... will it ... for a second ... patients. I'm ... next week. I ... the ... you, I work ... my response ... times ... and fatigued ... etc. too! ... muscular...
... From: Don Dedmon To: dermatomyositissupport@yahoogroups.com Sent: Thursday, November 30, 2006 8:38 AM Subject: re: swallowing difficulties I live in...
Delores, You are 3rd or 4th nurse to write to me with this disease! I'm beginning to think it's a work hazard, lol. I'm having an esophageal motility test on...
hello you guys, I've been reading your comments. Terri I am sorry about your father he must be feeling frustrated. Thankfully I haven't had swallowing...
Dear Karla, I'm sorry to hear it. I hope it turns itself around real soon. Gail Karla Romero <Tweetybyrd_16_99@...> wrote: hello you guys, I've been...
Karla Sorry to hear you are feeling tough again. I hope help is on the way for you. It seems like a rollercoaster ride sometimes, but you will come out on top...
I too am having swallowing difficulties. I was drinking some drink last night and it felt like it was coming back up through my nose. I haven't had the voice...
I too am having swallowing difficulties. I was drinking some drink last night and it felt like it was coming back up through my nose. I haven't had the voice...
HI EVERYONE, I AM NEW TO THE GROUP BUT I HAVE BEEN READING FROM THE E- MAILS. I HAVE BEEN TRYING TO FIND A SUPPORT GROUP MEETING BUT HAVE NOT BEEN SUCCESSFUL....
... THE E- ... HAVE NOT ... THAT ... AUGUST ... MED ... METHOTREXATE. I ... FEELING ... LIKE A ... TIREDNESS ... was sick a long time before that. I wish the...
Hi Everyone. My name is Sarah and my husband Mike was diagnosed with DM in late October this year. He never had any health problems in the past and didn't...
Sarah, I'm new to this too and I'm 31 years old. I began having symptoms in August of this year. I'm on my first Dr. I really do not like him and have a...
Hi Sarah and Mike,, I have been diagnosed with DM for 12years but I was having problems about 20 yrs ago. It seems the worse it is at the beginning the more...
where can you get the fungilin lozenges and oil ... ____________________________________________________________________________________ Yahoo! Music Unlimited...
Hi, I get the fungilin on script they are for thrush also Vegemite which is an Australian yeast extract breakfast spread is good if you can get it. I googled...
Thank you for your response. I would like to know where to find the lozenges. Mike was refered to an ear, nose, and throat doc today and we will be seeing...
Hello Sarah, I am glad you've joined this group for it will provide lots of support and knowledge about this condition. I am so sorry your husand is in so...
I get the lozenges on script, but maybe Mike's mouth needs something different. the docs need to talk to the other docs to make sure they have the right...
Jenny, Back when I couldn't eat, and lost so much weight they mentioned the PEG tube. I was only on liquids and BOOST Plus. Then I started the Mestinon and was...
I am wondering if any of you may have some advice on disability through social security. Mike can not work right now as bad as he wishes he could and his...
Terri, I'm so afraid. I got the book that was recommended, "Coping with a Myositis Disease". It should have been called, "Horror stories of people with ...
Terri, I'm so afraid. I got the book that was recommended, "Coping with a Myositis Disease". It should have been called, "Horror stories of people with ...
I am just getting ready to apply for myself, so I don't have first hand knowledge of how to get approved. But, don't give up! I have heard that most everyone...
I am very lucky here in Australia they gave me a disability pension as soon as I was diagnosed no mucking around at all even more they pay my husband to stay...
Wow!!!! that's great you got disability right away, here in the USA they give such hard time and expect you to support yourself even when you are really sick...
Hi Sarah: My name is Merry and I was diagnosed in Oct 2004. I know that the progress can be slow it took me 4 and a half months after I was diagnosed and...
hi sarah and mike hope that your husband is feeling better. sarah at the hospital you can go and speak to the socialworker. Discuss the problem that you are ...
Hi Jenny, well I was born in Managua, Nicaragua and then moved to California when I was 10. Have been living here since then and am now 22. Well take care :)...
