... 06 ... can ... out ... and ... grow ... hi, my name is magda and i am so sorry to read about your little girl. unfortunately, i don't know anyone with a...
Sorry I haven't been on for a while but I have been sick and flaring pretty bad. I am still here though and hope everybody is doing well. Welcome to all...
... hi leslie, sorry to read that you are having a flare up. i just had my first flare up in november. i am much better now and i hope the same for you. take...
Thanks a bunch. I wish I could say the same but my flare ups keep hanging around longer and longer. And they are getting worse and worse. I just don't know...
Just checking in to see how everyone is doing. As for me I have had either the flu or something. I always have a dry hacking cough before a flare up but this...
My mom has Sjogren's, but I don't know about the torn and split tear duct lens. She has the classic symptom of dry eyes. Praying you get over your bug soon....
Celia
DustBunniesAndBooks@...
Feb 6, 2007 2:27 am
2247
i dont know where any of you live but i can tell yall this...you DO NEED a rheumtologist. but just because a Dr is called a rheumy doesnt mean they know about...
Thank you for your very informative email. I'm not sure my rheumy knows much about DM. He has only treated 5 people and there is no one else in town. Does...
Hi Magda, I would like to thank you and Michelle Herlthy for taking the time out to answer my email. Your advise is very helpful and it is helping me to...
I have been reading for months but this is my first post. I was diagnosed with DM 7/06. 60 mg. of prednisone gave me nearly instant relief and I continued to...
I have found many disappointments through my year long journey with dermatomyositis, but I have just keep chugging along. I was on Presnisone in the...
Hello to all of you. I've been reading the recent postings about medications. I wanted to let you know what my rheumy has recently done and see if ANY of you...
Hi Terri, I have not had any experience with CELLCEPT but my Neurologist wanted to put me on that instead of the Meth/prednisone combination, and my Rheumy...
I was diagnosed with DM in 2000 and tried Azathioprine and Methotrexate - lost my hair with both of them. I started 500 mg Cellcept in March 2005 and...
I shunned exercise for 50 years, but my rheumatologist said it would help. I joined the Y two years ago and take a 1 hour low impact aerobics class or water...
I know that it's disappointing, but don't give up. I too had gotten down to a low dose of prednisone when I had a flare up. The doctor upped the dosage and...
Thanks so much for the encouragement. It is great to hear from someone who is being successful. My head and face itch and burn so much, I get very discouraged....
Sounds like there ARE some folks besides myself who have Docs who use CELLCEPT. Ive never been on the MX so I cant say which best for me....but if its good...
Hello, I am the mother of a 6 year old recently diagnosed with Dermatomyositis. Is there anyone else out there with a child with this disease? My daughter...
I don't have a child who is suffering from this disease but I was diagnosed while pregnant with my second child almost a year ago. I have been very frustrated...
My rheumatologist started me on methotrexate about 4 months ago, he wanted to start me earlier but I wanted to wait until my baby was 6 months old to stop...
Thank you Kristi. You are also coping with a lot !! I have some good friends that are doctors here and they, along with my pediatrician tell me that it is...
Suzanne, I am definitely glas you let your mom's intuition guide you and you took your daughter to St. Louis. I have had nothing but positive experiences with...
Hi, Kristi. I am taking currently 12.5 mg of prednisone (down from 60mg), 5mg methotrexate, 50 mg Imuran, 1 mg folic acid, a potassium supplement, 300mg...
My daughter is 2 1/2 and was diagnosed a little over a ago. She seems to have a very mild case....it only seems to be affecting her skin so we have her on a...
My daughter was diagnosed when she was 4, she is 5 now. She is being treated at Children's Hospital in Oakland, CA. They have a Pediatric Rheumatology...
Hi, I would like to ask if anyone else has been on ivig treatment for 2 years or more? I been getting treatment now every 4 week 120mg...40 per day. My nero...
does anyone know of any experts on dermatomyositis that possible have any material to read? i was reading about a dr. brown who used a low dose anitbiotic...
