Hi Judy! I too am new to this groups, but not to Dermatomyositis. I was diagnosed in 1991, when I was 19. I had four episodes, with varying degrees of muscle...
Laurie, it's funny that you mentioned the nurse you spoke to had heard of the meds but not the disease. I actually got denied life insurance when I was on...
She is on 10 ml of Prednisolone every other day, and Methotrexate 6 pills once a week. She was diagnosed when she was 4 years old. As long as she is taking...
Hi Zara! Thanks so much for the e-mail. Right now I am on prednisone and methotrexate. It seems to be working. For me the worst part is the aftermath of the...
Michelle, When I was diagnosed I was told that there a two versions of DM, the childhood one that usually affects kids who are between 5 and 15 years old, and...
I just read your story with your concerns for your Daughter's Future, I can relay this to you from a Mother I just spoke with. She read my article on...
Thank you Zara, that is promising. She has been doing well, but we were expecting remission within 1 yr of diagnosis and are now approaching year four. It is...
Can anyone in remission tell me how long they had the disease before going into remission? I was diagnosed about eight months ago. I have been on groups a...
Kassie: Since you're in remission and you're not taking any medications, are you back to normal? Do you have pain or fatigue? Or are you where you were...
Kassie, it is so good to hear of the success stories. would you be interested in writting a story of your journey with this disease for my Homepage? Laurie...
I would love to! Let me work on it, and I'll get it to you as soon as I can! Kassie ... _________________________________________________________________ More...
Laurie, I have not managed to regain the strength I lost in my shoulders (bra straps continuously fall down, but I plan to work on that), but I don't feel ...
Terri, I was diagnosed in 1991 and went into remission sometime before 1999, because I know I was off all the meds by then. I was 19 when I was diagnosed, and...
I know this is an illness support group but I need those of you of faith to pray for my grandson, Jason. He was in a car accident with his mother and sister on...
I wish I could donate soemthing but unfortunately I am unemployed but I really hope and will pray for their recovery. I cannot imagine what all of you are...
Hello All, I just wanted everyone to know as the owner of this group I have no problem with posting like this. This group is here for support and I hope that...
hi my name is joyce and i have never found anyone to talk to about dm. i was diagnosed about 5 years ago and wasn't aware of the yahoo support group...is...
... about ... someone ... go ... hello judy....you sound like you have been searching for some answers too...like myself...i have been diagosed about 5 years...
Hi, I am new to the group too. I was have DM for 8 months now. I know I must have had it before this time....only it was only muscle weakness and other...
Dear Debbie and Joyce, I was diagnosed in Feb 2006 and feel I had the symptoms starting long before. I went to the dermatologist because my neck itched all the...
Hi Joyce, so sorry you have this also. there are many of us suffering with this disease. these support groups saved my life when I was first diagnosed. Check...
thank you for your encouragement... when i was diagnosed 5 years ago it seems the doctors had little to go on...i began searching little by litlle and asked...
hi debbie i am so shocked,happy,sad,very emotional about all the people out there who has dm...as i sit here tears stream for i always felt i was alone and...
Hi, It is so wonderful when you know you are not alone. I'm here anytime you need me....we can comfort, and pray together. This is a rare disease, I really...
hi all i am so tickled to get your response.so you have that burning and hot feeling too...i can't possibly be having hot flashes 24x7...i was told i had...
I definitely think stress has an affect on DM. It may not cause it, but it's probably one of those things that cause a flare. A couple months before I started...
Hi Terri, When ever my doctor suggest I take any type if medication, I go to Webmd.com to read up on it. I've found that this is a most helpful site for...
Hi, Can everyone explain to me how one feels? I'm just wondering if we all have the same feeling. What do you feel like on your worse day?? I'm taking a...
