Hello. I was just thinking the same thing. Just visited my Rheumy yesterday. We upped my methotrexate to 10mg/week in attempts to be able to continue to...
Hi Jenny. I havent posted for a while. Of course like before im posting on behalf of my Dad. His name is Dick Downen and he was diagnosed last fall with...
Hi Rich, I am so glad your glad is doing well for himself and getting on with life, that is what we have to do when and while we can. Sounds like he has a...
hello my name is rose and i was dx ed last summer .this year has been tough here also..it really affects my hands and skin..its a nightmare. i have the grotons...
Thank you for replying Rose. Everytime someone has the strength to type out a reply is a good sign. I am going to try and get my dad to start replying here,...
Richard, I'm glad to hear that your dad is doing better. It's a tough disease, but knowing that he has someone that is supportive is the best medicine for...
Hey Brenda! Thanks for replying... It is a tough disease. Up until last fall when he was diagnosed, I would talk to my dad a few times a week.(maybe) When he...
I have a 5 year old daughter that has been battling DM for a year now. I know that UV exposure is bad and can cause a relapse, but I need to find something...
Hi Janet, I am so sorry you are having to deal with this and with one so young. On the TMA website we have had many discussions on this subject. It has...
Hello All. I am new to the group. I was diagnosed with DM about 18 months ago. I don't know anyone at all that is familiar with this disease so I am very eager...
Hi Judy, Welcome to the group. Sorry it has to be under these circumstances, but you are not alone. My son was diagnosed with DM about 4 months ago. He is 14....
Thanks for responding Tricia. I am currently on Methotrexate and prednisone. The creams didn't do a darn thing. I've tried so many different lotions and they...
Hi everyone. I'm new to the group. My 7yr old daughter has dermatomyositis. She was diagnosed when she was 4yrs old. The medicine and watching sun exposure is...
Hello Michelle. I had to idea this disease affected so many young children. I am also on Metho and Prednisone. The prednisone made me gain like 25 pounds, but...
Hi Judy, you are by no means alone with this, I was diagnosed with PM and DM in Dec. 2006. To get answers to all your questions and you will have many, also...
Hi Michelle, I am so sorry to hear of your Daughter having this awfull disease. On the TMA web site they also have a section devoted to parents with Children...
Zara, Thank you so much for all the info!!! After reading your story, I finally feel like I am not alone!! I always felt like people thought I was making this...
Hi Judy, I am so glad you found us, I too felt alone and scared to death as I couldn't even spell let alone pronounce Myositis with the Poly or Dermatomy in...
Hi, Judy! Glad to hear from you. For the scalp - Paul Mitchell has a Tea Tree Oil line of shampoo, conditioner and hair treatment. I used the hair treatment...
Laurie thank you so much for your response. I really wish I had found this website months ago. It would have helped me so much!!! But I am grateful that I have...
hi everyone, I have not post anything in a while, I definetly feel better , I still get tired easely but even that is getting better, my knees hurt the most...
Good Luck, Luz! I'll keep you in my prayers, I hope it works out for you. I'm glad you're feeling better, keep up the positive attitude. Laurie luzard01...
Hi Judy! I too am new to this groups, but not to Dermatomyositis. I was diagnosed in 1991, when I was 19. I had four episodes, with varying degrees of muscle...
Laurie, it's funny that you mentioned the nurse you spoke to had heard of the meds but not the disease. I actually got denied life insurance when I was on...
She is on 10 ml of Prednisolone every other day, and Methotrexate 6 pills once a week. She was diagnosed when she was 4 years old. As long as she is taking...
Hi Zara! Thanks so much for the e-mail. Right now I am on prednisone and methotrexate. It seems to be working. For me the worst part is the aftermath of the...
Michelle, When I was diagnosed I was told that there a two versions of DM, the childhood one that usually affects kids who are between 5 and 15 years old, and...
I just read your story with your concerns for your Daughter's Future, I can relay this to you from a Mother I just spoke with. She read my article on...
Thank you Zara, that is promising. She has been doing well, but we were expecting remission within 1 yr of diagnosis and are now approaching year four. It is...
