Hi and happy new year to all of you. I just wanted to stop by and post a note that hopefully will offer some encouragement and support to all of you with DM. ...
Hello...congratulations on being in remission I hope to achieve that same goal. I was diagnosed in 2004 and I am still on metotrexate I am now weaning myself...
Glad to hear of the remission! It gives us all hope. Question for you about what you went through with the muscle involovement. When I was first diagnosed...
Well I saw my Dr again yesterday for a one month check up. He has increased my methotrexate from 7.5 to 12.5 but I am to do 10 for 2 weeks then go to 12.5...
Patty, Stay positive! Sounds like you have a doc that will do all that he/she can to help you! From what I've read, CT scans are routine diagnostics whenever...
Hello, I am probably grasping at straws here, but I saw my Rhumy today and everytime I see her she says things that just puzzle me. Things ike "your rash...
Saw the Rhumy today and talked about prognosis, etc. She kind of freaked me out. Here I am thinking this whole time since diagnosis that Dermatomyositis is...
All of my blood tests have always come back normal, but I most definitely have classic DM, which was biopsy proven. Blood tests are not the only way to...
Lisa, I have dm but my Dr is starting to wonder if its not something else. I feel like I have muscle weakness but the tests say I do not. I have the rash, the...
Do not let that lady freak you out. I have DM i have had it for 20 years and i have asthma and anything that seems to be able to go wrong with the disease does...
Lisa, I too was diagnosed quickly which I am thankful. Two different doctors saw me and said I had classical DM. It would bother me for my doctor to say "I...
Hi Lisa, I would insist on a skin/muscle biopsy. This is an actual surgery where they usually cut into the muscle tissue on the thigh (mine was on my upper...
Hello All. Ditto for me. My situation came on almost exactly as Lori. And I am on the exact same dosage and medication as she is. Hang in there Lisa. Don't...
Lori, your path and mine seems to have followed pretty consistently. I agree the muscle biopsy is a must. I too am doing much better, down to 15 (fm 60) on...
Hi everyone! I am brand new here and have a 13 year old son who we thought had DM but the pediatrician said "NO" when all his blodwork came back negative. I am...
It sounds like DM to me. Get another opinion as soon as you can. I was 36 when my DM started and it took them almost a year to diagnosis it. The same issue...
Hi Kimberly, Glad to read that your son's symptoms are better. I have DM, but I'm also a nurse (and a mom) so I am concerned about your son's continued joint...
Kim, Thank you for your reply. I too am a nurse, but a neonatal nurse so I don't deal with any of these types of things!! This is all new to me, and has to do...
Judy, thank you for your reply. Yes, I am going to try to get in to see some specialists, and maybe even get a new pediatrician! His lack of interest in...
Kim, I am so sorry to hear about this with your son. I have had DM since May '06 and panic any time my son says his arm, leg, back, anything hurts or if he's...
Hi Kimberly. I had the rash for over a year before any muscle pain started and I finally saw a dermatologist who suggested DM and sent me to the Myositis...
Thank you for your opinions and your prayers, Laurie! --- In dermatomyositissupport@yahoogroups.com, Laurie Gubanyar ... since May '06 and panic any time my...
Thank you for all of your information, Jessie. I will keep all of this in mind and I definitely am looking into other doctors. -Kim--- ... started and I...
Hi Kimberly - I was diagnosed with DM in August having just the rash and shortness of breath. I did not, and still do not, have the muscle involvement. I...
My daugher was 8 when her symptoms started. The rash on the eyes was the first and then bloody noses every night. She would complain that her legs needed to...
Thank you to everyone who is giving me such support and advice!! I was trying to reply to everyone, but thought I better just reply in a "general email"!...
Kim, the clobex cream works REALLY well....see if you can get your Derm to prescribe you some. It was the only cream that worked on me. Hopefully that will...
I am new to this board but not to DM. I was in remission until about 8 months ago when I started to experience a burning in my chest that went to my throat. I...
Diana, I have a constant dry cough, pressure in my chest and wheezing; however I truthfully thought it might be just my allergies of which I have plenty and...
I have also had the throat problems. I am having them now. I am not wheezing but have a pressure on one side of my throat. It comes and goes but is here...
