFS patients (Peterson et. al. 1994, Bennett et. al. 2000, Kennedy et. al. 2004). TBG-b activity in the brain appears to contribute to further neurodegeneration (Borlongan et. al. 2000).

An ATP Connection? – Chaudhuri and Behan suggest there may be a connection between the high brain choline levels and reduced ATP production. Evidence of impaired ATP production in two subsets of CFS patients and in another fatigue syndrome suggests reduced ATP production exists in at least some CFS patients.
A few small studies using magnetic resonance spectroscopy have found that at least a subset of CFS patient’s exhibit significantly reduced skeletal muscle exercise capacity that is accompanied by an early onset of intracellular acidification. In the one larger study (n=46) twenty percent of CFS patients had reduced phosphocreatine (PCr) /ATP ratios and higher levels of ADP upon exercise.
When energy is released ATP is transformed into ADP. Since higher rates of ADP imply higher ATP utilization – this study appears to indicate that CFS patients are using up ATP faster than normal. The breakdown of PCr furnishes the phosphate needed for the resynthesis of ATP from ADP. Thus low PCr ratios indicate that less phosphate is available to resynthesize ATP. Thus not only are some CFS patients using up ATP faster than normal they appear to be less able than normal to resynthesize ATP.
Two other studies have found reduced ATP concentrations during exercise and reduced PCr recovery during exercise in CFS. The common component to all these studies appears to be reduced availability of ATP probably because of increased breakdown of ATP; i. e. increased energy utilization in CFS patients. Intriguingly, Chaudhuri and Behan have also reported significantly increased resting energy expenditure (REE) levels in CFS patients.
CFS is not the only fatigue ‘syndrome’ that appears to be associated, at least in part, with reduced ATP levels. Cardiac syndrome X (CSX) is characterized by cardiac angina pain, a normal angiogram and in a significant portion of long term patients fatigue, muscle pain and exercise intolerance. CSX is believed caused by reduced ATP levels in the cardiac cells. Twenty percent of CSX patients in a recent study exhibited PCr/ATP ratios in cardiac muscle similar to those found in the skeletal muscles of CFS patients.
Intriguingly a thallium cardiac scan of CFS patients indicated that CFS patients may display cardiac cell abnormalities similar to those found in CSX (Watson et. al. 1997). High outflows of cellular potassium may be responsible for the defects in thallium tracer distribution in the left ventricles of CFS patients (Watson et. al. 1997, Chaudhuri et. al. 2003). An interesting finding given Dr. Cheney’s focus on energy production in the hearts of CFS patients.
Putting It All Together – CFS is a Disease of Increased Phospholipase (PLA) Activity - Chaudhuri and Behan suggest increased choline levels contribute to cognitive dysfunction (effortful task processing) and reduced ATP levels impair aerobic metabolism and contribute to the exercise intolerance seen in CFS. What might increased brain choline and decreased ATP production have in common? Chaudhuri and Behan believe reduced muscle ATP levels and increased brain choline levels are due to increased phospholipase (PLA) activity. This appears to suggest they believe increased PLA activity occurs not just in the brain but is systemwide. Since PLA is ubiquitous in the body increased PLA activity could affect a wide variety of tissues.
Phospholipases (PLA’s) – are a superfamily of esterases that release phospholipids ‘moieties’ (fractions) including choline when they hydrolyze (break) the ester bonds in the lipids in membranes in an ATP driven process. Phospholipids in the CNS cell membranes are high in polyunsaturated fatty acids (PUFA’s) and PUFA metabolism is ‘stringently controlled’ by PLA2 (and acetyltransferase). Normally when fatty acids are released by PLA2 they are rapidly taken up by membrane phospholipids by an energy dependent mechanism using CoA and ATP.
Phospholipase activity releases factors that exert widely varying effects in the cell. Phospholipids play a key role in regulating the release of arachidonic acid, the precursor of eicocanisoid synthesis. The eicocansoids (prostaglandins, thromboxanes, leukotrienes) mediate (trigger) the inflammatory process. A marker of cellular injury, the inflammatory process begins with the release of AA. AA is broken up to produce pro-inflammatory mediators such as prostaglandins (COX 1, 2) and leukotrienes. Prostaglandins then combine with cellular receptors to initiate signaling cascades which utilize G-proteins and cyclic CMP (cAMP) to produce pro-inflammatory substances.
PLA2 activity has been implicated in the pathology of a number of neurodegenerative diseases including Alzheimer’s and is thought to play a role in neuronal plasticity (Sun et. al. 2004). The activation of the P2Y nucleotide receptor on astrocytes triggers ‘reactive gliosis’, a process implicated in these neurodegenerative diseases and which may be occurring in CFS.
Another type of phospholipase, PLD2, also liberates choline from cell membranes. PLD2 is also known as choline phospholipase. Some of the choline released is used to make acetylcholine, a key neurotransmitter. One form of PLD2 appears to be localized in the caveolar domains of plasma membranes that viruses often use to penetrate the cell.
TRIGGERING PHOSPHOLIPASE ACTIVITY - Why phospholipase activity would be increased in CFS patients is unclear. CFS patients appear to be subject, however, to several factors (infection, increased neurotransmitter/ cytokine levels, oxidative stress, neurotoxins) that could trigger phospholipase activity. Chaudhuri et. al. note that infection and/or neurotoxins can produce prolonged changes in membrane functioning (Chaudhuri et. al. 2003). The authors suggest the adaptation of the host cell to either a pathogen or its exotoxin (neurotoxin) could result in a long term derangement of the membranes.
Viruses – Viruses can induce phospholipase activation and the release of lipids including choline by effecting membrane permeability. Indeed, many bacteria, viruses and parasites utilize lipid rich membrane domains as routes of entry into the cell. Does the lack of immune activation (inflammation) in the brains of CFS patients suggests either an ongoing pathogenic attack is not involved or that it occurs without evoking an immune response (?). The possibility that a neurogenic pathogen could trigger PLA activity immediately brings up the question of two viruses, HHV6 and EBV, that have been historically linked with CFS.

HHV6 – infects the very cells Chaudhuri and Behan suggest may be producing the choline peaks in CFS. The HHV6 foundation suggests HHV6 activity in the glial cells could cause fatigue by altering ion channel function. A very high percentage of CFS patients test positive for ciguatoxin, a marker of ion channel dysfunction (Hokama et. al. ).
HHV6 is ubiquitous in the human population; almost everyone has been exposed to it by third year. The lack of an antigenic response to HHV6 in healthy controls suggests it remains in its latent state most of the time. In vitro studies indicate HHV6 is able to infect a number of nervous system cells including neurons, astrocytes, oligodendrocytes, microglial cells). Astrocytes, in particular, appear to function as latent reservoirs for the virus. Antigenic responses to HHV6 in MS and a type of encephalitis indicates HHV6 reactivation occurs in some neurological disorders. PCR analysis has indicated HHV6 is present in encephalitis, meningitis, febrile seizure and encephalopathy. HHV6 reactivation occurs in two neurological diseases, multiple sclerosis (MS) and Guillain-Barre syndrome, in which fatigue is a prominent symptom (Dewhurst 2004).
Two variants of HHV6 exist, HHV6A – which has not been clearly associated with any disease, and HHV6-B – which is responsible for most of the symptomatic infections in childhood. HHV6A appears to occur more commonly in central nervous system (CNS) tissues than HHV6-B (Dewhurst 2004).
The history of HHV6 and CFS is decidedly mixed. Once thought to be a key factor in CFS, after many studies HHV6 activation is generally now thought not to play a major role in CFS. Questions regarding the efficacy of most HHV6 testing procedures in establishing the presence of an active population have, however, left a window open for HHV6’s possible re-emergence as a vital research topic in CFS. The HHV6 foundation asserts that only early antigen testing of HHV6 is effective in CFS.
Epstein-Barr Virus (EBV) – EBV has an even more tortured history with CFS than does HHV6. Once thought possibly to be the cause of CFS EBV is now considered only to be an opportunistic infection. Recent studies indicate that as with HHV6 late antigen testing for antigens found on the surface of EBV may miss substantial numbers of CFS patients who contain a virus that is active but fails to replicate. Although replication is never achieved the virus is nevertheless able to produce enzymes that negatively affect the body (Glaser et. al. 2005). Since the inability of the immune system to recognize these enzymes could result in a pathogenic process unaccompanied by immune activation. Could this explain the lack of inflammation in the brains of CFS patients?
Oxidative stress – Studies indicate increased free radical production occurs in neurodegenerative disorders. Autopsies indicate the brains of people with neurodegenerative diseases (Alzheimer’s, Parkinson’s, ALS, Huntington’s, etc.) display signs of oxidative damage. Whether this damage is the causal in nature or simply a common endpoint of a chronic disease process has been a source of controversy (Klein and Ackerman 2003).
Melatonin, a free radical scavenger, has been an effective neuroprotector in rodents exposed to oxidative stresses (Borlongan et. al. 2000). One theory suggests increased levels of oxidants or (neuro)toxins can rearrange the position of lipids in membranes so that their ester bonds are more accessible to PLA attack.
Cytokines - Cytokines such as IL-1 and TNF-a and lipopolysaccharides (LPS) and neuronal components such as NMDA, glutamate and muscarinic cholinergic enhancers (agonists) can all trigger PLA2 release.
Others- Neurotransmitters and growth factors can also trigger PLA activity.
Treatment recommendation - Because oxidative stress can trigger phospholipase activity the authors recommend the use of highly unsaturated fatty acids (HUFA’s) in CFS.
Ongoing Research - The CFIDS Association of America (CAA) is currently funding two studies that may help; one uses hydrogen magnetic resonance spectroscopy to examine neurometabolites in the brains of CFS patients; the other examines the levels of a cytokine, IL-6, known to activate the SNS. Eye On The CAA.
Summary – The researchers suggest increased choline levels seen in the brains of CFS patients occur when pathogenic (or other) insults on the cell membranes in the brain trigger phospholipase activity and choline release. Increased choline levels in a part of the brain involved in task processing and motor activities (movement) could account for the fatigue associated with mental effort and movement found in CFS. Reduced ATP levels due to high phospholipase activity in the muscles could also contribute to the exercise intolerance seen in CFS. Several processes that appear to be upregulated in CFS (cytokine production, oxidative stress) could trigger phospholipase activity.
The very small sample sizes in the studies noted automatically raises a red flag; too many small apparently significant studies of CFS patients have failed the test of replication. It is encouraging, however, when independent study groups, no matter how small their sample sizes, find similar results in two different areas of the brain. _____________________________________
Bell, D. 2005. Noted in Lyndonville News Vol 2, No. 2.
Bennett AL, Chao CC, Hu S, Buchwald D, Fagioli LR, Schur PH, Peterson PK, Komaroff AL. 1997. Elevation of bioactive transforming growth factor-beta in serum from patients with chronic fatigue syndrome. J Clin Immunol.17(2):160-6.
Borolongan, C., Yamamoto, M., Takei, N., Kumazaki, M., Ungsuparkorn, C., Hida, H., Sanberg, P. and H. Nishino. 2000. Glial cell survival is enhanced during melatonin-induced neuroprotection agains cerebral ischemia. FASEB J. 14: 1307-1317.
Cummings, B., Mchowat, J. and r. Schnellmann. 2000. Phospholipase A2s in cell injury and death. Journal of Pharmacology and experimental therapeutics 294: 793-799.
Chaudhuri, A. and P. Behan. 2000. Fatigue and basal ganglia. Journal of Neurological Sciences 179: 34-42.
Chaudhuri, A,. Condon, B., Gow, J., Brennan, D. and D. Hadley. 2003. Proton magnetic resonance spectroscopy of basal ganglia in chronic fatigue syndrome. Brain Imaging 14: 225-228.
Chaudhuri, A., and P. Behan. 2004. In vivo magnetic resonance spectroscopy in chronic fatigue syndrome. Prostaglandins, Leukotrienes and Essential Fatty Acids 71: 181-183.
Chaudhuri, A. and P. Behan. 2004. Fatigue in neurological disorders. Lancet 363: 978-988.
Dewhurst, S. 2004. Human herpesvirus Type 6 and human herpesvirus type 7 infections of the central nervous system. Herpes 11, 105A-111A.
Filippi, M., Rocca, M., Falini, A., Codella, M., Scotti, G. and G. Comi. 2002. Functional magnetic resonance imaging correlates of fatigue in multiple sclerosis. Neuroimage 15: 559-567.
Glaser, R., Padgett, D., Litsky, M., Baiocchi R., Yang, E., Chen, M., Yeh, P., Klimas, N., Marshall, G., Whiteside, T., Herberman, R., Kiecolt-Glaser, J., and M. Williams. 2005. Stress-associated changes in the steady-state expression of latent Epstein-Barr virus; implications for Chronic Fatigue Syndrome and cancer. Brain, Behavior and Immunity 19: 91-103.
Hansson, E. and L. Ronnback. 2003. Glial neuronal signaling in the central nervous system. FASEB 17, 341-348.
Hokama, Y., Uto, G., Palafox, N. A., Enlander, D., Jordan, E. and A. Cocchetto 2003. Chronic Phase Lipids in Sera of Chronic Fatigue Syndrome (CFS), Chronic Ciguatera Fish Poisoning (CCFP), Hepatitis B, and Cancer With Antigenic Epitope Resembling Ciguatoxin, as Assessed With MAb-CTX. Journal of Clinical Laboratory Analysis 17:132–139.
Kennedy G, Spence V, Underwood C, Belch JJ. 2004. Increased neutrophil apoptosis in chronic fatigue syndrome. J Clin Pathol.57(8):891-3.
Klein, J and S. Ackerman. 2003. Oxidative stress, cell cycle and neurodegeneration. The Journal of Clinical Investigation 111: 785-793.
Mrak, R. E. and S. Griffin. 1997. The role of chronic self-propagating glial response in neurodegeneration: implications for long-lived survivors of human deficiency virus. Journal of NeuroVirology 3: 241-246.
Natelson B., Weaver, S., Tseng, S. and  J. Ottenweiler. 2005.  et. al. 2004. Spinal fluid abnormalities in patients with chronic fatigue syndrome. Clinical Laboratory Diagnostic Technology 12, 52-55.
Overstreet, D. and V. Djuric. A genetic rat model of cholinergic hypersensitivity: implications for chemical intolerance, chronic fatigue and asthma. Annals of New York Academy of Sciences 92-103.
Peterson PK, Sirr SA, Grammith FC, Schenck CH, Pheley AM, Hu S, Chao CC. 1994. Effects of mild exercise on cytokines and cerebral blood flow in chronic fatigue syndrome patients. Clin Diagn Lab Immunol. 1(2):222-6.
Puri, B., Counsell, S., Zaman, R., Main, J., Collins, A., Hajnal, J. and N. Davey. 2002. Relative increase in choline in the occipital cortex in chronic fatigue syndrome. Acta Psychiatrica Scandanavia 106: 224-226.
Scheean, G., Murray, N., Rothwell, J., Miller, D. and A. Thompson. 1997. An electrophysiological study of the mechanism of fatigue in multiple sclerosis. Brain 120: 299-315.
Sun, G., Jianfeng, W., Jensen, M. and A. Simonyi. 2004. Phospholipase A2 in the central nervous system: implications for neurodegenerative disease. J. Lipid Research 45: 205-213.
Tomoda A, Miike T, Yamada E, Honda H, Moroi T, Ogawa M, Ohtani Y, Morishita S. 2000. Chronic fatigue syndrome in childhood. Brain Dev 22 :60-4.
Tomoda A, Joudoi T, Rabab el-M, Matsumoto T, Park TH, Miike T. 2005. Cytokine production and modulation: comparison of patients with chronic fatigue syndrome and normal controls. Psychiatry Res. 2005 Mar 30;134(1):101-4
Watson WS, McCreath GT, Chaudhuri A, Behan P. Possible cell membrane transport defect in chronic fatigue syndrome? Journal of Chronic Fatigue Syndrome 1997; 3(3): 1-13.


#1048 From: Clean Jean <cleanjean705@...>
Date: Fri Sep 23, 2005 11:09 pm
Subject: book search
cleanjean705
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I am trying to find a used copy of Lynn Marie
Bower's 2000 book "Creating a Healthy Household"  It
is out of print and not available on Amazon.  Anyone
have a used copy for sale?



__________________________________
Yahoo! Mail - PC Magazine Editors' Choice 2005
http://mail.yahoo.com

#1047 From: "julie genser" <j_genser@...>
Date: Tue Sep 20, 2005 12:30 am
Subject: smoked food
lunagirl32002
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hi all
i know burning smoke of any kind is really bad for me. but is it ok to eat
smoked foods like bacon and smoked salmon? just wondering if other mcsers
have problems with that.
thanks!
julie

#1046 From: "julie genser" <j_genser@...>
Date: Sun Sep 18, 2005 2:14 pm
Subject: need naturopath recommendation
lunagirl32002
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Hi all
Can someone recommend a GREAT naturopath in the NYC/LongIsland/Connecticut
area who has experience with MCS and Crohn's Disease/chronic intestinal
inflammation? I really need helping getting this 10+ months of inflammation
in my gut under control.

Thanks!
Julie

#1045 From: "julie genser" <j_genser@...>
Date: Fri Sep 16, 2005 3:13 pm
Subject: MCS 24 yr old daughter on the brink of death...need advice ASAP
lunagirl32002
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Hello all
Sorry for the long post but I received this email from a distraught mother
yesterday and have given her some resources but feel she needs additional
advice for immediate treatment/action. Her MCS daughter is in the hospital
on steroid IVs that make her unable to walk, surrounded by ignorant medical
personnel and an insurance company that won't pay for her stay unless the
doctor releases her. Her daughter has suffered from MCS for over 12 years
but they just discovered the term "MCS" only two weeks ago and have been
struggling in a dark void with these life threatening symptoms for years.

I have already given her an extensive list of resources for MCS, disability,
treatment centers, support groups, and protocols. If anyone has advice for
IMMEDIATE emergency action and treatment, please email Heidi Evans (the mom)
directly at heidi@... and cc me at nycwestvillage@....
She is not a member of these list groups and will not see your advice if you
post to the list.

Thanks for your help and support,
Julie


<<Hi.   I found your name on MCS-Global website...  We're in CT, but you
seem to be the closest to us.

My daughter, 24, is dying before my eyes and no one is able to help us.  I
had never heard of MCS until a few weeks ago, when my sister in Florida
emailed me to say she had read something about MCS, that it sounded like
Kim, my daughter, and I should check it out.

My daughters problems started over a dozen years ago, and have steadily
evolved.  Her first "episode" is of unknown origin.  My husband and I came
home after an evening out, and checked on Kim in bed.  She looked like she
had been beaten up.  Her face was swollen and bruised and almost
unrecognizable.  We still have no idea what caused this.  Seemed to be
allergies.  Over the next few years she would have repeated swellings in her
face for seemingly no reason.  The swelling would be so extreme that small
blood vessels burst, resulting in bruising.  She began to see an allergist
for testing and subsequently shots.  Mold, dust, etc, etc.  High school was
especially rough.  One day the swelling started in school, and a counselor
thought we were abusing Kim.  Despite Kim's protests that she was fine
before she got to school, the counselor called the authorities.  They
wouldn't believe that we had not harmed Kim, and sent someone over to visit
us at home.  The man was skeptical, despite our explanations and Kim's.  I
finally ran my finger over the top of the hutch, rubbed the dust under Kim's
nose, and told him to watch.  He said he'd never seen anything like that in
his life - in front of his eyes Kim's face began to swell and bruise.  Her
chin was always the most affected, and her lips.   The rest of high school
passed similarly; there was remodeling being done and the smell of the paint
bothered her.  This was also during the time that the local dump fumes were
being carried into the building and the town was in an uproar.  The dump was
later capped and closed, but not before we had to remove Kim from school on
a permanent basis and home school her for her senior year.

Over the next few years, after completing her allergy shots, the swelling
and bruising ceased.  Kim developed asthma instead.  We could not figure out
why, nor was there any rhyme or reason to her attacks. Exercise doesn't
affect her as one would expect, and she can just be sitting somewhere and
suddenly have an attack.  Doctors have tried to blame it on our pets, but we
point out that she's best at home.  The animals are not affecting her.
During one period of disability from work she spent a couple of months at
home, exclusively, surrounded by animals.  She was fine until the day she
left the house to go to the doctors for an appointment.

The past three years have been a nightmare, and getting progressively worse.
I'm afraid she is going to die because no one understands or can help her.

She works for a supermarket chain, mid-management.  She went months with no
problems, then was moved to another store.  Episode after episode followed -
mostly just asthma attacks.  It was decided that the ventilation system in
the store might be harboring something that bothered her, so they cleaned
it.  She was fine after that.  Kim was transferred to another store, and had
more problems.  The asthma attacks became worse, and Kim was taken out of
the store a couple of dozen times via ambulance.  As her mother, this became
very scary.  Kim started to notice that the attacks were brought on by
smells.  Perfumes are the worst.  Paint and just about anything else can
trigger this as well.

Kim has been on so many medications for so long I don't see how her system
can take much more.  This past December, during another hospitalization, she
was on massive doses of IV steroids.  After two weeks she was unable to
walk.  The doctors wanted to put her into a nursing home for rehab.  I
refused, and drove her to the Mayo Clinic in Florida, hoping to get her
accepted as a patient.  She was, but has yet to return.  I knew it was the
steroids that caused the muscle weakness; I was right.  Getting her off the
steroids saved her mobility.

She has had many close calls.  She'll leave work ok, and start to feel
"funny" on the way home. She's been stopped numerous times by law
enforcement for erratic driving and ended up in the hospital.  Her one goal
during an attack is to get home.  That's where she feels safe.  Luckily
she's never had an accident so far, but I'm sure the day will come.  When
she's at the height of an attack she's disoriented and confused.  She wants
"Mommy".  She drives around, lost, trying to find her way home.

Kim had a baby in July.  During the pregnancy she had a few episodes, but
stayed home for the most part.  Now she's back to work, and getting worse.
Three weeks ago we went out to dinner, and a man had chest pains.  The
ambulance came and took him away, but not before he had vomited.  The
cleaning solution that the staff used to clean up caused Kim to have an
attack.  I could see she wasn't going to last long, so we finished up
dinner.  We tried to get Kim outside to a car to take her to the hospital,
and she collapsed.  Then came the vomiting.  My husband and sister-in-law
stabilized her while I called for an ambulance.  (My husband and I are
EMT's, my sister-in-law is a Paramedic).  Vital signs were not good, and she
wasn't moving any air.  She was confused and disoriented.  She got to the
hospital, was kept for a few hours while she was observed, and released.
She did have one more incident while at the hospital, which was triggered by
the cleaning cart outside the door.  Oxygen, breathing treatments, steroids.
The usual.

Two weeks ago she called me from her car.  She had been to an appointment
with the baby, and the lady had perfume on.  Kim was trying to get home.
She assured me she could make it; she was two miles from the house at the
most.  I called home to alert my son (14) to look for her, and headed home.
It took me 15 minutes to get home - no Kim.  We managed to get her on her
cell phone.  She was lost.  We told her to pull over and park.  It was
another 15 minutes before we found her.  My  husband called the police to
help find her.  We found her a few miles from home on a road that is not on
the way home by any stretch of the imagination, parked as she had been
instructed.  She had no idea where she was or how she got there.  I called
the police to update them and order an ambulance.  Kim was incoherent for
the most part.  Totally out of it.  The police arrived (we got 3 cars
total).  What scared us the most was me standing there with my hand on Kim's
shoulder while she was in the drivers seat of her Jeep, and Kim babbling
that she had to call her Mommy so she wouldn't worry.  One of the officers
had oxygen, so we hooked her up to that while we waited for the ambulance.
When the ambulance arrived there was no time to wait for a paramedic
intercept, they basically loaded her and went straight to the hospital.  I
followed.  At the hospital Kim failed all the questions.  Wrong birthdate,
wrong day of the week, and so on.  She kept insisting she was late for
school.  And so on.  After some breathing treatments, iv steroids, and
oxygen she was ok to return home.

Yesterday we received a phone call from her manager at work.  He used her
cell phone to contact us.  He had found Kim wandering around, dazed and
confused and wheezing.  He admitted it seemed as though she was high on
drugs, but he knows her condition and knew that wasn't the case.  He had
called an ambulance.  He told me when she was laying down, before the
ambulance came, that her eyes rolled back in her head and she passed out for
a few moments.  According to the paramedic, her pulse was up, respirations
were up, audible wheezing, blood sugar of 64, and the scariest - pulse ox of
74. That's darn close to dead.  I met them at the hospital.  Kim was again
very confused and incoherent during most of the long ambulance ride, but
somewhat more "normal" by the time she got to the hospital.  While at the
hospital the lady in the next cubicle sprayed perfume.  Kim was later
admitted, and remains there.  She's on oxygen, breathing treatments, and iv
steroids again.  They're saying she's anemic.  No surprise.  And a bunch of
other things.  But I think they're missing the whole concept here.  "MCS" is
a figment of our imagination.  The pulmonologist that has been treating her
for two years doesn't seem to take this seriously.  He thinks steroids are
the answer.  Steroids and drugs.  Those will kill her themselves.  To keep
her breathing she requires massive doses of too many things.

She's getting progressively worse.  The memory goes.  No rational thoughts
during an attack.  "I'm late for work.  I'm late for school. I need to call
my Mommy."  And so on.  She has a baby to support, yet allowing her to work
or drive is dangerous.  She doesn't recognize her own mother, me.  (She
still lives with us)  The incidents are coming more often and are more
severe each time.  She's going to die if we can't find someone to help us!

What can I do, where can I go?  HELP!

Heidi Evans
heidi@...

#1044 From: "julie genser" <j_genser@...>
Date: Wed Sep 14, 2005 2:19 pm
Subject: OT: need web programming assistance for MCS database
lunagirl32002
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Hi all
I have been developing a website for people struggling with chronic health
issues like FMS, CFS, MCS, etc. and plan to link several databases that will
be powerful tools for those with MCS. I am finding that it is outrageously
expensive to hire someone to create this for me, and so I now have to teach
myself web programming.

I am a MAC user and am looking for someone to walk me through setting up my
computer with PHP, MySQL, Apache. I have tried to enable Apache on my iBook
but was not successful and need some guidance. I have books for the actual
website and databases. I just need help getting set up properly in order to
proceed.

I hope there is someone out there willing to help me out...I have tried all
online sources of info and none of my programmer friends know Macs. I can't
afford to hire someone....am hoping this community can connect me to the
right person to help me troubleshoot the current problem with Apache and
possibly give me a brief overview of programming so I can get my bearings. I
am SO excited to get this site up and running so we ALL can benefit from it.

Thanks for any suggestions/contacts!!!
Julie Genser
MCS-Global NYC, West Village Coordinator  www.mcs-global.org

#1043 From: "Janine Ridings" <janiner58@...>
Date: Wed Sep 14, 2005 6:41 am
Subject: Homes,Churches, etc. Making People Sick
janineridings
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Hi Everyone;

Sherri Connell recently added these links to her site. Nice to see more
articles about the truth that homes, businesses, and churches can make
people ill.  ENJOY!

Janine

1.  Is Your Home or Business Making People Sick? www.MyIDA.org/zone.htm
2.  Is Your Church Making People Sick? www.WhereIsGod.net/zone.htm

#1042 From: "Donald E. Jacobs" <donald.jacobs6@...>
Date: Tue Sep 13, 2005 10:35 pm
Subject: Re: Re: Far-Infrared Saunas help pull chemicals, including Mercury out of the body
Donald_E_Jacobs
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> Regular type saunas are only used dry in detox clinics.


They have wet saunas (and a FIR sauna) at the Environmental Health
Center in Dallas. I would not say "only" or implay "all" detox clinics.

> Do you have evidence that FIR penetrates deeply, or for the
> statement that it is "better" for MCS?

It is well documented in Dr Sherry Rogers' books on environmental
medicine, such as "Detoxify Or Die". She give published references for
them. There is also a lot of research on the FIR technology from Japan.
They have been doing a lot of research for the past 20 years.

The FIR frequency penetrates down to the cytoplasm in the cells. As Dr
Rogers states, many people with MCS who can not tolerate the higher
temperatures of a moist sauna can tolerate the lower temperature of the
FIR sauna.

Donald

> Regular type saunas are only used dry in detox clinics.
>
> Do you have evidence that FIR penetrates deeply, or for the
> statement that it is "better" for MCS?
>
> Thanks, Bob.
>
> Donald wrote:
> > True, but the FIR sauna works better than the moist saunas for
> MCS. The
> > FIR sauna penetrates down to the cellular level, much deeper than
> the
> > moist saunas do, and can get rid of plastizers, pesticides, and
> heavy
> > metals, that the moist saunas don't.
>
> > > Jessica  wrote:
> > > >I wanted to get information out to those who are unaware of the
> > > > benefits of using a far-Infrared Sauna on a daily basis. If you
> > > > haven't really looked into it, I strongly advise you to do so.
>
> > > I want to add that saunas of all types, if used properly (mild
> > > conditions) can be very helpful and have been used for detox
> with MCS
> > > patients for decades.
> > > Bob.
>
>
> Donald wrote:
>
> > True, but the FIR sauna works better than the moist saunas for
> MCS. The
> > FIR sauna penetrates down to the cellular level, much deeper than
> the
> > moist saunas do, and can get rid of plastizers, pesticides, and
> heavy
> > metals, that the moist saunas don't.
> >
> > Donald
> >
> > > Jessica <jmfhealthsource@y...> wrote:
> > >
> > > >I wanted to get information out to those who are unaware of the
> > > > benefits of using a far-Infrared Sauna on a daily basis. If you
> > > > haven't really looked into it, I strongly advise you to do so.
> > >
> > > Hi,
> > >
> > > I want to add that saunas of all types, if used properly (mild
> > > conditions) can be very helpful and have been used for detox
> with MCS
> > > patients for decades.
> > >
> > > Bob.

#1041 From: "doverto" <rob29@...>
Date: Tue Sep 13, 2005 4:36 pm
Subject: Re: Far-Infrared Saunas help pull chemicals, including Mercury out of the body
doverto
Offline Offline
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Regular type saunas are only used dry in detox clinics.

Do you have evidence that FIR penetrates deeply, or for the
statement that it is "better" for MCS?

Thanks, Bob.

Donald wrote:
> True, but the FIR sauna works better than the moist saunas for
MCS. The
> FIR sauna penetrates down to the cellular level, much deeper than
the
> moist saunas do, and can get rid of plastizers, pesticides, and
heavy
> metals, that the moist saunas don't.

> > Jessica  wrote:
> > >I wanted to get information out to those who are unaware of the
> > > benefits of using a far-Infrared Sauna on a daily basis. If you
> > > haven't really looked into it, I strongly advise you to do so.

> > I want to add that saunas of all types, if used properly (mild
> > conditions) can be very helpful and have been used for detox
with MCS
> > patients for decades.
> > Bob.


Donald wrote:

> True, but the FIR sauna works better than the moist saunas for
MCS. The
> FIR sauna penetrates down to the cellular level, much deeper than
the
> moist saunas do, and can get rid of plastizers, pesticides, and
heavy
> metals, that the moist saunas don't.
>
> Donald
>
> > Jessica <jmfhealthsource@y...> wrote:
> >
> > >I wanted to get information out to those who are unaware of the
> > > benefits of using a far-Infrared Sauna on a daily basis. If you
> > > haven't really looked into it, I strongly advise you to do so.
> >
> > Hi,
> >
> > I want to add that saunas of all types, if used properly (mild
> > conditions) can be very helpful and have been used for detox
with MCS
> > patients for decades.
> >
> > Bob.

#1040 From: "Donald E. Jacobs" <donald.jacobs6@...>
Date: Tue Sep 13, 2005 1:11 pm
Subject: Re: Re: Far-Infrared Saunas help pull chemicals, including Mercury out of the body
Donald_E_Jacobs
Offline Offline
Send Email Send Email
 
True, but the FIR sauna works better than the moist saunas for MCS. The
FIR sauna penetrates down to the cellular level, much deeper than the
moist saunas do, and can get rid of plastizers, pesticides, and heavy
metals, that the moist saunas don't.

Donald

> Jessica <jmfhealthsource@y...> wrote:
>
> >I wanted to get information out to those who are unaware of the
> > benefits of using a far-Infrared Sauna on a daily basis. If you
> > haven't really looked into it, I strongly advise you to do so.
>
> Hi,
>
> I want to add that saunas of all types, if used properly (mild
> conditions) can be very helpful and have been used for detox with MCS
> patients for decades.
>
> Bob.

#1039 From: "jrthrmn" <jrthrmn@...>
Date: Sun Sep 11, 2005 8:26 pm
Subject: You CAN get all the chemicals out of your house
jrthrmn
Offline Offline
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My name is Jill, and I represent a company that manufactures harsh
chemical-free, natural household cleaning and personal care products.
You can convert your entire home and get ALL the chemicals out of your
house. They don't cost more than what you pay now, and come with a 60-
day money back guarantee.  The products are delivered monthly right to
your door.

Examples of products:  Dish detergent, Dishwasher detergent, Laundry
detergent, fabric softener, disinfectant, all-purpose cleaner,
degreaser, glass cleaner, soap, shampoo, toothpaste, body wash, etc.

For more information, please contact me at jrthrmn@....

#1038 From: Jessica Friedland <jmfhealthsource@...>
Date: Sat Sep 10, 2005 8:22 am
Subject: Re: need advice on dermatologist's suggestions
jmfhealthsource
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Hi Julie!
 I have a few suggestions for you.  First, I would say that if your eczema has gotten worst, take a look at the last few months.  Eating anything different, more of one thing or another?  Have yoiu changed your cosmetics or face soap or moisturizers? 
I would say that you definetly need to detoxify, and then find out what it is in your diet that is making your body act out.
I have a few suggestions.  The first would be Far-Infrared sauna treatments.  I see many people at my clinic who suffer from severe excema and psoriasis.  These treatments really work for them.  If you had someone in your area, maybe a DR's office, or P.T. office thta might have one, you could do them there, or you can also purchase one.  Go to www.SpokaneTherapy.com, it will tell you all about the therapy, and give you links to different Far-Infrared Sauna Companies.  If you think you might be interested, contact me directly after viewing the sites, because I have the clinic I get the lowest rates from  the sauna companies I deal with.
My next suggestion is to go to www.abchomeopathic.com they have a self test that will guide you through which homeopathic would be best for you.  The goal is to choose only one medicine, use it for 5-15 days, then wait.  If symptoms get worse, or remain the same, then tey another.  I am not sure if you have ever use homeopathivs before, but there are no side effects, they can't hurt you.  It is based on the Like-attracks-Like theory. 
I also recommend that you do an internal detox (don't do this while on the homeopathics).  My favorite brand is M'lis, they don't sell it in the stores, but can order it for you, or you can always buy an herbal detox kit from the health food store too!!!
Let me know if I can be of help.  Best of luck---Jessica

julie genser <j_genser@...> wrote:
Hi all
I went to a standard dermatologist today for my increasing eczema around my
eyes. He gave me samples for a light hydrocortisone cream called Dermatop
Ointment. It has: 1.0mg prednicarbate in a base of white petrolatum,
octyldodecanol, glyceryl oleate, propylene glycol, citric acid and propyl
gallate. He wants me to use it no more than 2 weeks.

He also gave me an OTC moisturizer: Aquaphor Healing Ointment from Eucerin.
It has: petrolatum, mineral oil, ceresin, lanolin alcohol, panthenol,
glycerin, bisabolol. I am allergic to wool so I don't know if the lanolin
would affect me....

He also recommend whole milk and water compresses for the fat content to
moisturize the area. I am allergic to milk so he said forget it. I am
wondering if avocado could do the same. I have used avocado recently on my
eyes and did not react to it...so I am wondering if I should try that
instead of the OTC moisturizer.

Any advice? Thanks Julie



Click here to donate to the Hurricane Katrina relief effort.

#1037 From: "doverto" <rob29@...>
Date: Sat Sep 10, 2005 12:37 am
Subject: Re: Far-Infrared Saunas help pull chemicals, including Mercury out of the body
doverto
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Jessica <jmfhealthsource@y...> wrote:

>I wanted to get information out to those who are unaware of the
> benefits of using a far-Infrared Sauna on a daily basis. If you
> haven't really looked into it, I strongly advise you to do so.

Hi,

I want to add that saunas of all types, if used properly (mild
conditions) can be very helpful and have been used for detox with MCS
patients for decades.

Bob.

#1036 From: "julie genser" <j_genser@...>
Date: Fri Sep 9, 2005 4:40 pm
Subject: need advice on dermatologist's suggestions
lunagirl32002
Offline Offline
Send Email Send Email
 
Hi all
I went to a standard dermatologist today for my increasing eczema around my
eyes. He gave me samples for a light hydrocortisone cream called Dermatop
Ointment. It has: 1.0mg prednicarbate in a base of white petrolatum,
octyldodecanol, glyceryl oleate, propylene glycol, citric acid and propyl
gallate. He wants me to use it no more than 2 weeks.

He also gave me an OTC moisturizer: Aquaphor Healing Ointment from Eucerin.
It has: petrolatum, mineral oil, ceresin, lanolin alcohol, panthenol,
glycerin, bisabolol. I am allergic to wool so I don't know if the lanolin
would affect me....

He also recommend whole milk and water compresses for the fat content to
moisturize the area. I am allergic to milk so he said forget it. I am
wondering if avocado could do the same. I have used avocado recently on my
eyes and did not react to it...so I am wondering if I should try that
instead of the OTC moisturizer.

Any advice? Thanks Julie

#1035 From: cherielj@...
Date: Fri Sep 9, 2005 1:21 am
Subject: URGENT: Your influence could make a critical difference
cherielj@...
Send Email Send Email
 
Forwarded with Compliments of Government of the USA in Exile (GUSAE):  
Free Americans Resisting the Fourth Reich on Behalf of All Species.


From: "Janice Matthews" <janicematthews@...>
Date: September 8, 2005 7:38:25 AM PDT
Subject: Important! EM application for New Orleans Water!


This is very interesting... if accurate, seems we need to demand that 
it be used immediately.
**********************

To All Concerned Parties,
We are getting very close to applying "Effective  Microorganisms"
(EM) to the disaster site in New Orleans. Jon Mackey,  founder of Whole 
Foods, is willing to purchase all of the stocks of EM from the
production plant in Tucson, about 25 tons, and ship it to the New
Orleans  Disaster Relief. Once there, each gallon of EM can be 
activated 2000 times from  its original quantity, which would total 
50,000 tons.

The final hurdle is in  getting the authorization to begin applying it.
EM was used extensively  throughout the Tsunami Wave Disaster. The 
World Health Organization had originally warned that more deaths would 
occur from the spread of pathogen  diseases than occurred from the 
Tsunami Waves, which was over 150,000 deaths.  The deaths from the 
pathogen diseases never happened! The death rate was  actually lower 
after the disaster than before. EM saved tens of thousands of  lives. 
EM was also used by the German government after the flood disasters a  
couple of years ago that resulted in over $20 Billion in damage. Also, 
EM has been successful in cleaning up the inland seas of Japan.

EM is relatively new to the US, although it is being used in  over
120 countries around the world and has been in use for over 25 years.
The  final hurdle of getting EM applied to the disaster site in
Louisiana is crucial.  Whole Foods has been very generous in offering 
to purchase and transport  the EM to New Orleans. The flooded area will 
take at least six more weeks  to pump and drain. However, in about a 
week, the stagnant waters combined with  sewage, poisons, and other 
contamination sources in New Orleans will begin  breeding pathogen 
bacteria that will begin spreading diseases throughout the  region. The 
CDC (Center for Disease Control) in Atlanta is aware of this,  but is 
not publicizing it to the media. The government is currently planning 
on spraying bleach to control the spread of pathogens, but bleach will 
only add to the long-term deleterious damage of the disaster.

EM is an all-natural, organic solution that has no negative
  side-effects. This is why Germany and South Asia resorted to its usage 
rather  than chemicals in their disaster decontamination relief. At 
this point, we simply need authorization from FEMA and federal relief 
agencies to move forward.  Senator John McCain is from Arizona, where 
EM is produced in the US. Many  top officials are telling us that he is 
the most influential individual to gain  approval in these emergency 
circumstances. We currently have friends of Sen. McCain contacting him 
and apprising him of the situation. But other contacts are needed. We 
need top officials from around the country encouraging this proven 
technology to be used immediately, before this disaster evolves into a 
horrendous catastrophe from the spread of pathogen diseases. Please, 
this is a  call to everyone to use your personal resources and personal 
contacts to prevent  a tragedy of much greater proportions. Help us to 
get FEMA to authorize the application of EM as soon as possible!
 
"The EM" website is:  www.emamerica.com 
 
They can be contacted  at: 1-866-369-3678.
Please forward this message to all interested parties or call my
office at 505-983-4014. Every day, every hour, every minute is crucial!

Many thanks for your prayers and encouragement.
James McMath

=====================================================

#1034 From: "julie genser" <j_genser@...>
Date: Fri Sep 2, 2005 1:31 pm
Subject: MCS-Safe Housing Guide
lunagirl32002
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Hello all,
The MCS-Global Housing Team is conducting a survey so that we can prepare an
MCS-Safe Housing Guide for those just starting to contemplate a construction
project to accommodate MCS and EMF Sensitivity. If you or anyone you know
has completed a construction project for someone with MCS (Multiple Chemical
Sensitivity) or a related Environmental Illness that requires specific
non-toxic construction materials, please contact us.

This would include a new home, home remodel, mobile home, gutted/retrofitted
Airstream Trailer, RV, car, tent, or any other form of MCS-housing. Please
consider sharing your valuable experience with others suffering from this
debilitating condition.

To receive a survey, please send an email to: nycwestvillage@...

Thank you!
Julie Genser, MCS-Global Housing Team Leader
www.mcs-global.org

#1033 From: "jmfhealthsource" <jmfhealthsource@...>
Date: Thu Sep 1, 2005 10:38 am
Subject: Far-Infrared Saunas help pull chemicals, including Mercury out of the body
jmfhealthsource
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Hi Everyone, I am new to the group so thought I would introduce
myself, my name is Jessica.  I wanted to get information out to those
who are unaware of the benefits of using a far-Infrared Sauna on a
daily basis.  If you haven't really looked into it, I strongly advise
you to do so.  Due to toxic levels of Radiation I am currently
fighting cancer, and winning I might add!!  I started using the
saunas for pain relief after I was in a bad car accident and
continued after I was diagnosed with cancer.  They have literally
changed my life. Because of my belief in them, I recently opened up a
clinic where I do Far-Infrared Sauna Treatments, and I also have an
on-line business where I sell them. The web address is
www.SpokaneTherapy.com.
If you want to know more about them, you can go to the site and learn
more.  If you think you might be interested you can contact me by
phone or E-mail. I have really opened this business solely as a way
to help and inform other people about what these machines do, so if
your interested in getting more information on the therapy, or
purchasing a sauna, even if it's not from my company, I would be more
than happy to answer any questions you may have or send you more
information on them in the mail.
Thank you for taking the time to hear from me.
Sincerely,
Jessica @ jmfhealthsource@...

#1032 From: kate S <kate_tn48@...>
Date: Tue Aug 30, 2005 3:50 pm
Subject: Fwd: Brad Pitt with "Home Health"
kate_tn48
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Note: forwarded message attached.




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