I got the best Christmas gift ever. My swallowing is coming back and I was able to eat solid foods again, thanks to a wonderful new physician, nurse...
Hi Jenny, my name is Brenda. I haven't written much in this support group, but I have been following your situation. I'm so glad to hear that you have your...
Jenny That's great. Keep up the progress and Happy New Year! Karen ... From: Jenny To: dermatomyositissupport@yahoogroups.com Sent: Monday, January 01, 2007...
I just took my husband to see his doctor yesterday. He is on the Prednisone and Methatrexate. He was taking 40 mg once a week by tablet of the Meth. Now it...
My daughter (Tyshira), also five, is taking both Prednisone and Methotrexate. Tyshira's bloating came from taking the Prednisone. Her bloating went away when...
Out of curiosity, who many DMers also have Raynaud's Phenomenon? I do. I recently noticed that the outside area of my big toe is "numb," has no feeling. I...
Celia
DustBunniesAndBooks@...
Jan 9, 2007 2:33 pm
2220
I do not have Raynaud's but I know what you mean about not knowing what is part of what problem. With DM, it seems everyone is different. I drink a lot of diet...
I was diagnosed with DM in late August 2006, so I haven't really been through a summer yet with all the sun exposure and we are getting ready to go on a...
Hi, I was diagnosed almost two years ago. I had a little bit of the rash on my lower neck/chest and on my face at first. That first summer I was out in the...
I began to have symptoms the second week of August and it began with an itchy, red rash. The rash was so horrible, I ended up scratching all of my skin off...
Linda, I was given Plaquenil 400 mg daily for my rash, but it was really bad (raw skin over the majority of my upper chest, neck and head under my hair as well...
Hello, Did the Plaquenil get rid of the rash altogether? Can you go out in the sun? I tried Plaquenil but I got a worse rash after 2 weeks so I stopped it but...
Gail, I do have Raynauds also, but the prednisone seems to have helped but I still get it at times. Terri _____ From: dermatomyositissupport@yahoogroups.com ...
Wow, it amazes me how different this disease is to each of us. I wish I could find some current (2006) serious research on it that also has a listing of all...
Gail, Fortunately, my rash did get better with Plaquenil, but the thing I have learned about DM is that no two people are alike...what works for one may not...
Hi Gail- I have read that it helps some with the rash on this site and other medical articles and on both have read about it making the rash worse. Sharon ... ...
Hope everyone is doing well and I hope everybody had a good New Years. I also break out more with the rash when I get in the sun. It gets on my forehead and...
I also was on Plaquinil for a while. My rash went away for about three months and then it came back so my Rheumy took me off of it.Take care all. Leslie ... ...
Hi all - I am running this incident by in case anyone can offer me additional info. I have DM and am on methotrexate among other things (no prednisone anymore....
Hi! My dermatologist recommended that I use Coppertone's Specta3 (SPF 50)with Zinc. It goes on easy and seems to do the job, although I have not been spending...
Well, I've never had that but it sounds like a cramp or charley horse in the foot. I wish I could think of something else. Hope it stays away..........gail ...
Hi everyone, I am new to the group so I thought I would introduce myself. My name is Kristi, I am 28 and live in Everett Washington. While I was pregnant...
Hi, Kristi. I am glad you're finally able to receive treatment, such as they are, and are getting help. Something I just learned from my rheumy is to take...
Hi, My name is Maria and my daughter's name is Tyshira (5). In Feb. 06 when Tyshira was 4 she was diagnosed with JDMS. Since then, I have been tring to find...
Maria, My daughter was diagnosed with JDMS at the age of 6. It began when she was 5 but went undiagnosed for months. She could not walk up or down stairs, lift...
Hi - Thought you might be interested in these two links. They are both about the same person. They are about Al Johnson the Teas A & M coach and his DM the...
Thank you for sharing that, Claire. Maybe this will cause those who have no direct involvement with the disease to take notice. oak1day <kaneclaire@...>...
... 06 ... can ... out ... and ... grow ... hi, my name is magda and i am so sorry to read about your little girl. unfortunately, i don't know anyone with a...
Sorry I haven't been on for a while but I have been sick and flaring pretty bad. I am still here though and hope everybody is doing well. Welcome to all...
... hi leslie, sorry to read that you are having a flare up. i just had my first flare up in november. i am much better now and i hope the same for you. take...
