I am very worried about IVIG treatment. My 6 year old daughter had her first dose on 3/24 and has to have another treatment in two weeks. Is there anything...
Maria, I just finished a five day course of IVIG last week. I had absolutely no side effects. I know others do but my experience was just boring. You will have...
http://news.monstersandcritics.com/health/news/article_1286586.php/Dermat omyositis_signature_is_found Someone posted this link on another Forum,and it looks...
Click on the URL Christine gave us to this page and read it, At the bottom it say's comments. you can read what has been written then leave your own. Let's...
Well I saw my GP last week and he called yesterday. He called my Rheumy and told her how much pain I am in and she said all my labs were normal so she cant...
Any thing in the thousands is normally where they were at the start of their disease. It seems There is no normal. Some are down low and I am at 227 which my...
Hi Zara, Thanks for the info. I actually went on line last night and did some research and found quite a bit. My last blood work my CPK was 152 which is...
Hi Tina, My CPKs have always been normal. 10 % of us with this disease don't have elevated labs!! terri _____ From: dermatomyositissupport@yahoogroups.com ...
I started imuran Thursday. I am taking it along with methotrexate and medrol. Is anyone else on this regimen and if so what kind of progress are you making?...
Hi Tina. I am on 100 mg Imuran along with 40 mg Prednisone, I have been on it for two months now and doing great. I was taken off the Methotrextate and...
Hi Jenny, Do not worry about getting IVIG. It is true that everyone reacts differently, but the vast majority of people handle it fine. Your Dr. may prescribe...
I hope that I will be able to quit the medrol (methylprednisolone) and the methotrexate soon. I have to go back in six weeks for a check up. I am taking 20...
... for ... Kara, how wonderful to be in remission. What type of treatment did you receive early in your diagnosis? And where were you treated? Thank You, ...
Congratulations on your long remission. I want to know the same thing, what meds were you on? You didn't have the PM also? I know the sun can cause a relapse...
Jenny, I ordered that book on Monday. I should be getting it tomorrow. Now I'm scared to read it. Why are you getting a colonoscopy? Is there a chance of...
Another site for all kinds of help is here. they are all good and great people, many of us join them all but if you don't see a question or answer on one...
I am going on Thursday to get my colonoscopy. Seems that is the only test I HAVE'NT had yet. My labs come back almost normal but my skin is still rashy and...
Hello Everyone, The board has been quite that past few days. I hope everyone is doing alright with no major issues!! I had a colonoscopy this morning and it...
There is a form of DM that is only associated with the skin called something like sineDM. That may be the issue. I have only small muscle numbers at 343 and...
Thanks Tina, I was just getting ready to e-mail, my home page is being re-done again tonight and each story is going to have it's own page, Will you share...
Sure, i will get it together for you. Please edit as you see fit. Thanks, Tina Zara King <zara1305@...> wrote: Thanks Tina, I was just getting ready to...
