Hi everyone! I know it's been a long time since I've been able to attend a chat but I think about you all the time. I've been doing very well with the ...
Hi Dawn, sorry I haven't been on in a while it's been hectic week. I am sorry about your daughter. This is a tough thing but this group really provides a lot...
Hi Dawn. I haven't been online in awhile, so I apologize for the delay...<br><br>My daughter, Sarah, is 4. She was diagnosed in 12/99 when she was three. As ...
Hi,<br><br>I am thinking of changing doctors and want to know if anyone is being treated in Maryland by a DR. J Raitan. She is a rheumatologist at Good ...
Hi Mary, <br>Although I don't know of the Dr. you're asking about, I do suggest you see a rheumatologist for the DM. A dermatologist does not have the ...
Hey,<br><br>It's great to see the club growing, although sad there's so many of us out there. I haven't posted or stopped by for a while. My schedule is pretty...
Hello Jackie,<br><br>That is great news. I love hearing when our club members go into remission. There is no other word for it. I am really glad to hear...
My daughter Emma will be 5 in april. She was diagnosed with dermatomyositis nearly 2 years ago. She is currently on pred. orally & also had pred by IV 3weeks...
Hi,<br>I have just joined. My daughter was just 3 when diagnosed. She is 5 now. Its great to hear your story. Could u tell us what type of treatment u...
FYI: I got a call from the JDMS study group in Chicago this past week. They are conducting a new study in which they believe they now can accurately predict...
Well we got the packet. It's from Memorial Cildren's Hospital in Chicago and Dr. Pachman is leading this research. Roly & I sat down last nite and filled it...
I took my daughter to see Dr. Pachman last September and we signed her up for the study as well. I haven't received a phone call or packet, but I would be ...
If your child has had JDM over 3 years, and are on the previous study, you will be contacted. Dr. Pachman also has another study which I think is the one your...
Please pardon me for making a personal request...<br><br>Tomorrow (Saturday, 2/17) is my daughter Julia's 10th birthday! I'm sure she'd love to see her mailbox...
Hi. My daughter, Sarah, was 3 when diagnosed with JDMS. She's been doing great and she even went into remission after one full year. Now, it looks like maybe...
Hi, I'm new at this so here we go... My son was diagnosed in early january, he is 3yrs old. We are gradually seeing improvement but it's taking so long. How ...
Hi, have you seen my JDMS Diary? It has a Links page that has a lot of references for you to check out, and the Diary itself has proven helpful to lots of...
I would like to know the answer to that as well. I just thought I would write because I also have a four year old daughter with JDMS who was diagnosed at age...
Hi and welcome to the club, my son (13yrs old) has had JDMS for 4 years come this April. As my son's physician has explained to me, there are 3 types of JDMS: ...
The computer is home & installed & ready to chat with once again. I hope to be on tomorrow night and catch up. I've really, really missed all of you and can't...
I have had a rash on my knuckles and elbows since October- doctors say I have a subtle presentation of dermatomyositis based on biopsy of skin. Muscles feel...
HELLO TO YOU ALL MY BOTHERS AND SISTER IN CHRIST AND DIEASE, IT IS SO GOOD TO FIND THIS SITE. I THOUGHT I WAS HAPPY WHEN I FOUND SHARON'S HOMEPAGE BUT THIS IS...
Thank you Valerie for joining. I created this site because growing up with dm I felt alone. You will inspire our other members. I have also had it for 30 ...
I'm new to the site but I had to respond to your message. I've had DM since 93, but just diagnosed 1/00. I'm a 41 yr old, female nurse, who loved the beach, ...
dear shewolf 68 I can't thankyou enough for starting this site it will and is a great inspiration to all suffers of myositis. I only wish that they had ...
thank you mjbw37, i will be asking my dr. about that med prancquil or how ever u spell it but i've never been on that one so i'll see what he says. thanks ...
The doctors don't know how mine came about. the first doctor my folks saw said it was childhood arthritis.My folks finally took me to the medical school in ...
