Hi Penny
I'm so sorry that you are so isolated. This is such a challenging
illness. I just started getting limiting MCS symptoms a few
months ago. Before that (when living in NYC!) I was fine to just
avoid cigarette smoke and shoe shine stores. Now, many
stores, restaurants, homes, offices, etc make me ill. So does
driving in cars for a long time. I had such a rough time when I
was on the West Coast alone trying to find a place to sleep. I had
to abandon a school program and come home a couple weeks
back. This is after several years "stuck in NYC" recovering from
mercury poisoning with a severely restricted diet that made travel
almost impossible. I thought I was improving, and was so happy
to leave NY.

While in that school program (in Arizona), I spent a lot of time
alone cooped up in my house (would get sick from walking
outside--either from gas fumes or controlled forest fire
burnings). Was alone for 3 weeks straight at the end when I
could no longer be in the classroom. Could not sleep in my
room, then could not sleep on the couch anymore. Was sleeping
on the hard wood floor with a mask on, but just so thankful to be
able to actually sleep.

I did a lot of thinking. This illness is so surreal. Noone should
ever have to experience it. I am trying to accept this fate as mine
and embrace the parts that are embraceable. I am really
fortunate right now. My mom invited me to stay with her for a little
while to focus on healing. Her bldg has a sauna and I am doing
40 mins a day. I'm also doing castor oil packs with a heating pad
on my abdomen for an hour a day. I have a whole bunch of
natural detox approaches to try....like a bentonite and psyllium
husk powder shake (as per hulda clarke) to remove mucous
buildup from the intestines that may be hiding parasites. Then
an herbal parasite cleanse. Eventually I want to try the liver
cleanse but am very nervous about that....my poor liver. Don't
want to make myself worse. It's so scary.

I am just mentioning some of the things I'm doing in case it
might help you, or others. But my health seems to be more
stable than yours so please keep that in mind. I've already done
almost 3 years of a restricted specific carbohydrate diet (SCD)
with only organic, high-quality foods, as well as 2 years of low
dose oral dmps/ala chelation (after removing my mercury
fillings). I've pulled out a lot of metals (mercury, arsenic,
cadmium, etc) in that time (per my regular urine tests and a
recent follow up hair test). I've heard that those with MCS/CFS/FM
usually have some sort of heavy metal toxicity so if you haven't
checked yet, you may want to. I can give more info on hair tests
or anything else if you want.

Well, I'm sort of rambling on about my journey. Just wanted to
reach out to you. How long have you been sick with this? Are you
at least comfortable in your living space?

Sending you light and love
Julie

--- In detox@yahoogroups.com, "pennap" <pennap@y...> wrote:
>
> Hello
>
> My name is Penny and I suffer with MCS/CFS/FM ect!! ha
> I live a very lonely and isolative life; would really appreciate
> networking with you. I live in CA. I so look forward to hearing
> from you. God Bless you all.
>
> Penny