Hi there,I have had a few disapointments of late with test results.I had a muscle biopsy that came back neg to dermo,I went to a Nuerologist who says I do have...
My daughter just got back from Texas Children's where she was officially diagnosed with Juvenile Dermatomyositis. She just started treatment last Wednesday and...
Hi<br>my daughter has had dermatomyositis for almost 2 years now..she is 6 years old...We started on prednisone and methotrexate which helped a lot but not...
Roly has had a set-back. It started last Wednesday. He was fine in the morning and by the end of the day he was having severe difficulties getting into the van...
I am so sorry to hear of your situation. I sure pray that we don't have to deal with any of that. We were concerned about the side effects of the drug too, but...
I hate to hear about Roly. Was he on a maintance dose when he had the flare up? I know that this must be very hard and I wish there was something I could tell...
Marisa,<br>You and Rolly are in my prayers. If you email me your adress again I would love to send Rolly a card. I know getting mail helped cheer up ...
He'd been pretty "stable" for a good while but not really in remission. We were hoping to continue the tapering the steriods but we're back up there again. He...
Dear marisa It goes without saying that we all are praying for roly,Your strong faith is a lesson for us all of us, I applaud you for you never speaking...
Thanks for your concern....My daughter is doing almost as well as last year after she had the IVIG treatments...She was not in the so called "severe" group...
I had mt CT scan done a week ago and I still have not heard from the doctor. Part of the problem is that he is in another state and his nurse had to send ...
My regular Dr received a copy of the CT test results. Everything is normal. No tumors. I am so relieved, but I have to work now to get this under control....
Marisa,<br>Please know that you, Roly, and your daughter are in my prayers as you struggle with Roly's set back. I am sure he is a child of incredible ...
Yes, my daughter Amanda who is three also had a positive ANA. Before she was diagnosed with JDM they though she might have lupus becuase she also had a rash on...
Hi there,<br> This isn't my first time here...but it has been a while since I checked up on the messages. I am 23 and live in Alabama...I would really love to...
Hello all,<br> I have been a member here for a while...and the other night someone sent me a message on Yahoo and they didn't remember me..but I was on their ...
I would like to thank all of you for your support. You don't know how much it's meant. Roly is still having quite a bit of weakness but I got him out of the ...
What an inspiration you and Roly are! Even when things are down, you take time to laugh and love. Whenever I get in down with this disease, I think of Roly and...
Hi there <br>I was wondering how many individuals with DM are currently working? If so is it part time or full time?<br>I got DM in the winter of 2000 and I...
I had a recurrence of my DM last year this time, by May 2000 it was apparent that I had to take off. I did not return to work until October of last year. My...
HELLO THERE,<br>I GOT DM IN JUNE OF 99. IVE WORKED EVER SINCE, I THINK IM VERY LUCKY TO BE ABLE TOO. I HAVE A VERY PHYSICAL JOB TOO, I DO HOUSECLEANING UP TO 4...
I am still working, some days are easier than others. There are times I wish I could quit, but financially we cannot afford for me not to work. I get that is...
I was concerned a few days ago because my daughter who was just diagnosed with Juvenile Dermatomyositis had a positive ANA. It concerned me even though I knew...
HI SMALLPIECER, I WAS DX LAST JULY WHEN I LANDED IN THE HOSP. FOR 23 DAYS WITH THIS CRUD. I AM STILL NOT ABLE TO STAND ON MY FEET VERY LONG OR RAISE MY ARMS...
Hi Lloyd<br>Thanks fot responding to my message. I have one thing to say to you is don't every give up and when it comes to this disease the doctors don't...
Hello Friend,<br>We went to Children's Hospital on Tuesday 12th.<br>After leaving at 6:00 a.m. We arrived around 8:45 a.m.<br>He got weighed and measured, he...
Am new to this group,<br>and need some support <br>from others going through the <br>same stuff.<br><br>January 23, 2002<br><br>Steven seems to be doing...
