Well, I'm not sure what to say here, so here goes. We all live with desmoids, or know someone who does, so here is a place where we can get together and share anything we like. I don't care if it's information, well-wishing or jokes, as long as people get something out of it. If it is jokes, then perhaps we can bear in mind there are some subjects we shouldn't joke about (ur, well, I'm sure there are. :-o). Enough. Enjoy!!!!!!!! btw, I've added a link for the Acor Organisation. It's their home page for mailing lists but they have one for Desmoids and so may be able to help people. :)> Oh, there's one there for FAP-GS as well.



Jules.