hi everyone just wanted to say hello. Hope things are going well, remember to laugh and smile it is good medicine for the soul. :-) :-) :-) :-) ... Got a...
Hi Karla, glad to hear someone else nice and cheerfull. Things must be going good for you also, this is great. I am always on the TMA support site and have...
Hello Zara :) well I noticed that no one has posted anything in a while...like I said hope things r going well although I know that sometimes the treatment...
Hi Karla, sounds like you and I have the same attitude, I could not have written it better. I to stay so active I don't have time to think about it except I am...
Sounds Awesome, well Zara just becareful and I am glad you are so positive and feel happy for you. It really does help. Stay in touch and hope you have a...
Hi everyone. I just joined the group yesterday, having been diagnosed with a full blown case of dermatomyositis a month ago. I was in hospital two weeks and...
Hey Yall! The words from one of my favorite singers Travis Tritt song says it best..." It's a GREAT DAY to BE ALIVE...I know the sun's still shining when I...
Hi Nilda., so sorry that you have this disease but don't dispair, you are going to get through this just fine. I am glad you asked about the TMA site as that...
Hi Nicky, you have the right idea, stay positive, Please come and join us on the TMA site, there is so much support there. You too will make it through this...
Hi Nilda, Welcome to the group. I have been a member for a couple of months as well as the TMA group. Both are a God send to me. I was going crazy! I was...
Tina -- Thanks so much for your words of comfort. I am so glad that I was informed about this great group. I know the suport and caring and sharing will help...
I pray to the lord for everyone to be allright, I try my best to stay positive and it's like medicine for the soul, but sometimes it's hard. I went to the...
Hi -- I too get some flutters & tingling in my toes & heel. I also get some spasms in the lower legs. I have a dropped foot so Ithey are currently attempting...
I was diagnosed with DM in October 05 and was hospitalized for nearly two months (mostly rehab since I couldn't move any part of my body except my feet, hands...
Good advise Pepper. I was full blown in Dec last year. Put on 60 mg Prednisone. You can read my story on my web page, also the stories of others. I too...
I am new to the group and live in the Dallas area. I would love to get with some of the Dallas people and visit. I go to UT Southwestern for treatment. I...
Hello to all. I just joined yesterday. My son has just been diagnosed with this. He is 14 years old. We have been lucky in the respects that we caught it...
Hi Tricia, so sorry to hear about your Son, I would recommend going to the TMA board where we have a Juvenile board. Was he Diagnosed with DM or PM, sounds...
Tricia, I am sorry to hear that your son is suffering with DM. It is good that it was caught early and without symptoms! That is definitely something to be...
I was diagnosed with DM in August 2006. My family doctor had no idea what it was and sent me to the rheumatologist who made the diagnosis. Since then, I have...
How angry I get when I read about these kind of Dr's, we jusy had one on the TMA board with a similar story of rudeness and uncaring. I just feel so lucky...
I thought it was just me (being angry), so that helps. BTW - I didn't say earlier, but it did take about four months for my CPK to drop, but it wasn't a...
I know from experience, the more you use your muscles, the stronger they will get. At a minimum if you could find a water exercise class, you wouldn't feel...
Hi, everybody, I was about to say hello and introduce myself when I came across this, and I wanted to send it first. Nice to meet everyone, Jim Holt From: "Tim...
Hi All -- I envy you all. Just got out of hosp after being there 5 weeks. I went in with a CPK of 12,000 and, after 1,000 mgrs of Prednosone and then changed...
Hi Nilda, I am so sorry for all you have been going through, it sounds like you have had a rough time. It sounds like you have a positve attitude about this...
Hello. I was just thinking the same thing. Just visited my Rheumy yesterday. We upped my methotrexate to 10mg/week in attempts to be able to continue to...
