I went to Sally's (beauty supply store) and told them my problem with the scalp. They recommended me this treatment made by L'oreal called nature's therapy....
... She had more muscle problems and less skin troubles at first. We spend a month and a half visiting local doctors but got a diagnosis at a children's...
Thanks for your story. I am not wheelchair bound but I do have a hard time walking. I have went down hill over the last couple of months trying to find a...
I have been on methotrexate for 2 years now. I didn't respond to it orally, but a few weeks after I began giving myself injections I could tell it was working...
I would like to share something with the group. There is a new Myositis Clinic that opened in Baltimore, it's a part of John Hopkins. I actually used to live...
Hello Everyone. I've had the disease for almost 2 years now. I had the rash cover my legs and most of my back and arms. I also had the ragged cuticles and the...
I live in Baltimore, and I go to the Myositis Center. It's where I was diagnosed. They are great, though it can be hard to get an appointment when you first...
... Jenny, I was diagnosed with Dermatomyositis a year ago and have been fighting to get it undercontrol ever since. Without going into all the details I was...
Hi, I have been dxed for 2 years now. I have been on methotrexate for most of that time and it has helped me. I had to start giving myself injections before it...
I just switched Drs and I will be going on MTX and plaquenil..... IF my liver is ok. The dr also talked about Imuran. I was wondering who has taken what, what...
Patty, I go to UAB in Birmingham AL and have some fantastic doctors guide me through this. I take mexatrexate (shot once a week),prednisone and placquenil....
Julie I am not the Methotrexate too and asked my doctor recently what was the next step beyond this? He said some people stay on this for years and years. I...
Hi, I thought I'd weigh in on this discussion. I was diagnosed in February with amyopathic DM. I too experienced all the rashes with excessive itching. The...
Just to share a little FYI, I started IVIG but the side effects were horrible!!!!! I would have a 10 day migrane. Well, we found the solution. If anyone...
DEAR JESSEE, I AM PROBABLY GOING TO GOING TO LOSE ALL MY HAIR. I AM TAKING 15MG OF MTX ONCE A WEEK. I AM TAKING 2 MG OF FOLIC ACID DAILY. I ALSO TAKE A FEW...
... JULIE: I HAD SEVERE RASHES LIKE YOU ARE DESCRIBING. I DID GET RID OF THEM WHEN I WAS PUT ON 60 MG OF PREG. IT TOOK A SOME TIME BUT IT DID GO AWAY. PEOPLE...
It really wasn't bad; and I'm on a full CC of MTX which is the maximum someone my size can take. It was just like extra strands on the brush. Once I started...
Debbie- I take 25 mg once a week of mtx and 20 mg/day of prednisone, along with 1 mg/day of folic acid, a multivitamin that has lots of other stuff in it, 500 ...
Dear courtney, I have had DM for 13 years. I have taken meth.,pred.,cellcept and had a terrible reation to plaquneil. So tell me about the solutin you found...
Hello Debbie My name is Cindy and my husband Corey has DM (I posted on nov 3rd telling about him. He is on MTX(25m once a week,Pred. 25mg daily,folic,vitimamin...
... <robin.rice@...> wrote: ROBIN: I HAD THE WORST MOST PAINFULL BLISTERED, INFECTED FINGERS, I WAS NOT ABLE TO USE MY HANDS THEY WERE SO PAINFULL. I COULD NOT...
Debra, bless you! we have all been there with those dark moments. I find stress to be a major problem for me - for flaring especially. My mother died this...
I am told by those in the know that you have to apply for ss disability and then appeal the decision in order to get funded. I am told almost no one gets it...
Dear Debra, I can totally remember a lot of what your letter says. I too lost a lot of hair, my hair was very thick to begin with and before it started...
I understand what you ladies are going through..I am starting to get the hair loss I guess theres not much you can do to stop it..I am also on methotrexate my...
I got my call from my Dr today and we are going ahead with the methotrexate. He asked if i was sure I wanted to start before Christmas and I said yes I just...
... MAKE SURE YOU TAKE AT LEAST 2 MG OF FOLIC ACID PER DAY. THAT IS WHAT I TAKE AND WE MAY INCREASE IT,AS I AM LOSING MY HAIR. WHEN I FIRST WENT ON THE MTX, I...
... THANKS FOR THE SUPPORT. I WENT TO THE DR FOR SS DISABILITY, TODAY. I REALLY GOT STRESSED OUT. I BROUGHT A BOOK THAT I HAVE KEPT SINCE I GOT DM. ALL KINDS...
